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About SillyBoo

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  1. I cannot eat eggs, dairy, or soy. I'm in the midst of an elimination diet right now, and sadly (but not unexpectedly) reacted to corn. Nightshades are also suspect, but I haven't put them to the test yet. However, after avoiding them completely for the past 3 weeks, the joint pain is gone. I will miss potatoes and tomatoes the most. :-( When I first got diagnosed 8 years ago, there were very few foods I could eat without a reaction. Over the years I have gradually added things back in as I healed. But apparently there are some things that seem to have a permanent place on my naughty list.
  2. While I totally agree with the other responses about needing to take your celiac diagnosis seriously, I would like to add another perspective on how to move forward: Dealing with Celiac requires a change of mindset. As awful as it seems right now, you are fortunate to have discovered the cause of your misery. And you have the incredible blessing of having an illness that can be managed by eating right - no surgery, chemo, or other nasty pharmaceuticals. When you can embrace these positives, the practical tasks of selecting and preparing healing foods becomes much easier. Keeping it simple as you start out will help with both food preparation and your healing. As you start to feel better, you can explore more food options. Over time, this truly will get easier. Hang in there. Good luck!
  3. I agree with Monklady - potlucks are from the devil! I used to try to take something and participate, but then there's the issue with cross-contamination. That meant that I had to be first in line (looking like a total piggy) or skip eating, even what I brought. Now I either bring my own food or eat before I go. I focus on the socializing, not the food. If others have issues with it, I'm happy to educate. Beyond that, it's their issue.
  4. Does anyone have any tricks for getting past the symptoms in less time?
  5. I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.
  6. It's important to communicate REALLY well with your hubby. It can be so hard for others to truly comprehend what's going on, and especially to grasp how long it takes to recover and become fully functional again. I was diagnosed 3 years ago. Initially my husband seemed very supportive and helpful, but after a while he perceived my lack of energy as lack of interest in the marriage. While celiac wasn't the only issue we had, it certainly put our marriage to the test, and he left me and our 2 children a year and a half after my diagnosis (and divorced me a year later). So, be SURE your husband understands what you're going through. Good luck!
  7. Yes, it is quite likely related to the celiac. I went through something very similar (at age 51!), as the worst of my symptoms were neuro. My memory was horrible, forgetting things like the day of the week, hesitating when I introduced myself to someone (because I had to remember my name), and all sorts of work-related and family-related details. After 2 years gluten-free, my memory is MUCH better. Interestingly, things that happened during the last year or so before my diagnosis are still fuzzy to me. But short-term and long-term memories are clearer than they have been in a very long time. Hang in there, it does get better over time! And be VERY strict about excluding all gluten.
  8. Going off of gluten does, indeed, lessen the "brain fog" and increase mental clarity. Before I was diagnosed 2 years ago, I had a job that required very high-level critical thinking skills, and got to a point where I really couldn't do my job very well. Over time, my mental skills have mostly recovered. On good days, I really am back on top of my game. There are still some foggy days, but the fog isn't nearly as thick as it used to be, and I can mostly function. Going off of gluten really was similar to having the sun shine brightly in a clear blue sky after years of cloudy, stormy weather.
  9. Yes, gluten makes me extremely sleepy. But I found that sleepiness also results from eating anything else to which I have developed a sensitivity, subsequent to the gluten, such as dairy, soy, beans, nightshades, and chocolate. You might want to check out what other foods may be causing the problem, in addition to continued sleuthing into possible sources of gluten (lotion, shampoo, toothpaste, and such).
  10. Tonsil Stones

    Oh, my gosh! I have had those since I was a kid, too, but never had a clue why. Of course, my doctor was equally clueless. I am now 52, and gluten-free for a year and a half. Mostly, they are gone. In fact, right now I have none at all (Yippee!!!). I found it helpful to also cut out all dairy.
  11. I have only seen a Family Practice doc, Anna Rooney, in Boulder about Celiac. I was going downhill for a long time, and finally went to see her when I was too ill to work. I hadn't even considered Celiac since my symptoms were not predominantly GI-related, but she did! She diagnosed me based on the blood tests and response to a gluten-free diet. I am extremely grateful to her for identifying the source of my misery so quickly. While Celiac may not be her area of expertise, she clearly understands the myriad of seemingly unrelated symptoms that can be a part of Celiac, and the wisdom of testing for Celiac even with not-so-typical symptoms. I hope that helps - sorry I don't know about the GIs in Boulder. You could try contacting the Boulder County Celiac group (http://www.bouldercountyceliacs.com) for more leads. Good luck!
  12. I found that my heartburn and reflux disappeared in the first month or so after going gluten-free. However, that was one of the last symptoms that appeared for me before I was diagnosed. The longer-standing problems seem to take longer to resolve, in my experience. Was this a primary symptom for you? If your reflux persists, you might consider checking out other possible food issues that could be contributing. Good luck!
  13. I guess I'm a bit more of a rebel than some. I would definitely take my entire meal in to the restaurant, and basically dare them to do something about it (in a very polite way, of course ). Last summer, I was attending a birthday party for my MIL at a restaurant, and they were quite fine with me bringing in my own food because they didn't want to be responsible for making me sick. I explained that I have an auto-immune illness, and would get very sick if the food isn't completely free of gluten (and a few other major foods that I cannot tolerate, likely as a result of the celiac). You have every right to eat with your friends without getting sick. It really is a win-win situation for all if you bring your own food.
  14. I know that there are quite a few gluten-free vegetarians, but please don't get discouraged if it's difficult at first. When starting a gluten-free diet, it is very helpful to keep it simple -- whole foods, cooked veggies, limiting yourself to very safe foods. Hopefully, you will be among those who can do that without meat, but if not, you can almost surely get there once you heal a bit. Please be patient with the healing process, and not too discouraged if you find you need a bit of animal protein to get you through the beginning. It does get easier. I was a vegetarian for a long time, but had added poultry and fish many years ago since I wasn't feeling great. When I got my celiac diagnosis 14+ months ago, I found that chicken was one of the best foods for my healing guts, and have eaten LOTS of it. Raw veggies didn't work, and most legumes didn't work for me, either. I also (like so many) can't tolerate dairy at this point. Although I actually ate a little red meat shortly after my diagnosis, I got past that need very quickly. I am hopeful that in time I can once again reduce my reliance on animal protein.
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