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About Johna1

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  1. Thank you so much for all the great help, small update I seem to now be only have very soft stools one in 5 or 6 looking more to normal but still all are a bit soft but an improvement. I had a repeat Tissue Transglutaminase (IgA) this week and it’s down from 9.9 to 1.1. I was told on the NHS here in the UK a repeat endoscopy is not done... Left wondering should I get a private endoscopy done and also get other panels of bloods done to see if all the blood levels are reduced (on the NHS they are only doing the Tissue Transglutaminase (IgA) ) and at what stage in the process to do these if I should (I don’t mind paying for these if it’s a good idea? ). Thank you to all...
  2. Hi Ennis, Thank you for your reply and time really greatful... wow I really have a lot to learn. I really thought is was fonig good by having 5 or 6 pieces of food a day, when you knock out all these items I’m really left struggling on what to left to eat, everything seems to have a bad point in on way or another really left unsure on what to eat 😞
  3. Hi Fenrir, Thank you for your post and I will give it time, now looking deeper in things now :-). Trying to get nuts and seeds in the uk that are labelled gluten-free seems impossible and left unsure if washing them before eating them is enough. Seem like most companies in the uk don’t test on them or test at packaging.
  4. Hi GFinDC, Thank you for all the info really grateful and I will have a good read now :-). All the nuts and seeds I get never have any coatings on them but I will dig deeper into them and I might soak and rinse them in water and then roast them after if that might help.
  5. Hi GFinDC, Really grateful for your reply and wisdom I spent hours researching yesterday and other days and your post helps so much more and i will be testing the water with it from today; thank you :-). Are there any foods that might help settle things down over time? And can there be hidden gluten in unflavoured nuts and frozen fruit chopped up fresh friut in packets I use for smoothies? Thank you for all help received.
  6. Many thanks for your reply and help really grateful and so glad to have found this forum. Q1) I have cut out gluten of course :-), not eating any processed food, and not eating out. I have been eating a lot more vegetables like carrots, potatoes, sweet potatoes, swede, parsnips, kale, broccoli, greens, a lot of fruit like, bananas, apples, berries, pears, melons, eating a lot of chicken, a little fish, making my own stock and adding to the food, also using a few gluten free products a cereal, bread, coconut milk, and coconut yogurt, i am only using pepper and ginger to spice things up, and drinking a gluten free coconut kefir every day. I noticed after a week dairy did not agree with me so I have stopped dairy 2 months ago, not sure if the above is correct or a balanced diet? I was low on VIT D, IRON (FERRATIN), FOLIC ACID, so i am not taking gluten free supplements for all of these and VIT C and A bone supplement. Q2) I went to my doctor a few times last year as after swallowing food I would get a dull pain between my shoulder blades and it would feel like not all of my food would go down and a small bit would stay at the top of my throat, as there is a history of oesophagus cancer in my family I thought the worse and kept going back to the doctors pushing the issue. The only other sign I would say I had was if i would have a baguette or a strong beer every now and then maybe once every few months I felt sick and would have to lie down for an hour. My doctor sent me to have an endoscopy done and they took biopsies from my oesophagus, stomach, and the second part of my duodenum the report said "blunting of the villous architecture up to total villous atrophy" "chronic inflammatory cells in the lamina propria and 44 lymphocytes per 100" still don't full understand what it all means and if it normal with celiac, after the endoscopy I was then sent to have my blood test done by the doctor who did the endoscopy (not by my doctor).
  7. Hi All, Thank you for taking the time to read my post. I have been diagnosed with coeliac disease via blood test and an endoscopy and biopsies (flattened to total villous atrophy). I have been on a strict gluten free diet for just over two months. I never had any real symptoms before being diagnosed and don't feel any difference really being on a gluten free diet. But my stools are now always soft, no shape at all (like a cowpat) sorry for the description. Is this normal and its does not seem to be to me and worried my celiac is not improving.
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