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Sunshine79

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Everything posted by Sunshine79

  1. Sunshine79
    I haven't been able to taper the drops because the inflammation comes back. I think as long as I do it slow I might be ok. I am on one drop everyday now. I was on one an hour The PredForte drops make my ocular pressure high which makes me worried about losing my vision too. At least we are aware now though so we can take extra precautions. Too bad...
  2. Sunshine79
  3. Sunshine79
    No, I don't think so. I have been tested for a lot of things but I don't think sjogrens was something they tested for. Would the steroid drop help the sjogren's? My eye doctor is thinking it may be autoimmune so I wonder why he hasn
  4. Sunshine79
    You should see an ophthalmologist. You're eye pain and redness could be Uveitis. I know. I have it. My eyes hurt, they are red, light hurts them, they water, it causes me to have headaches. I have had it for over 2 months. Can't get rid of it. I have been on a steroid drop that long and another drop for high ocular pressure. It is pretty serious and doesn...
  5. Sunshine79
    Could you tell me what else I should be tested for? I have no idea! My doc is a PA and he is trying to learn as much as he can about this disease WHILE treating me...anything is appreciated! Thanks!
  6. Sunshine79
    I tried Lyrica. It made me feel absolutely drunk...even on a low dose so I didn't take take it long enough to see if it would work. I was scared to drive back and forth to work when I took it. I had blury vision and everything. I seem to be tired and weak when I take the Neurontin but then again I am only taking 600 mg a day so it could get worse if I have...
  7. Sunshine79
    Thanks for your reply! I haven't. What should I be tested for?
  8. Sunshine79
    I have some burning, tingling, PAINFUL problems with my feet, legs, hips and sometimes arms and hands - especially at night! It gets really bad. I am getting a B 12 shot every two weeks (have been for a couple of months now) and taking sublingual B 12 along with Integra Plus (been taking this for at least 3-4 months now) everyday. The doctor recently...
  9. Sunshine79
    They checked everything OB-wise from the outside in. They did everything they could do outside then they went in and looked at everything inside. They only made one small incision but it took forever to feel better from that. I looked like I was 8 months pregnant after surgery and the bloating didn't go away for a long time. They came up with nothing except...
  10. Sunshine79
    I just don't understand it! The doctor has me on Integra Plus which has LOTS of B Vitamins as well as the Iron. NOW yesterday he put me on Lyrica for peripheral neuropathy. I think if he would just give me the B 12 injections along with the iron infusions that I would be 10 times better but he says let's give this a couple more weeks...I am so tired of waiting...
  11. Sunshine79
    So sorry to hear that everyone has had such a hard time with this! I hope you all get feeling better real soon! It's a little discouraging as well. The Integra Plus probably won't do the trick then huh? I had to call the doc again this morning so I'll ask him about the infusions when he calls me back. I have been having a lot of muscle weakness and...
  12. Sunshine79
    I have the same pains. These pains are actually responsible for my Celiac diagnosis. I've had a CT, a transvaginal ultra sound, exploratory surgery (not doing that again), and upper endoscoy and a colonoscopy all within one month. They found nothing but the Celiac disease. That's it. Since going gluten free (a month or so ago) I still have these pains and...
  13. Sunshine79
    Thanks to both of you for replying! I am so sorry you have had such a hard time. The doctor said that although I was within "range" that ALL of my vitamins and minerals were low! It's a big struggle dealing with the fatigue and muscle aches and headaches. I am still working 40+ hours a week and I have a husband and three boys to take care of too (just...
  14. Sunshine79
    Has anyone taken Integra Plus and if so did it work to bring up your iron and B levels?
  15. Sunshine79
    I went to my regular family doctor. He really isn't a doctor at all and certaintly not a GI doctor (my GI is a joke); he is a PA! He is awesome! He took his time and explained things to me. He told me I was definitely not getting enough carbs and that was helping to make me feel worse! He told me to eat potatoes. He also had me get more labs drawn to check...
  16. Sunshine79
    I went to my regular family doctor. He really isn't a doctor at all and certaintly not a GI doctor; he is a PA! He is awesome! He took his time and explained things to me. He told me I was definitely not getting enough carbs and that was helping to make me feel worse! He told me to eat potatoes. He also had me get more labs drawn to check my iron, B12 and...
  17. Sunshine79
    Thank you rosetapper23! I will definitely try the oils; just made me a list! I am calling my pediatrician today to ask about getting my boys tested. I pray that none of them have it! Thanks for the advice! I go to my family doctor tomorrow and I really hope I don
  18. Sunshine79
    Unfortunately my GI doctor is a joke. I do have an appointment next week to see my family doctor. I will ask him about all of those test! I am writing them down now! I am so disappointed in the healthcare system right now and embarrassed to be a part of it... Thanks so much for all of your help!
  19. Sunshine79
    That is exactely right; I would do it for them in a second without hesitation!! I think I put myself at the bottom of the list way to often! Thanks so much again for your help and support!
  20. Sunshine79
    That sounds awesome! That menu made my mouth water, haha! I eat everything that is not processed and I haven't bought anything that's actually gluten free except some ranch dressing and peanut butter. I eat the natural gluten free items, like fruit and meat and vegies (it get's pretty routine and bland after a while)! What I would give to have a bowl of that...
  21. Sunshine79
    Do those test not include all of that? I thought all of that would show up on the CMP and CBC? I am so confused!
  22. Sunshine79
    I'm sorry I forgot to add...he did: CBC with differential CMP TSH Lipase
  23. Sunshine79
    Thanks,I think I will talk to my husband about this but my kids are very picky eaters and isn't it pretty expensive that way?
  24. Sunshine79
    I do have the lab reports! I seen them before the doctor did and when I asked the nurse why the doctor said my labs were alright when my glucose was clearly low she said she didn't know and that if I didn't get to feeling any better to call them back....and I am thinking, call you back for what?
  25. Sunshine79
    Thanks for all of the VERY helpful advice! I think I am going to calm down and try to be patient with this
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