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Doctor won’t test me because I don’t have blood in stool

Crescentmoon
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Crescentmoon Newbie
Crescentmoon
Posted

Hi everyone, I’m brand new so sorry if I put this in the wrong forum. Anyways my title says it all and I feel so frustrated I feel like crying. I finally stopped ignoring my symptoms after a year and scheduled an appointment with my doctor. I told her everything that was happening and she automatically dismissed me and made me feel like s$#&. I told her all of the symptoms I have which are: diarrhea,
vomiting, fatigue, Heartburn, bloating, Abdominal pain, burning throat, headaches and even more. She basically ignored all of this and said since I don’t have blood in my stool and since I don’t know if it runs in the family (i don’t know my fathers side of the family so I can’t say for sure) I probably don’t have celiac. I literally can’t even eat a piece of bread without throwing it back up. I’m tired of feeling sick all of the time and being nauseous all day at work.  Is there anything else I can say to try to convince her or should I just say screw it and find a new doctor? Anyone else have a similar experience because this sounds off to me? Thanks in advance! 

 

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trents Grand Master
trents
Posted

Get a new doc. If my doc was that ignorant and stubborn I would switch in a minute.

And welcome to the forum, Crescentmoon!

GFinDC Veteran
GFinDC
Posted

Ignorance comes in many forms, including the doctor form,  Agreeing with Trents find a new doc.  Try a search for celiac and doctor and your city or state name,

Be aware that you need to keep eating a small amount of gluten until all testing is done.  Otherwise the testing is inaccurate.

Many doctors are unaware of proper testing for celiac disease.

Scott Adams Grand Master
Scott Adams
Posted

There is a home test you can order for under $100, but you need to be eating gluten on a daily basis for ~12 weeks before blood tests can be done:

https://www.imaware.health

It’s definitely time for a new doctor no matter what happens, as yours clearly doesn’t have your best interest—your health—in mind!

woly-boly Newbie
woly-boly
Posted

My doctor told me the same thing after telling her my biological father was recently diagnosed with Crohn's disease which I suspect was a misdiagnosis based on my own allergies and intolerance for wheat products. I'm still waiting on answers myself and am eagerly waiting a Celiac screening.

I hope you find answers and a new doctor that takes you serious.

Remember, you are your own biggest health advocate! 

 

CMCM Rising Star
CMCM
Posted

Good grief, so sad to see there are still so many clueless doctors out there.  Keep eating gluten, and like others have said,  I'd suggest immediately ordering the imaware celiac test suggested by Scott as it's cheap and easy.  I recently ordered that test myself.  I got the test and sent it back and then got results within about 10 days.  After you get your test results, you may have a better idea of what is going on.  Sure sounds like either celiac or non-celiac gluten sensitivity.  Your described symptoms are pretty common in both cases, I had almost all of them.  

So many of us here have had to take matters into our own hands in many cases because doctors just don't know enough, even in 2021.  So get your own information where you can and go from there.  

GodsGal Community Regular
GodsGal
Posted

Hi! I'm glad you are here. I agree with the others that you are going to need a new doctor. No one person can know everything. And, with as many diseases and ailments as there are out there, even the best doctors don't know everything.

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  • 2 weeks later...
BuddhaBar Collaborator
BuddhaBar
Posted

Pour some Halloween-blood on your poo, take a pic and show her. "Look dawktor, I haz some blaaaaawd in ma stooool".
You have to lower yourself to her level in order for her to understand you.

Or you could find a real doctor instead of someone who paid a few thousand bucks for a diploma on the deep web.


 
 

nora-n Rookie
nora-n
Posted

Try with some fact pages, like http://www.cureceliacdisease.org/faq/what-are-some-of-the-symptoms-of-celiac-disease/

GF-Cate Enthusiast
GF-Cate
Posted

Definitely find a new doctor who will take you seriously.

You can also order your own bloodwork and labs for celiac panels, nutrient levels, etc  (at least in the US) through companies like Ulta Lab Tests. 

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    • trents
      Coeliac or not coeliac

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      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
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      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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