ArPlasma

I am really sorry to hear that about your daughter. Our son was diagnosed in January as well and we are still cleaning up everything around us. He got contaminated two weeks ago at school by supposedly gluten-free cookies but baked on a cookie sheet sprayed with canola oil spray which contained glutened. From the lentils to stoneware, gluten keeps creeping...

Hang in there! My son's blood results were comparable to your daughter and the doctor said the same thing to us after the biopsy "everything looked normal" but when the results came back I was told that there was a lot of villii damage. It was pretty stressful for me to hear too but we went gluten free right after the biopsy and got confirmation a couple...

This makes me wonder about my other son again. He is on a gluten free diet right now because our home is gluten free and he is not in school yet. His teeth have started some discoloration( like oDS1 who is diagnosed Celiac), he's had chronic urticaria for 8 months now and tested right below the positive cutoff for Celiac. The doctor said that his teeth discoloration...

Ha! I had the same question. Thanks for the answer!

Nope don't mind, everything was positive: tTG- IgG:46, tTG-IgA >100, EMA 1:160

I had some similar thoughts. I don't want him to get sick but something is obviously not right already and he is not getting( enough?) outside signs of it. I think he might come along. We went to a work seminar last week, he had some gluten filled food and spent 2 days with severe stomach cramps and in the bathroom. I had to have him excuse from talks. he...

Thanks GFinDC! Yikes! I have given my DH many anecdotical accounts as well as some studies. I passed him the links above, including the review paper I found yesterday, it is up to him at this point. His biopsy returned negative yesterday, again I think by now he knows the stats, talked to his GI( who thinks if not Celiac 'yet' it is highly probable to be...

Just wanted to say hang in there! We dealt with unexplained stomach pain and headaches for a while too. 3.5 years without gaining a pound is a bit scary. Has his pediatrician started anything( tests) about it? Did he go through Celiac blood panel yet? If not, as others have mentioned he needs to stay on gluten diet until after biopsy for all of it to be valid...

My son had a lot of GI issues as a baby( projectile vomit, diarrhea), plus skin rashes and was a very colicky baby. I wish I had pushed the issue a bit more. He was finally diagnosed this past month after almost missing it again( I had a hint in June last year and after being told it was highly unliely he ad Celiac, then given the wrong tests, then finally...

Something that might be of interest to others as well. A review of the different existing studies on complications of Celiac. Open Original Shared Link

I have told him all of this. Anyway, his biopsy came back negative today( don't get me started on that either) but he takes it as he is off the hook. I found a couple of papers that I passed on to him. It is his choice. Our house is gluten free though( i cleaned everything after our son's diagnosis). He did mention today that he is starting noticing that...

Yes scientific papers are the way to this heart. Give him a sample description, control group, test duration, standard deviations, etc. and he will be happy( yes, evenings are fun in our household). I'm trying to find a summary of this, or may just end writing one myself if necessary.J/K( sort of?) Thanks for the link, I have read it before but looking for...

Hello all, I was wondering whether you might have some ref papers about the consequences of untreated Celiac( with data, description of samples, etc.). My DH, awaiting for his biopsy results, is starting to doubt whether since he is 'asymptomatic'( according to him...), he should go on a strict gluten-free diet if he is diagnosed. His GI said, he would...

Eers03 if you ever find the ref for this it would be great. I am looking for numbers/ studies for asymptomatic diagnosed Celiac who go untreated. My DH just went through his biopsy and under the guide of some family members ( who have IBS and all sort of crazy GI issues btw but 'don't think they have anything') is backtracking on the gluten-free diet. Our...

Hi Theresa, My DS had his endoscopy last month and got a confirmed diagnostic almost 2 weeks ago now. It went very quickly. The procedure itself( not counting, anesthesia, waking up period) lasted 20 min and he was not in pain at all afterwards. To us it was worth it because now everyone is enforcing it at school in particular.