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RebeccaMSL

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RebeccaMSL

  1. RebeccaMSL
    I have had Celiac Disease my entire life and didn't know/wasn't diagnosed until I was 31. I had my son when I was 30, and conceived when I was underweight and anemic and suffering GI symptoms. All this to say, as ill as I was, I was still able to carry my son to term. He is healthy and now 18 years old. If I could offer some advice though, WAIT for your Villi...
  2. RebeccaMSL
    I'm not sure I agree with 44% risk if Mom has Celiac. To be diagnosed with Celiac you genetically need HLA-DQ2 and HLA-DQ8. Despite the fact that HLA-DQ2 and HLA-DQ8 are both linked to Celiac, having the mutation doesn't necessarily mean that you'll get the disease. In fact, as many as 40 percent of the U.S. population have these mutations, mostly in people...
  3. RebeccaMSL
    I agree. I have a bunch of auto immune diseases, (including Celiac and Type 1 Diabetes and Hashimotos and Reynauds and Sjogrens and NLD...) and recently learned I also have a mast cell activation syndrome with gi presentation. The mast cell episodes are usually triggered by histamines. The histamines in red wine, tomatoes and aged/jarred foods like roasted...
  4. RebeccaMSL
    I see an endo at Joslin in Boston and a gastroenterologist at Beth Israel in Boston, and both of these docs are supposed experts in the field, (I have both type 1 diabetes and celiac -fully diagnosed with biopsy of sm intestine) and neither one wants to re-check my antibodies. They say there is no point, that MANY times they will stay elevated, and MANY times...
  5. RebeccaMSL
    I have celiac (diagnosed with blood test and biopsy)and have been gluten-free since 2005, so 3 years gluten-free. I also have Type 1 diabetes and am on an insulin pump, and have sjogren's syndrome, and hypothyroidism. Needless to say, things are complicated. HOWEVER, I am noticing that each time I get gluten accidentally, I have an episode of sickness that...
  6. RebeccaMSL
    Oh, I know I have celiac. I had a positive endoscopic biopsy showing complete atrophy of my small intestine/duodenum, as well as positive blood tests. So, no doubt about that! Where did you get genetic testing done? I want to test my 3 pr old son for DQ2 and DQ8 which if they are negative will allow me to relax a little. My pedi says that only a few labs...
  7. RebeccaMSL
    Thanks for all the replies. I am amazed that this is common that the allergic response becomes more severe. I really don't want to eat anywhere but home now, unless there is a gluten-free menu. I felt so terrible the last time I got sick, and I was fainting while trying to get both ends over the toilet, and my heart was pounding so fast I seriously thought...
  8. RebeccaMSL
  9. RebeccaMSL
    I used to get the big D every day before I was diagnosed. But I guess my body and I were used to it b/c although that was miserable and I never knew what was doing it to me, I at least was not getting as violently ill as I now get. I have been gluten free since November of 05. Now, if I get glutened I sweat, shake uncontrollably, have diarrhea and vomiting...
  10. RebeccaMSL
    Chrisser, I know exactly what you are talking about. I get it too. I have celiac and type 1 insulin dependent diabetes, and I relate it to blood sugar fluctuation. If I have given too much insulin for a meal, then afterward I feel nauseous and hungry and full and awful, and have to drink juice to get my blood sugar back up. If you are hypoglycemic, then your...
  11. RebeccaMSL
    Coffee is a known inflammatory agent, b/c of its acidic nature and the caffiene. I would try not to drink it on an empty stomach...I think there's a reason that coffee and donuts go together... BTW, kinnikinnick.com has YUMMY gluten-free donuts in case you want to order yourself some! If you want to tease out whether its the acid that is bothering you, take...
  12. RebeccaMSL
    Hi, I am new to this forum. I have a question about the allergic response to gluten and wonder if anyone experienced this same thing? I was diagnosed with celiac in Nov of 05 and have been trying to be gluten-free since then. (Had Positive biopsy and positive blood tests). I was symptomatic and undiagnosed for decades, and had daily diarrhea and stomach pain...
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