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Amy Leger

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Blog Entries posted by Amy Leger

  1. Amy Leger
    We’ve all heard of Oprah’s Big Give show from a few years ago. I am suggesting during this Celiac Disease Awareness Month to do a “Gluten Free Give Back”, as we take time to give back to this disease that has changed our lives so significantly.
    During this month I plan to do occasional postings on how we can give back to the gluten free community. This post is looking at food banks.
    We all are likely VERY possessive of our gluten free food– it’s so expensive ...
  2. Amy Leger
    Well whether we like it or not, the holidays really are upon us.  Many of us are already thinking about Thanksgiving dinner — some may be contently planning knowing they’ll be cooking their own gluten-free dinner, while others may be “white knuckling” it until Thanksgiving, worried they’ll get glutened by a well-meaning friend, family member or co-worker.  I, myself do not have celiac disease, although my daughter and brother do, and my dad eats gluten -free, and when ...
  3. Amy Leger
    For years I’ve only purchased big brand names of ibuprofen and cough/cold medicine for my gluten-free daughter, because I couldn’t guarantee the generic, store brand version sitting right next to the big name brand (and about a third less in cost) was gluten-free. Now it appears that’s about to change — in a bold way.
    In a Open Original Shared Link Monday, the Open Original Shared Link company says it will begin labeling gluten-free products appropriately beginning in Janu...
  4. Amy Leger
    Yes, it would have been more appropriate to celebrate Mother’s Day with this post, but ironically (or is it coincidentally) the job of being a mom has really prevented me from preparing this post before now.

    On this Mother’s Day, I found myself thinking back to all those times during Emma’s illness, subsequent celiac diagnosis and eventual permanent lifestyle change where the Mom really came out in me, both quietly and ferociously.

    Here’s my list starting with be...
  5. Amy Leger
    This fall you heard about my family's adventures with hosting an exchange student with celiac disease. Ida is now half way through her stay here and I believe she’s having a great time. She’s had some adjustments to make with her diet here. For example: we still haven’t found a regular bun recipe that has met my expectations. Until she came here, she was used to good gluten-free hamburger buns in Norway. So for now she’s eating hamburgers without buns.

    As for Ida...
  6. Amy Leger
    I was doing some research tonight when I stumbled upon what I consider a most disturbing celiac-related confession on a website that appears to highlight anonymous revelations. The title was I’m Dying and I’m 19…
    The skeptical news person in me questions how realistic the preceding “confession” is, but whether it’s real or not, I believe the idea of non-adherence to the gluten-free diet is a real issue and deserves some space on this blog. So allow me to use it as a lau...
  7. Amy Leger
    It’s hard to imagine. In six years my celiac daughter, Emma, will go to college — living a gluten free life away from her sheltered little gluten free cocoon we’ve put together for her.  Yes, someday I will need to stop being the go-to gluten-free food encyclopedia and trust that she can keep herself healthy.
    Six years may seem like forever away, but before I know it, it will be here.  And what will we have taught her?
    Top 10 Tips to Empower a Gluten Free Child
  8. Amy Leger
    Learning which ingredients are gluten-free and which are not, takes some time and patience. Within the first few months you learn a lot of what you need to know to live gluten-free. But there are a few lingering ingredients that it took me a while to digest, remember and even accept they are gluten-free.
    Here is a quick list of items that really are gluten-free even though there might be something out there that makes you think they aren’t.
    Vinegar
    Two t...
  9. Amy Leger
    Ida our 17, turned 18-year-old, exchange student from Norway will be leaving us in 9 days. As I look back the year has gone by so fast. It has been a year of growing in the celiac lifestyle - with a teenager who doesn’t need me hovering over her all the time. Although not to say she couldn’t have used it once in a while.
    I introduced you to Ida in one of my first posts back in November. I explained how we were blessed with her presence for the school year and about som...
  10. Amy Leger
    Even just a few years ago, gluten-free shoppers were going to grocery stores with papers in hand, making sure they were reading ingredient lists correctly. In fact, in that first year after my daughter’s diagnosis, my average time at the grocery store doubled–and so did my bill.
    But now, technology is making it a lot easier for us to navigate the aisles with more confidence and a lot less paper. I recently received a notification online that talked about an application for...
  11. Amy Leger
    So I’m new to all this funky technology. LinkedIn, Technorati, Digg, Blogs, Carnivals, and I’m just really settling to Facebook and thesavvyceliac.com of course. But right now “Twittering” (or is it sending “Tweets”) are all the rage. It’s like consistently updating your status with people on Facebook.
    But can it help us get gluten-free information? Well, first off, it can’t if we cannot find people to follow, which is one thing I struggle with on Twitter. You can’t sea...
  12. Amy Leger
    You may not be enjoying the gluten-free food to it’s fullest at Target Field. The brand new home for the Minnesota Twins is complete with a gluten-free concession menu, but I’ve tracked down additional, more kid-friendly items that are gluten-free and — so far — aren’t on the list.
    This list posted on my website has been about 5 months in the making. I actually started drafting this post with a different title and all back before the first pitch of the season, b...
  13. Amy Leger
    It has been a busy decade for celiac disease. I even think non-celiacs would agree we heard more about celiac disease and the gluten-free diet in the last 10 years than ever before! Including me. We had it in our family for 40 years before I had any idea this disease even existed – with my daughter Emma’s diagnosis in 2000.
    With the end of the decade now just days away, I got to wondering what were some of the more significant moments that had an impact on celiac disease. Wh...
  14. Amy Leger
    So you’ve likely seen the lists flying around Facebook: 25 Random Things about Me. Well I haven’t done it yet. But I thought I would incorporate this “Random” List into my blog. It’s a quick list– some things you may have never heard before.
    25 Random Things about Celiac Disease

    1. Affects 1 in 133 Americans** (approximately 3 million)- 97% are undiagnosed*
    2. It takes an average of 4 years for a person with symptoms to get a celiac diagnosis*
    3. Glu...
  15. Amy Leger
    My husband and I had been in “survival mode” for about 3 months; back in October of 2000, our then-18-month-old daughter was getting strong and healthy on the gluten-free diet. But I needed more for my sanity. I couldn’t keep feeding my daughter only hamburger, eggs and French toast until she was 18. I needed to find people battling the same issues as me. I tracked down the only celiac support group in my area, but it catered to adults. But that is where I met the women...
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