Jump to content

bonnie blue

Advanced Members
 View Profile  See their activity

  • Posts

    60

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by bonnie blue

  1. bonnie blue

    Noones heard from you since jan....Hope your surgery went well...hopeing you are ok!

    Thinking of you!

  2. bonnie blue
    Good morning friends, Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the...
  3. bonnie blue
    Wonderful news!!! So happy for you there was no cancer, sending out healing thoughts to you as you get off your meds, and when you are feeling better you should defenitely celebrate!!! Have a wonderful day!!!
  4. bonnie blue
    I would also agree that you have solved your mystery, but you also need to find a good doctor who is knowledgeable in Celiac disease. Finding the right doctor is so important, it took me over a year to find a good gastro, but they are out there. Be an advocate for your health, this is your life and your body, only you know when something is wrong. I wish...
  5. bonnie blue
    I love this!!! I want this bumper sticker!!!
  6. bonnie blue
    Hello to all my friends, Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and...
  7. bonnie blue
    I cant say anything about the gall bladder, I just wanted to wish you a good recovery, give yourself time to heal, and I hope this helps you out. Sending out healing thoughts and big hugs.
  8. bonnie blue
    This is a wonderful community of people, I consider them my second family.
  9. bonnie blue
    Again just a suggestion, my sister-in-law has this and she is basically maintaining a good lifestyle with the dietary changes. And if your not having your regular gluten side effects I wouldnt think that you are getting gluten in your diet. Talk to your doctor about this, and your dietician they should be able to help you out. Good luck and again let me...
  10. bonnie blue
    Hello and welcome, after reading this, your symptoms, the indigestion, fullness, and burping, talk to your doctor about gastroparesis (sp sorry) or slow stomach. They do have a very simple test for this, and basically you eat smaller meals 6 times a day, and they put you on a PPI for the indigestion. Again please just an observation, but be an advocate...
  11. bonnie blue
    I love the ideas about the hats!! My daughter actually got me a hat that looks like a cat, my grandson loves it, he really doesnt know what to do about bald gamma, he's not scared just the first time he saw me he said "Gamma where is your hair?" Too cute. I live in Nebraska so ya its pretty chilly, but I like just going bald around the house, it's more...
  12. bonnie blue
    This looks so good, and a really an easy recipe I cant wait to try this, I am thinking this would be great for Christmas morning, yummy. Thanks for sharing!
  13. bonnie blue
    Good morning my dear friends. It has been awhile since I updated but my first round of cocktails (chemo) was pretty rough. But I made it through, and getting ready for my 2nd round on the 7th. Just a couple of days ago I lost my hair, it was very strange just started coming out by the handfuls, I did cry a little but then I figured look you can get all...
  14. bonnie blue
    I laughed so hard I almost fell off my chair, isnt this how we all felt when first diagnosed!!! Thanks for the laugh, have a wonderful day!!!
  15. bonnie blue
    Good morning friends, Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea...
  16. bonnie blue
    I agree most folks in the medical community are pretty clueless. It took me almost a year to find a good gastro. He actually told me that I know more about Celiac then medical students, scary huh. We have to be advocates for our own health, and keep looking for doctors who will take proper care of us. Take care.
  17. bonnie blue
    Sending you out a big hug!!! Yes this can be very overwhelming, and everyone here has already given you wonderful advice. I will add I also liked reading Celiac Disease for Dummies. This is a wonderful forum, it is my second home, it is nice to be able to go somewhere where everyone else understands what you are going through. Good luck and sending good...
  18. bonnie blue

    We had a very good day...hope you remain as strong as you sound in your posts...you are an inspiration....prayers will continue here in San Diego for you and along with your family. -Lisa

  19. bonnie blue
    Just an update, home finally. The cancer is in the early stages and has not spread to any other parts of my body. I will have two months of chemo, then surgery to remove my stomach, they will make me a new stomach from my small intestine, then after I have healed from the surgery two more months of chemo. The doctors are very optimistic about a full recovery...
  20. bonnie blue
    Hello to my friends, Last year in September after being ill for sometime I was diagnosed with Celiac. We took everything very seriously and began our gluten free life. All was well until December when I started losing weight again and feeling really bad. To make a long story short I saw different gastros, I was told it was all in my head, that I must...
  21. bonnie blue
    Oh hell ya I saw that, and had a complete freak out, and turned the channel, and I will never watch the show again. You know it is hard enough to get some people to believe in our gluten free lifestyle and this is our only way to stay healthy. Wow still cant believe they likened us to an eating disorder, these are clueless insensitive people. Ok rant is...
  22. bonnie blue
    Good luck until Friday!!! I must admit I felt a little twinge of jealousy when I read about the frosted mini wheats, ohhh one of my favorite cereals. I have been gluten free now for a year, feeling so much better, and you know it does get easier. Enjoy your goodies!!!
  23. bonnie blue
    Ravenwood, I just got on and saw your post about your beloved friend Pooh, I am sending you out a big hug, and I will be thinking about you. I agree with the other posts that said you are always there for others here sending out wonderful advice and words of encouragement, I know I am very thankful for all you give to myself and others. My sympathies go...
  24. bonnie blue
    I was told by my surgeon, he was really upfront that he didnt know much about it, and to find a good GI doctor, (still looking for that) they also sent me to a dietician who also gave me outdated info. I have learned more and given better advice from all the wonderful people here then anywhere else. Does anyone else kinda feel like most doctors dont know...
  25. bonnie blue
    I also had noticeable weight loss, 93 lbs in a year. I think it comes from just eating better, we were a family of fast food, and now that we eat at home, not only are we healthier, it saves on the money too!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.