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Finally Feeling Better After.....


Jersey Shore wheat no more

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I am sitting here trying to decide how to start my first blog.... it is a little daunting.... I am not big on words and things to that nature but I am hoping that maybe someone will read this and it might help them. Well here goes....To the begining....

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I will try to make this short and to the point. It started a litte over 4 years ago. I am a mother to two great kids(not kids anymore), a boy(who is 23 today..Happy birthday!!) and girl(who will be 18 and who this blog is about). Both kids very happy and pretty much healthy, just the normal kid illnesses, just happy go lucky kids.

 

When I first started seeing my daughter not feeling well was when she was 11 1/2, she got bronchitis then asthma(she never had either of them before) and then she got hives.I took her to a pulmonologist who told me that she had sports induced asthma, ok not to big of a deal since grew up with family that has asthma.

 

Then she started with stomach pains, took her to the doctor ...constapation...then with headaches....sinusitis...then more pain in her stomach....Gerd and hital hernia...she was tried all the time and not able to sleep for the pain is so very bad....epstein barr...she would cry in her sleep and moan all the time. I would hear her wimper in her sleep and moan and she would want me to sleep with her and rub her stomach. I remember all the nights upon nights that I would be so very tired( I at the time worked)rubbing her stomach thinking what am I missing?!

 

She was sleeping all the time, missing school and being able to hang with friends or go anywhere. So her friends started droppping out of sight and soon she did not hear from anyone. The specialists (all that we went to) told us that the pain was in her head so we went to see someone. They said that she was fine.

 

Pain still is not getting better een with the medication that she was on. Then her hair starts falling out, she is breaking out in hives and her hands are a dusty gray color. She is getting paler and paler and no one was doing anything. So I took her to an alternative health doctor, who found out that she has an allergy to gluten. She took her off gluten and one year later we are on the mend. She is looking so much better and is starting to drive and go out and just went to her Junior Prom with her boyfriend.We also found out that she has neurocardiogenic syncope,which means that she faints. Got her on medication for that and WOW what a difference.

 

One thing that I want to say is do not give up! We know our bodies and our kids and if we feel that something is not right, keep looking and questioning until you found someone who will listen.

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Tilda

Posted

Thanks for writing about your daughter. My daughter is 16. She had mono two years ago and that's when her troubles began. Daily stomach pain and headaches. After many visits to her doctor, gastro and neuro doctors, she was finally diagnosed with celiac disease. She went gluten free on October 1 and proceeded to get worse. We saw a specialist in Baltimore and were told to hang in there that it could take months for her to feel better. She's been miserable. I keep looking for encouragement on this website and finally joined today. I'm afraid to say this for fear of jinxing it but yesterday was the first day my daughter has not complained about her stomach. She woke up today and didn't say anything either. She had a smile on her face -- which I rarely see these days. Oh how I hope this is the beginning of her trip back to feeling good.

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