Mr J's Blog

>From: "mikej253" <mikej253@...>>Reply-To: gastroparesis@yahoogroups.com>To: gastroparesis@yahoogroups.com>Subject: Re: Gastroparesis: BeeDee-What the Professor said...>Date: Wed, 20 Jul 2005 03:14:39 -0000>>hope you don't mind me commenting but i can empathise with what some of>your brother>is going thru. From reading previous posts i always considered him in a>more physically>complex and much worse state than me so it wasn't fair to comment, but what>you wrote>below I can sort of relate too.>>as an intro, like your brother i still eat food, some of the ppl in this>group are on feeding>tubes. I dont have MS and the other things, but i'm in far from great>shape, don't have>scales but last time i got weighed at the Doc's i came in at 110 lbs, i'm>5' 7 1/2" tall :-(>reglan plus low weight messed my hormones up, i've lost a couple of>hormones which>stimulate testosterone. got bigger now with hormone patches, but don't know>my wt. had>to stop reglan - i was well on my way to losing my job as puter programmer>- muddled>my brain and couldn't think logically. I was also wondering why the>earthquake activity had>got so frequent in California - i've expereienced the shuddering of a>couple of non->threatening quakes since living in cali (moved here in 2001. i now realise>that reglan was>giving me heart tremors or some weird shuddering feeling - since stopping>no more>quakes!>>anyway my way of dealing with the bloating and nausea has been to eat below>that>threshold. need electronic weighing scales to calculate all food to keep me>below the>nausea/bloating threshold. but its unpredictable and gets harder and harder>so i hate that>feeling and sometimes deal with it by undereating - i can eat late in the>evening if i sleep>on my back (got a hiatus hernia). shoulder injury means i can't sleep on rt>side anyway ->shoulder is fine - just never the same after surgery for discloation. so>evening meal used>to be my biggest - the opposite of what much advice says.>>i've had chronic constipation all my life, and i believe candida triggered>by job in australia>where i was programming in an office built from a converted house. was>sitting over a>flooded basement filled with mouldy carpets and paper - 2 other ppl had bad>symptoms>and when i threatened to make it a "workcare" issue they got it cleaned out>- man who>cleaned it out collapsed! anyway doc's haven't a clue how to treat>constipation (fiber>doesn't help me) don't know what candida is and have no idea what to do>with>gastroparesis - other than give me endoscopies, barium test, colonscopy ->basically been>sent home with an agreement i have problems but just get on with self>managing it.>>so got to help myself. Got herbs which cure constipation, take a c%$#$tail>of enzymes, ones>which work best just before meal, ones which work best with and take some>after ->depending on meal use different enzymes. also food combining - there is no>way i could>manage 3 bowls of cereal like your brother and not feel bad for 2 days ->combo of milk>and cereal is a known wind producer - soy milk is also known to be bad for>wind and also>kluey hom (thai language for regular bananas) my wife who lives most of yr>in Thai, said>why do i eat those things when they are bad for wind - Thai ppl know this.>they have kluey>Num Wah - tasty bananas which produce less wind - anyway i digress.>>this evening i ate 3 oz exactly of chicken weighed on electronic scales>(and then blended>to liquid with water) - will deliver 20grams of protein. had fresh tomato>juice - gives vit C>- thats all.>>i'm going to go skateboarding now - relaxing and helps motility (like>walking but for me>less boring) then just before bed i'm going to have some home made rice>muffins (nearly>all carbs). Got no wind at all from the chicken - all protein meal plus>neutral juice.>>my all carb supper will be more tasty - will get very little wind from>that.>>went surfing this morning before work (only time i can do it coz of reflux>- and energy>levels - supper fuels it).>>after surfing had brekky of just 2oz milk mixed with water - max milk that>won't bloat me,>plus half a donut ( fat and carbs mix - protein and carbs don't)>>got light headed at 4pm this arvo - needed 2 rice crackers to finish work ->admitedly a>physically easy desk job.>>2 days ago got deliberately stoned on a herb which helps my motility, makes>me a bit>sleepy for a day or 2 but doesn't confuse my brain like reglan.>>will be taking another c%$#$tail of enzymes this evening before supper. none>of this>prescribed by docs.>>regards,>>Mike>>PS i'm 44 yrs old>