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maseymn

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  1. If you don't follow a gluten-free diet -- you'll probably start first noticing problems because of vitamin deficiencies -- your body can't absorb nutrients from your damaged small intestine; you will be more likely to get stomach cancer (the figure I remember seeing was 800x more likely), more likely...
  2. That it's the newest "fad" disease, and most people that think they have it don't really have it. And that a little bit of gluten won't really hurt you; after all, you ate it for years before you were diagnosed.
  3. I was not formally diagnosed. I tested positive for antibodies, and my doctor said if I feel better on a gluten-free diet that was confirmation enough for her. I didn't want to wait. Since then they've wanted to have me do a "challenge" and a small intestine biopsy, but I told the doctor I'm just...
  4. In addition to my comment above, I should have said, too, that yes, I did go through some similar things early on. They would kind of come in waves. At the time, I knew a naturopath who called them a "healing crisis" -- your body getting overwhelmed as it was detoxifying and healing. She had said...
  5. I got extremely reactive to gluten after I went gluten free. I wouldn't discount that you might be getting glutened from a surprising source. The four things that got me when I thought I was completely gluten free: 1) I had to replace my pyrex dishes -- apparently the glass can get pits in it that...
  6. You sound like you have multiple food issues. As your gut heals on a gluten free diet, you might find your body gets less reactive to some of those other foods. There's a blood test (ALCAT) for multiple food sensitivities. I'm sure insurance won't cover it, but if you can afford it, it might be better...
  7. The only reason I can see for doing a gluten challenge and getting a diagnosis, is if you think there's a possibility that Celiac is not what you have, which would mean you could then start eating gluten again. It doesn't sound like that's a possibility for you. I was diagnosed with a blood test...
  8. I went weekly to my GP until she took me seriously. I'd go in, she'd say try this, try that, I'd go out and schedule an appointment for the next week. We did this for about a month, when she finally said "You're serious about this, aren't you?" (My main symptom was abdominal pain that nobody could...
  9. Laura, I never had the small bowel biopsy. I was SO sick when I was diagnosed (I thought I was dying) that I went on a gluten-free diet a couple of days later (I had to have my "farewell to gluten" tour before I quit everything cold turkey). I had a blood test that was lit up with multiple antibodies...
  10. When I first set up my kitchen after being diagnosed, I color coded things. I didn't have any red in my kitchen, so I bought red spoons, red pans, red spatulas, red mixing bowls. My family knew if they were cooking something with gluten to never use anything red. I haven't had trouble (as far as...