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Cbkilpatrick

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  1. Cbkilpatrick
    Thank you for the info PB! This is all very interesting and makes me really want to find the answers. I have been culling over the links you sent and have found some very thought provoking info. I am determined to get to the bottom of this for the health of my son and for my own curiosity. I appreciate everyone taking the time to respond.
  2. icon Cbkilpatrick reacted to a post in a topic: Wrongly diagnosed with Celiac Disease?
  3. Cbkilpatrick
    Very interesting indeed. It was a cheek swab. I am inclined to ask for the genetic blood test when we go in for our antibody test after eating gluten for 4-6 weeks.
  4. icon Cbkilpatrick reacted to a post in a topic: Wrongly diagnosed with Celiac Disease?
  5. icon Scott Adams reacted to a post in a topic: Wrongly diagnosed with Celiac Disease?
  6. Cbkilpatrick
    Thanks for your post. When my husband and I got the negative 23andMe results I started looking further into the genetic makeup of celiac disease and discovered 23andMe only tests for the two most common celiac genes, which is why we decided to find a total gluten ID test that looked at 12 possible celiac genes for my son. When his came back negative for all...
  7. Cbkilpatrick
    Thank you for this response and this is exactly what his gastro suspects. I have attached the genetic test results that show all the genes they tested for. I was under the impression ALL possible celiac genes were tested, and while most were, it appears there may be some super rare haplotypes that were not. Our gastro said he had never seen this before and...
  8. Cbkilpatrick
    I will ask for those today when I talk to the gastro. I looked for them previously and couldn't find them. All I remember, is the gastro saying his numbers were well over 100 and some of the highest he had seen.
  9. Cbkilpatrick
    Thanks for the response! We started to believe he was a silent celiac too. Our gastro did tell us to expect the longer he was guten free, the greater the reaction to gluten would become over time. It is the sheer lack of genetics that has us all so baffled. I had not heard about other antibody triggers, and that is one thing I am most interested in at the...
  10. Cbkilpatrick started following Wrongly diagnosed with Celiac Disease?
  11. Cbkilpatrick
    Hi, My 10 year old son was diagnosed with Celiac Disease when he was 7 years old due to Ttg Iga numbers well over 100. His gastro said there was no need for a biopsy at the time since his numbers indisputably pointed to a Celiac diagnosis. However, he has never exhibited celiac symptoms except for constipation. We were trying to cure a bedwetting issue...
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