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About Mayster

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  1. OMG! I thought I was the only one that thinks about "Doing It". I was staring at a box of cookies last night that was my husband's thinking- to heck with it, I'm just going to eat some. But I closed the pantry door and ate an apple instead. Not nearly as good, but I'm actually scared to eat gluten because I don't know what will happen. I have thought about it though.
  2. Yes I can have all the things you mentioned!!! Yay! I'm still a little lactose intolerant as my villi were destroyed, but I seem to do ok with little bits of dairy. That's an interesting point on the poultry! I hadn't thought of that!
  3. I have Celiacs but to make things a little more complicated, I'm allergic to Chicken, Eggs and yes, Green Beans. Random I know, but that's what the allergist tells me. Now, I didn't ask if being allergic to Chicken means allergic to Turkey... My Mother-In-Law just called me and said- So about Thanksgiving... What CAN you eat? It made me feel like a freak because all of a sudden a family get together was made to be all about what I can or can't eat! What do you guys suggest that's yummy and free of the things I'm allergic to?
  4. I also have it. In addition to Celiac, H Pylori and Gastritis. From what I've been told the Eosinophilic Esophagitis is an inflammation caused by allergies. Mine was from eating foods I was allergic to for an extended period of time without knowing it. It was confirmed by my endoscope. And my allergist told me what those foods were so I could avoid them. My treatment may differ from you since I have other issues but I'm taking Prevacid and a nasty med called the Helidac Pack that I need to take 4 times a day to heal everything. Let me know if you have other questions.
  5. Tylenol is gluten-free. My doctor told me it was ok to take it for pain. I'm pretty sure Motrin is too but don't quote me on that.
  6. Ok, I was told since I am newly diasgnosed and my villi are flat, I have issuses with malabsorption. Well I asked the doctor, if that's the case with food, would the same apply to meds? So why are you giving me all these meds to take when I don't seem to feel the benefits? When I was in the hospital and they pushed them thru IV, I felt immediate relief. Once it went to oral, it was like they were giving me placebos or something. Any theories or similar experiences?
  7. I am on Cymbalta. It is also gluten free and a newer drug on the market.
  8. I have been gluten free a month and this past week I have gone from wicked insomnia to barely staying awake. I'm on a lot of meds too though. My stomach hurts constantly. The docs tell me until my gut heals, I will have discomfort eating. Sip and nibble is what they say. When it gets real bad they say go back to liquids for a couple of days. Bipsy showed no villi left so until they grow back I am told to expect discomfort when I eat. They have given me Bentyl for spasms and Phenergan for the queasy feeling, but all in all it's still unpleasant to eat.
  9. How long were you guys gluten free before feeling better? I've been reading that once folks have gone gluten free they've never felt better and I wonder how long after that was.
  10. How about Kabob places without their bread? I went to Moby Dick's Kabob place and told them I could not have the bread and they were very careful. My plate came out with just the rice and ground beef kabob. It seemed ok. Anyone have any experiences with this?
  11. Thank you all so much. It means a great deal to hear words of comfort from people that truly understand.!!
  12. I have just been diagnosed with Celiacs (October 12, 2006). I also have Eosinophilic Esophagitis, H Pylori, Gastritis and Gall Bladder disease until the gall bladder was removed on Oct. 6th. My doctors call me "The Perfect Storm". Not only do I have Celiacs, I'm allergic to Wheat, Barley and Rye. They tell me they've never seen a patient with all these things at the same time. I am MISERABLE. I just don't know how I'm going to cope with this. I was SO sick in the hospital, at one point in serious condition and I was scared I was going to die. How do you pick yourself up after something like this? Work and little things in life seem so trivial. My head is spinning and I can't seem to get my arms around what's happened to me. I hate food. I hate to eat, I'm told to keep a food journal of everything I eat so I find it's consuming my every waking moment. Any advice?
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