MommaRN

Hi, I’ve posted in these forums once, in the main question area and got a lot of good advice. My 6 yr old son had very antibody positive blood work a few weeks ago after a rapid decline and “failure to thrive.” Other lab work showed malnutrition. He went gluten free for two weeks at the recommendation of our PCP and then we saw the pediatric GI specialist last ...

Thank you for your reply! That all makes complete sense. I guess I’m just scared and nervous right now. I know it will become our new norm and it won’t be that big of a deal, but right now it seems daunting. Yes we have many AI diseases in my family and I have Rheumatoid arthritis and Hashimoto’s thyroiditis myself. I was tested for celiac some years...

That’s what I’ve read everywhere. I understand he will have to go back on gluten for further testing. I just don’t want to do that until we see the ped GI dr and get instructions. We have no endoscopy scheduled yet. Just an intitial new patient appt. Our appt is in two weeks and I’ve been calling for cancellations. I don’t want to put him back on gluten ye...

Thank you so much! I don’t know how I could possibly keep him on a little gluten during the testing phase. When we started this process (before positive blood work), we tried gluten free for about a week and he felt so much better. He ended up eating two things with gluten, a muffin and a cookie, and was so sick he vomited every time something went i...

Hi everyone. Our whole lives were flipped upside down this month. My 6 yr old son had become progressively sicker and sicker with chronic diarrhea. After back and forth with dr visits and missing a LOT of school, we finally got his celiac panel back very very positive for celiacs. (I don’t have the exact numbers in front of me). He was so weak he couldn’t...