e&j0304
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ARCHIVED Teen - Blood Test High Gliadin Iga
e&j0304 replied to Judee's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for the info and I'd love to hear what your ped GI has to say! -
ARCHIVED Teen - Blood Test High Gliadin Iga
e&j0304 replied to Judee's topic in Parents, Friends and Loved Ones of Celiacs
Chrissy, what are those other things that can cause elevated IgA? I have always wondered and have never found my answer... -
ARCHIVED We're Going To Disney World!
e&j0304 replied to e&j0304's topic in Traveling with Celiac Disease
Thanks for all the advice, Angie! I appreciate it! We are looking forward to our trip. My little 4-year-old girl is going to have the time of her life!! How exciting!! Thanks again! -
I have tried to read as much on here as I can find about Disney and it seems like they do a great job with gluten free foods. This is our very first trip to Disney World and we have 2 children (ages 2 and 4) who follow a gluten free diet. We are going in September. Should I request a gluten-free foods list to be mailed to my house? Should I make special...
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(con't) and now they want to wait another 3 months...that is half a year already. Follow your gut instincts on this. I would find a new doctor - check out http://www.thyroid-info.com/topdrs/index.htm if you haven't already.
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also - interestingly, when they do treat you for hypo, most docs aim to get your tsh to 1 or under...so...3.7 and even 2.62 could well be too high for her...esp. in light of her symptoms. Also - have they checked her for Crohns? It is NOT normal for a child to have the symptoms that you speak of and it is essential to figure out what is going on with her asap. she was first tested 3 months ago
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Hi, E. I'm new to this board. I was just diagnosed with hypothyroid earlier this year. It took 4 endo's to figure it out. I urge you to be aggressive in re: to your daughter. IMO it is absurd for the doc not to be addressing her thyroid issues during this time when she is developing. Good luck!
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Thank you all for the advice. Her dr. called today and said that they want to test her again in another 3 months. They will do antibody testing at that time to determine if she has Hashi's. Hopefully we will find out one way or another if there is something really wrong with her. I really appreciate the advice and support!
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Thanks for the advice, Georgie. She has not been tested for anything other than TSH and Free T4. She was tested about 2 or so years ago for FISH levels? I'm not sure what that is but they said it was normal. It's frustrating because I think drs. think we're crazy. I know that it's not normal that my 4 year old's hair was falling out in clumps and is...
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Ok, so here's the deal. My little girl was tested 3 months ago for suspected hypothyroidism. Her labs were: TSH 3.7 and Free T4 0.6. The dr. wanted to wait and retest her so we just did that and her new tests results are: TSH 2.62 and Free T4 1.2. So last time her results were borderline abnormal. Her TSH should really be under 3 for sure and we would...
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ARCHIVED Not Sure What This All Means...?
e&j0304 replied to Tritty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If he has reflux that could be making him wake up at night as well. Some kids have reflux without us really knowing it. It's called "silent reflux." My son has a pretty severe case of this and also wakes up many times during the night crying. Food issues as far as texture and refusal to eat are also signs of reflux. I'm glad you got in with the GI... -
ARCHIVED Please Help Me Choose Endoscopy Or No Endoscopy For My Son.
e&j0304 replied to momof6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that the benefits to finding out the information during an endoscopy FAR outweigh any potential risks. Most people do completely fine with the anesthesia and if you have a good dr. they should be able to find the damage. If that is all negative then I would absoloutely do a trial of the diet. I agree with Ursula that it only makes sense to try... -
ARCHIVED 1 More Week Until My Son's Hydrogen Breath Testing
e&j0304 replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
I was talking about the lactose test, not the gluten one. The poster before me was questioning why her GI didn't know about it and asked who ran it. Sorry for the confusion! -
ARCHIVED 1 More Week Until My Son's Hydrogen Breath Testing
e&j0304 replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
My friend's child had this done and I believe his gastro ordered it and he went to the hospital to actually have the test run. HTH -
ARCHIVED Newly Diagnosed With Celiac And Throwing A B-day Party
e&j0304 replied to swinkler's topic in Parents, Friends and Loved Ones of Celiacs
The Kinikinick (sp?) mixes are AWESOME. I always use those for cakes and cupcakes. Also, like someone else mentioned, some bakeries do make gluten-free cakes. Our local chain, Hy-Vee, does gluten free cakes. If it's just a small party I would definitley try to do it ourself though if you can. It would be less expensive that way. I actually make a Thomas...