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CMCM

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About CMCM

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    Northern California

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  1. I can get mouth sores within an hour after getting some gluten accidentally.
  2. I am also dealing with the neuropathy....feet and toes mainly, but also some numbness going down my right leg. All my blood panels, glucose etc. come back normal. I realized this had started in a much milder way back before I was diagnosed...
  3. CMCM

    Corn

    I have also come to realize I have major issues with corn. I always knew it upset me and was careful with it, but now it's really a problem and I'm avoiding it as well as gluten. In fact, I have issues with pretty much all grains. I get...
  4. My mom, as it turns out, has two celiac genes. She probably had mild evidence of it from childhood (she remembers health issues, but nothing horrible). At 46 (this was 1968!!) she had to have a hysterectomy...and that triggered her full...
  5. I spent my first 55 years thinking I had serious tolerance issues with dairy. Although my mom had been diagnosed with celiac disease 40 years ago (she nearly died from malnutrition before a bright doctor recognized and diagnosed her), my...
  6. CMCM

    Olive Garden

    We went to Olive Garden last night. They had a limited gluten-free menu including a pasta sauce on rice noodles, but other than that mostly grilled steak, chicken, salmon and veggies. I got a mixed grill (chicken and steak) plus veggies...
  7. This really is important for all of us. I had a comprehensive bone density test at age 49 and they said I had osteopenia at that time. I didn't realize I had celiac disease until about 6 years later and realized the connection between...
  8. Let me give you a very reassuring reply. My mom was very very ill and nearly died from undiagnosed celiac disease when she was about 46. At her time of diagnosis she weighed 85 pounds or so and her intestinal walls were smooth as a billiard...
  9. I've read a lot of things lately suggesting that the oat protein is problematic for celiacs more than some people are trying to make us believe. I love oatmeal and tried various gluten free versions, but I did have problems, and especially...
  10. Can anyone explain more about the above? Celiac disease runs thru my family. My mom has double celiac genes. Many in my family got tested via Enterolab. We want to find out what my father's 2nd gene was (from my test we know one of...
  11. CMCM

    A Big Surprise Of My Life!

    It's really quite amazing how many people (who have no "issues" or at least who think they don't) are totally insensitive and uncomprehending and unempathetic about it. Forty years ago when my mom was so sick and as yet undiagnosed (because...
  12. A few comments on my experience. I was very sick by late 2005, at which time I was 56. Things were heading towards a crisis level, and as I researched symptoms I was led here and other celiac related places. Despite having a mother who...
  13. Enterolab testing was useful for me because I had minimized gluten to the extent that I couldn't/wouldn't get anything definitive on a traditional blood test. What the Enterolab testing told me was this: that I had a celiac gene and a gluten...
  14. I absolutely believe your symptoms CAN vary. Mine certainly have! I think possibly the variety of symptoms I experience have something to do with the nature of the food I eat, things in combination, and it's not strictly due to gluten...
  15. I also had trouble with the "Think Thin" bars. In fact, I have trouble with ALL bars so I no longer eat them. As for your calories/weight loss, this was also the case for me. I really can't eat as much as I used to, and even 1600/day...
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