Thea-Bug

Yes--just curious if TTG returning to normal was ONLY a sign of celiac, because even though I realize that gluten sensitivity and celiac really aren't different in terms of the treatment, I wonder with how to approach getting my kids tested. Does anyone know if levels returning to normal always means celiac (as opposed to gluten sensitivity)? I've heard...

I lost a ton of weight unintentionally before my diagnosis. I am continuing to lose weight unintentionally now that I'm eating gluten free. With the gluten free weight loss, I notice that I'm not particularly hungry. My theory is that my body is getting more than it's used to getting, nutrient-absorption-wise, so it doesn't need me to eat as much.

Try Floradix for the iron. It's expensive but it works. It's liquid iron and you can buy it at Whole Foods. I noticed that the pills made me sick, the iron in vitamins wasn't enough for me (probably b/c it wasn't absorbing), and the food wasn't getting enough in me, either. As for the stools, I wouldn't worry. Or, I say that because mine are not at all...

That's the weird thing, AzizaRivers - I don't think I'm all that sensitive to cross contamination or trace amounts. But now that you mention it, I'll definitely start paying more attention in the future. I do wonder if it's gluten related for sure because at the height of my gluten related problems, it was really, really bad - picture a mustard colored...

Amanda, I forgot to suggest liquid iron called Floradix. You can buy it at Whole Foods and probably at other places. It will help get your iron up when your body is not absorbing the capsules. This will help with your energy levels. As for the testing, I'd say to go for it for the peace of mind. I have already had to field a bunch of questions from...

Totally random question, I know.... but has anyone here had a yellow tongue? I wonder if mine is related to celiac. Mine had gotten really bad before I went off gluten. It now comes very occasionally. I know that the tongue can be reflective of what's going on in your body (and often specifically with digestion), so I wondered whether anyone else had experienced...

Thanks guys! I also forgot to ask earlier: could my situation just be gluten sensitivity (I realize the distinction doesn't really matter but I just want to know)? I've read conflicting things on this board - some say TTG IGA only shows up with celiac (if it's showing up related to gluten issues - that is, excluding the other reasons a TTG IGA test could...

Hmm, lots to think about, not sure how helpful my response will be. I'm unfamiliar with the celiac disease tests you had that were positive....maybe others on here will know more about that? Any chance he can run some other celiac disease related blood tests? Some of your symptoms definitely sound celiac disease related.....the nerve stuff, bowels, fatigue...

Interestingly, I lost weight both before going gluten-free and now that I'm gluten-free. Huge amounts of weight while eating gluten before getting diagnosed and then now that I'm not eating gluten. Weird. I keep half expecting to gain it all back someday, so I keep all kinds of sizes in my closet

Emilee, I second the suggestion above to get copies of your results from all of your doctors. It's so useful to be able to look back years later to piece together a puzzle (if necessary), AND you never know what a doctor may not be telling you, or may have missed. Unfortunately, it has happened to me too many times, so now I always get copies and I...

Hi all, Long time lurker, first post here I'm confused about my results & haven't heard back from my GI, who's usually slow about getting back - I just have a copy of the lab results in the mail. My TTG IGA was very high several months ago. I then went gluten-free. I didn't do the biopsy because I was undergoing another surgery at the time and...