missmyrtle's Blog

I have been lurking here and learnt so much with still much to go, what a wonderful site

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My story truly began forever ago with what my mother called, "Teddybelly". I waded through my teens with anorexia, ADD sort of symptoms and later, wild weight changes over the years. I am 38 now and in retrospect my twenties seemed quite calm on the health front.

It all really began at 33 when my belly was swelling and being commented on in the street! Usually asking if I was pregnant.

At 34 I had the beginnings of major trauma events and soon fatigue set in and bouts of unbearable depression and panic attacks.

My weight was great and I thought nothing of huge hikes and long horserides almost daily. I performed in a Women's Circus and made everyone laugh yet at home I increasingly was crushed by depression and started to gradually stay at home and avoid being out in public.

I bought a clothing boutique and ate food from local cafe's everyday. Gradually my belly was always swollen and often so painful I wanted to curl up behind the counter and twice did not make the bathroom whilst serving a customer. Needless to say...the business failed and I lost alot of money but at this point I stopped caring about much at all.

I saw a digestive health clinic of amazing repute. According to them I had C.Diff and my past test for Blastocystis Hominis that was a pos had become a neg. My GP constantly cited nerves as my problem and made me feel bad for gaining a large amount of weight. Test after test including CT scans and many blood tests..not alot wrong apart from slight liver enlargement and kidney stones.

It was ME who asked to be tested for Coeliac as I had googled my heart out and it made sense. GP laughed and said it was unlikely and hey, lose some weight! So..diagnosed with Coeliac around three months ago when I went to pick up a script and my GP said by the way...then handed me a shoddy printout about the disease. It was laughable but armed with the internet so able to instantly cut any gluten from my diet.

I felt euphoric for the first few weeks then the glutening began...well meaning friends who did'nt realise the salad dressing was poison. Cafe's who thought gluten free meant no bread and on....yet, weeks of better health until I tried spices! Who was to know what they would do after my very pure diet of seaweed, sushimi,green vegetables, rice and steak fillets.

Who? Me!!!! I am on day four of a huge,(nine month pregnant looking tummy). I guess I have become super sensitive and am also battling Candida which floods my gut and I throw fivelac at this and hope it gets better.

My GP is totally ignorant about Coeliac and to make matters worse, I have been trying to concieve for the past almost four years and now I am concerned that I may be in perimenopause despite being extremely fertile previously.

I do not understand that GP's don't get the wholistic picture and I don't know where to turn as the battle has only just begun.

My first Blog....MM.