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Everything posted by Mgh1213

  1. Hello all, I come to you seeking advice as you all know more about celiac disease then the 3 doctors I have seen for it. I was diagnosed with celiac disease by blood test back in September and was told to begin a strict gluten free diet for life. I was told I woud not need to follow up with an endoscopy or additional testing as they thought for sure I had it because I lost 35 pounds (from 120 to 85) and my labs were very high: Gliadin AB IGG - >160 Gliadin AB IGA- >320 TTG IGA- >160 For some reason I just didn’t feel like I had celiac disease, other than the extreme weight loss and fatigue, I had no other symptoms. I also have Graves’ disease which is under control (they thought that was why I lost weight but decided it wasn’t). But I decided I wanted an endoscopy regardless of how many doctors told me I didn’t need it and now I’ve been told that I have no signs whatsoever of celiac disease. I have been stressed, depressed, confused since I was diagnosed 6 months ago and now I’m told it was a false positive?? When I look online, the false positives are usually just barely out of range but mine are so high? Do you think it’s really possible that the blood test is wrong and that I don’t have celiac disease? Im just so skeptical especially after being misled ..I hate to load up on gluten and years later regret it ..thanks in advance for the advice..sorry this is so long, so many details. Also, my gastro who is new to me, told me before the endoscopy that since I don’t get sick from gluten then why stop eating it? Ummm can it not cause cancer? He said he didn’t..but this is partially why I don’t want to ignore this if I might have it
  2. Thank you all so much for the encouraging words and advice, it has been the most help so far! @cyclinglady I have heard of others that have had thryoid issues improved with the gluten-free diet so that definitely makes sense! I think a lot of things will get better once the gluten is gone. And wow! That is a lot to deal with mentally emotionally, etc. going through menopause, and dealing with celiac and thyroid problems. Major props to you for maintaining a positive attittude..that is most admirable and reminds me I can do this! @Jmg I have considered talking to a counselor, like you said, it would help to talk to someone and I have very grateful to have figured this out while I am still young, I'm ready to take control! @Gemini Thank you for your encouragement as well, it helps to hear someone has gone through a similar process..doctors have made me feel like I am the only person in the world trying to gain weight so I am excited for the future! Thank you all again.
  3. Thank you for your response, it really helps to hear from others and I will check out the coping forum that you mentioned. I do have Graves Disease and have been on anti-thyroid medication for 2 years, I just recently started seeing an Endocrinologist (had been seeing normal MD prior) and they said my thyroid levels were good and suggested some gastro tests since I was still having other symptoms. This included the celiac panel that came back positive. They have not referred me to a Gastroenterologist but I assume that is next. I think I will wait to cut out the gluten totally, until further testing is done by the correct specialist. I'm hoping getting this celiac in line, will help the rest of my problems such as the hormones, as you said. Thank you again for taking the time to reach out.
  4. Hello everyone sorry if this is repetitive but I am a 26 year old female with hyperthyroidism, hypoestrogenism, severely underweight 88lbs (lost 35 lbs) just recently last week, found out that I have celiac disease. Panel is as follows: IgA - 144 Gliadin AB IGG - >160 Gliadin AbB IGA - >320 TTG IGA - >160 Could someone tell me if the higher the number, does that necessarily mean it's any worse than the next person with the disease?? I'm really scared about all of this honestly, I'm afraid I don't have the self control to begin to stick to a gluten free diet as all I have eaten my whole life is junk..any advice is helpful. The mental is taking a toll on me. Also, I have not had a menstrual cycle in 5 years (was on Depo birth control shot for 3 yrs, been off for 2 yrs) would this celiac disease have anything to do with the lack of menstration? I have been on Hormone Replacement Therapy over a year now with no results. I have to get back to my old self by before I lose it forever...Thanks for the help.
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