Sunflower23

RAST testing came up weak positive for wheat, soy, peanuts and corn. The skin prick test just had a tiny red dot at each of those spots, the nurse said it was a negative reaction. Although now that i think about it....a couple tree pollens that came up small dots were retested by injection and he ended getting hives from those.

Went to allergist. My son was tested for food and environmental allergies. Enviromental testing came back he's allergic to grass, most tree pollen, cats, dogs, ragweed, etc. The foods tested - corn, wheat, soy and peanuts came back negative. Does that mean he is definitely not gluten intolerant? He also went in for an ultrasound on his GI tract and everything...

Update: after colon clean out my son had two good weeks. One week was school break in which he was tutored and the next week he actually went to school. Now he's back to feeling crappy again and stuck at home. Hydrogen breath test came back negative. Still waiting to see allergist on April 1st. In the meantime we are working with the social worker at the...

It is very frustrating at the least. I just wish doctors would just listen to what us parents have to say. We know our children better than anyone. Do the tests we ask for, and if we are wrong then proceed on what they think should be done. It would eliminate months of seeing specialists that are not needed. We are in our third month of bouncing around from...

Scheduled allergist appointment for my son. Unfortunately they could not get him in until April 1st. We are willing to wait because I've heard alot of good things about this doctor. He goes to bat for the patient and won't give up until he finds out what is making them sick. The doctor is an immunologist. The other amazing thing is that this doctors wife...

Lots has happened in the past week. Here's an overview: Results back from baseline bloodwork - negative Referred to GI doctor and scheduled appointment Met with counselor (2nd and last visit) - son doesn't like her. Doesn't say anything to help him. Met with school - Threatened to call CPS. Bring it on we have nothing to hide, he is sick. Met with...

Took my son for bloodwork today. The pediatrician wasn't familiar with the blood testing for celiacs so she consulted with another doctor and they told her that a baseline was sufficient for first testing. He also said that our insurance would probably not cover the full panel without an elevated /positive on baseline tests. I guess we will have to wait...

My husband asked to have written correspondence faxed to us between the school and the doctors office. The doctor wrote.....specific diagnosis: fatigue and joint pain of unknown etiology. Currently evaluating for anxiety as the cause. My husband has tried several times to speak with the principals at the school but they will not return his call. He is going...

Exactly, I thought the same thing and you are right i won't fill them out next year.

My son received tutoring at the school for 2 hrs per day for one week. Then he tried to go back to school half days (the first three periods) but the nurse messed that up for him by not letting him call home to be picked up when not feeling well. Then Starting last friday he started tutoring again, at least that is what i was told by the nurse, but this time...

I will look into Homebound student. Homeschool/cyber school sounds like a good option but not sure if this would even work for my family. My husband and I both work full time. Thank you for the information.

The nurse called and told us that my son should see a counselor. I spoke with the school nurse and she said that the doctor implied it was psychological. The doctor said she didn't exactly say that. Regardless that is how everyone is treating this. To top it all off I just found out from my daughter that my son isn't really seeing a tutor. He is actually...

Good to know about the Lymes diisease testing. Our dog actually had a deer tick on him a few weeks before my son got really sick. As far as all the testing, the doctor never showed us the results. The nurse told us the results over the phone and all she said was that all the tests came back negative. I will ask that question when I call for a referral on...

I probably should have him tested for celiacs instead of just going gluten free without a diagnosis. If I don't he will always be labeled by the pediatrician and school as psychological. I don't want that for him. Thank you for your input.

No, at that time I hadn't yet reached out to my friends. My friends are the ones that suggested I checkout that book and told me it sounded like a gluten allergy.