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sandyg

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Everything posted by sandyg

  1. sandyg
    Your results are making me rethink my plan to have a repeat EGD after 1 year of gluten free. What are the chances I could go from "total villous atrophy" to healed in 1 yr? Not to pry, but have your antibodies been normal during the past 4 years? It's hard for me to wrap my brain around the idea that 10 glutenings could hinder healing that much. . . On a...
  2. sandyg
    I have 3 toddlers and finding child care so I can go to appointments alone is never easy. . . I'm wondering what happens if I skip the bone scan and just start taking calcium supplements. Is there any harm in that? How much calcium do they reccommend? Or is it important to have a baseline scan? Sandy
  3. sandyg
    Thanks for the links! I'm interested in a bone density test since I have never really consumed enough calcium, but maybe I can just assume I'm calcium deficient and start taking a supplement or at least a multivitamin. I don't really want to hear that I have osteopenia at 33 anyway Now I just need to find some gluten free vitamins. . .
  4. sandyg
    Hi All, I was diagnosed 1 month ago during an anemia work-up. My EGD showed total villous atrophy and a transglutaminase IgA level of 254! So, today I met a new GI (closer to home). I'm concerned about what other vitamins/minerals I could be lacking. I know that I have a ferretin level of 5 and that my iron is low at 18. Well, this doctor said that...
  5. sandyg
    That's the best explanation I've had from anybody! Thanks for the info. I will definitely have to check out the labs you mentioned. Sandy
  6. sandyg
    Thanks to those who replied, but now I have another question. . . A woman that I work, who also has celiac, is telling me that I will need a colonoscopy as part of the initial work-up. Is she pulling my leg???? I'm only 33 and don't have any GI symptoms. I hope not! Sandy
  7. sandyg
    Hi There, I'm a mother of three (ages 5, 3, & 2) and was just diagnoses with celiac last month. My 5 and 3 year old had blood tests, which thankfully came back negative. The pediatric GI doc would not screen the 2 year old. He said there is a risk for false negatives in kids under 3. Anyway, he told me to plan on having their blood drawn again in...
  8. sandyg
    Hi Everyone, I was diagnosed with celiac last month. . . I was seeing a cardiologist for some recurrent chest pressure that I was having. He did a thorough cardiac work-up and ruled out heart disease. However, I do have iron deficiency anemia. So, he referred me to a GI doc. I ended up having an EGD and fully expected to have some kind of ulcer, but no...
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