Jump to content

Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Advanced Members
  • Content Count

  • Joined

  • Last visited

About GeorgeW

  • Rank
    Top Contributor

Profile Information

  • Gender

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. This article is fascinating but I wish it would have included the actual fasting schedule and what exactly is meant by "fasting". Is this water only? Liquids only? What is the 2 to 4 day cycle over 6 months? Two days fasting, 4 days regular for 6 months? That seems extreme.
  2. I had to re-read my whole post, it seems so long ago lol. Well, the steroid stopped the diarrhea and for that I'm grateful. I still have the pain/lump on my left side although it only flares up occasionally. In the meantime, I've also developed a lump on the right side of my back over my ribs which has been more painful than the left side. I told my primary Dr about the new lump which is larger, and he sent me to a surgeon who said that both lumps are fatty tumors. He claims that they hurt because they are on the same dermatome level as the nerve endings. I don't know if I believe him but
  3. Thank you all. I'll cross that bridge when I come to it. I had an aortic valve replaced in 2010 so I am considered a cardiac patient also. I am currently on a low sodium, low fat, gluten free diet. There's not a whole lot more to give up. At least that's how I feel. George
  4. Hi all, Well I got a phone call from my gastro yesterday and he said that microscopic biopsy does indeed show that it is microscopic colitis, otherwise known as lymphocitic colitis. He did start me on budesonide. He said 30 days on the steroid and then a weaning off phase and I should be good as new. Hopefully that is the case. Dee, My pain was always left sided only and my doc said that I had inflammation in the sigmoid colon which is on the left side. The fact that you have pain on both sides might indicate something else. George
  5. Thank you for asking! ? So my samples all came back negative. I saw the new gastroenterologist Monday and he was also surprised that the other one didn't run more tests either. Just from my description of what happened he had an idea that it was probably microscopic colitis but he needed a tissue sample so he scheduled a colonoscopy for Friday (2 days ago). I had the colonoscopy and he said that there was inflammation in the sigmoid colon which is probably causing the left side pain. So I have to wait until the tissue sample is analyzed but in the meantime he wants me to take 3 doses of pepto
  6. Thank you for this information. I will certainly look into it. I went back to my primary Dr and explained the situation. He was unaware of the diarrhea (29 days now) and was appalled that the gastro didn't do any further testing. He also thought it was time for a 2nd opinion from a different gastro. I was all for it. So, my primary had me do the stool sample testing over again checking for everything, not just C-dif. I was given the "kit", which the gastro had never done, with the 4 tubes, 3 partly filled with some liquid and 1 empty. Also the "hat". I was worried that I might nee
  7. I'm going to contact my primary Dr and see what his take is on this. I know I can't wait another 4 weeks to go to my gastroenterologist. Today marks day 23 of diarrhea. Since switching back to Imodium it has gotten worse. I think that the other 2 medications, even though I couldn't tolerate them and they didn't stop the diarrhea, at least slowed it down a little. If my primary has no clue, then I am definitely contacting U of C. The only thing stopping me is that they are out of network for my insurance plan so it would be more costly.
  8. Cycling Lady, LMAO at IBeStumped! So true. Yes, he is trying the band aid approach it seems. That's probably the most frustrating thing of all. So yesterday I get a call back from his office and they say to stop taking the Viberzi and switch back to Imodium! I reminded them that Imodium didn't work, I had already used it 8 days with no changes. His assistant informed me that that is all he can recommend at this time until he sees me at my next appointment which is 5/24! I live near Chicago and I am about to make an appointment to go to the University of Chicago hospital which i
  9. Hi everyone, Just an update to my situation. I had thought that I might be getting better since I started adding gluten-free grain back into my diet but I was wrong. It seems that the Methscopalamine Bromide just delayed the effects, didn't stop them. I had to stop taking it because one of the side effects is to stop sweating, which I did. There were times when I felt hot and almost couldn't catch my breath. Anyway, my doc put me on Viberzi instead. I took 3 doses, 1 Tuesday evening and then 1 Wednesday morning and then again Wednesday evening. Each time I took 1, it seemed that ab
  10. First of all. Thanks to everyone who has replied to my post. You have given me lots to think about that I would not have considered otherwise. Knitty Kitty I think you may be on to something since I had a sandwich 2 days ago and yesterday (Aldi gluten-free bread of course) and yesterday I only had 1 small episode in the morning and nothing since. This morning I had Bob's Red Mill gluten-free oatmeal so we'll see what happens. Plumbago, I have no pain in the ribs, the pain is in the space between my bottom rib and the iliac crest of my pelvis. If my x-ray vision were working,
  11. The only change in the diet was an elimination of all grains. Everything else was food I had already been eating. Chicken, fish, lean beef or pork, fresh fruits and vegetables.
  12. I guess the point of my original post is being missed. I'm saying that I know that I haven't ingested any gluten in the past 6 weeks because I was doing the No Grain No Pain 30 day diet which is totally grain free and then I switched to the DASH diet which is also grain free for the first 2 weeks and yet I've developed this diarrhea which so far has lasted over 2 weeks. When I have been glutened in the past, and it wasn't often because I never cheat, symptoms only lasted a day. This makes me wonder if the diarrhea is due to celiac disease at all or maybe something else? I have also had the pai
  13. Even if my pets and wife were free of gluten, most everyone else in the world is not. I come in to contact with numerous people every day. I'm a therapist in a nursing home. If all it takes is to hug someone not gluten-free or pet a dog that eats regular dog food to cause a reaction, I might as well stay home.
  14. Thank you ladies. I called his office to let him know that the medication isn't working but the side effects are kicking in, dry mouth, headache, cessation of perspiration and dry eyes. Now I have to wait for him to call back at the end of the day. I had a colonoscopy last year in January but haven't had an endoscopy since I was first diagnosed 9 years ago. He seems to think that I have become more sensitive to gluten and to switch my pet food to gluten-free, have my wife buy gluten-free makeup and make sure that all my toiletries are gluten-free. That would pretty much make me
  15. Yeah, he said endoscopy in 6 weeks if nothing changes. He doesn't do camera pills, insurance doesn't cover.
  • Create New...