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familyfirst

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  1. Thank you for your kind words. Yes, I agree that postponing the test until we absolutely have no other answers is the way to go. I think eliminating corn products is just as hard as eliminating gluten. I hope our summer is full of fun and not full of dr. visits like they have been. Thanks again, Beth
  2. My son has had months of stomach pain, gas, and D on and off. I was told that my son doesn't have celiac based on bloodwork. The dr. said the next step is allergy tests, CT scan and endoscopy/colonoscopy. The allergy test came back: 0-1 in chocolate and soybean, 2 in beef, egg, and wheat, and 3 in corn. He said that 0-2 is ok; however, 3 is considered an allergy therefore he wants him to avoid corn. GOOD NEWS that we found out something-- Has anyone else been through the RAST allergy testing? Is 2 considered high to anyone? He also had his CT scan and they said everything showed up normal. YEAH! Now for my main question, I'm debating on even having him go through the endoscopy/colonoscopy if it may be corn allergy. I have been suspecting gluten, but since corn has shown up, maybe that's our answer. I don't want to go through the endo. if that doesn't definately confirm celiac. I've heard so much about how the biospy are not reliable. SO, should I just cut the corn out and just wait and see? I know that seems so "duh", but then again, I think maybe he should go through the test, JUST to make sure... I know I sound crazy, but I was wanting some opinions. Thanks, Beth
  3. My son has not been offically dx for celiac disease. However, I'm not waiting around. I was wanting to know any suggestions that will help me save HOURS at the store when I go earlier next week. I know that it can be expensive. I don't want to spend my whole night at the store looking for gluten-free food. Is there a cheat sheet that I can look at to help my decisions? Also, I am a working mom of 3, so time cooking is limited. HELP me out please! I have enjoyed reading and learning about celiac disease in this forum. I look forward to learning a lot more for my family's sake. Beth
  4. Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.
  5. Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.
  6. THIS BURNS ME UP! I am a teacher and I would lose my certification if I took any "kickbacks" from companies. We are one profession that should get some perks since we are teaching "our future"! Oh well, I went into the wrong profession. J/K, I love teaching. Beth
  7. My DS's GI has ruled out Celiac disease(however, we see him on Monday and I'm going to probe him for more answers). He is still having minor syptoms after 3 weeks straight of D and stomach pain. He still has major stomach pain, but the D has disappeared even to the point of constipation. He also is now having major headaches with a heat feeling inside his entire body! He is on Nulev for D and stomach pain. He is having such extreme symptoms, I just don't know what to think... Like I said, if the dr. doesn't give us more definate answers on Monday, I'm going to try the gluten-free diet and forget the medical dr. It won't hurt anything. My question to the forum is... Can you have symptoms that go away and start again? Or change over time? Has anyone have a hot feeling inside their whole body and headaches?
  8. I haven't tried him on the diet as of yet. They are sending him for a food allergy profile next week, then if those results(which only test some common allergies) come back neg. Then they will send us to an allergist for a more detailed work. Ravenwoodglass, I think you were the one that mentioned caesin(sp?) in my other post. Thanks for that info. I will definately ask for that test. I researched some on that and he has all of the symptoms including itchy skin and asthma. Again, thanks! That's why I love this board--you get "armed" with information before you face the "all-knowing" drs. HA! HA! to the all-knowing!
  9. The Panel looked like this: tTG IgG <6 Range: 0-5 tTG IgA <4 Range: 0-3 Immunoglobulin A, Serum Negative Antigliadin Abs, IgG 53 Range: 0-9 antilgladin Abs, IgA 5 Range: 0-4 The two that are considered high by the pedi. was the last 2. Thanks!
  10. It was LabCorp. I have the results and there are 2 highs and the other 4 neg. I was just wondering if you have to have all 6 positive to be celiac. I guess I'll just ask the dr. Thanks!
  11. HI! I posted yesterday about my DS, age 10, lab work. I understand that all labs have different ranges and standards, but does anyone know where I can go to compare my son's results with the standards. Also, on his celiac panel he had 2 definate above range items out of the 6. What consitutes a "true" celiac diagnosis. I spoke to the nurse, not the dr. and didn't ask much over the phone. I was going to wait until my DS next visit. The GI is saying he doesn't have celiac, but maybe a food allergy. We get blood work done next week for a food allergy profile. Any insights? Thanks!
  12. Well, I'm glad someone replied to me because I want to tell you that my pedi. GI called today and said that "NO, he doesn't have Celiac Disease; however, we want to do a Food Allergy Profile" I'm frustrated, but as I read with your stats that you were sent to an allergist, which is where we are heading if these results come back neg and he still has problems. I'm getting to the point that I just want to go gluten-free and forget all of this run around.
  13. I'll try to make this as simple and quick as possible. My son(age 10) has been having terrible stomach pain and D for months now. Every time we went to the pedi. she would say that he had a virus--a 3 wk straight virus!!???? Well I had had enough and ask to see a specialist. Well, as many of you know, it takes forever to get an appt. In the meantime, his pedi. did blood work and stool samples. He was put on Nulev for pain and D. It has helped, but the pain is still there--he says it is constant pain and it is normal to him now because he has had it for so long. I hate my son to have to go through this. He has missed so much school and I'm ready for some answers. The GI is calling me back with the actions we will take from the results from the bloodwork that the pedi sent him. I wanted to tell the results here so I can get your opinions on it(results from LabCorp): tTG IgG <6 Range is 0-5 tTg IgA <4 Range is 0-3 Immunoglobulin A, Serum 183 Range is 53-204 Endomysial Anti. IgA Negative Antigliadin Abs, IgG 53 Range is 0-9 Antigliadin Abs, IgA 5 Range is 0-4 Also WBC was 15.7 Range: 4.0-13.5 and another high result was Eos(Absolute) 4.2 Range 0-0.7 Eos 27 Range 0-5 I learned that Eos is related to Asthma and parasites. He doesn't have parasites in his results, but he does have Asthma flare-ups. I don't know if this would be because of his asthma or GI issues. Any of your opinions are appreciated. I know his pedi GI will give me his opinion and advice; however, I want to be armed with all knowledge when we go to the next appt. Thank you so much.
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