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ashlees-mom

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Latest Celiac Disease News & Research:

Everything posted by ashlees-mom

  1. ashlees-mom
    Hi, I am still pretty new to this, so when I took my daughter to the doctor the other evening thinking she had Strep, I was wondering how I make sure the prescription meds don't contain gluten. Will the pharacist know, or will I still have to talk to the manufacturer, and then do you call the doctor and ask for a new prescription if it does and start all...
  2. ashlees-mom
    mdixon, The first thing we noticed with our daughter was her slow growth, but since she is much younger, she has more time to catch up. We had first researced Growth Hormone Deficiency and in doing that I found that it is possible to hold off puberty in order to let the growth catch up before her bones fuse and it is too late. It definately has it's drawbacks...
  3. ashlees-mom
    Hi Mel, I had heard 6 weeks, and it took Ashlee about that long to get those "regular poopies" so that is what we went with. I also went gradually. I had heard that hard cheese and yogurt are easier to digest, so we started with just a little bit of those and over several weeks worked our way up. When I finally gave her plain milk I olny gave her a...
  4. ashlees-mom
    Hey, Ashlee calling out "Regular Poopies" is still music to my ears! She did have some formed, then more diarrhea and back and forth like that. Then I noticed she was having more and more formed stools. I thought it was strange how it changed back and forth like that. Good luck! It is so encouraging to see results!
  5. ashlees-mom
    Mel, I noticed you are giving her Orange juice. I had to cut oranges and orange juice from Ashlee's diet, they seemed to agrevate her stomach. Until the villi were repaired, I figured the acid is probably pretty hard on her little tummy. If she really needs fruit juice, I would try white grape juice or something. good luck on the trip! Michelle
  6. ashlees-mom
    I just remembered, we also upped the pediasure Ashlee was drinking so that we knew she was getting what she needed until the appetite returned. I'm sure it helped her, and it was a big relief to us since she was still not eating much! Michelle
  7. ashlees-mom
    Hi Mel, I know how frustrating it is to have to limit the diet so drastically and not see the improvement. I too had heard stories of improvement in days, and when I didn't see it, I was very frustrated! It took about 2 weeks to see any real improment in my 4-1/2 yr old, but then it was amazing! The diarrhea slowed down, though it continued fairly regularly...
  8. ashlees-mom
    Hi Jen, I agree that you are looking in the right direction here! I think you have gotten some great advice, I would like to add that you might have to educate your ped about celiacs. My daughter was having extremely slow growth, but everyone assured me it could't be celiac disease. Unfortunately, she had to get extremely sick (the diarrhea did come eventually...
  9. ashlees-mom
    I would probably put everyone but the 2 year old back on gluten until you can get tested. I think it would be easier now then in a couple weeks once you are getting used to being gluten-free, and the tests won't be accurate if you don't have enough gluten in your diet. Especially with the siblings, I would want to know! I don't know much about what tests...
  10. ashlees-mom
    RaeAnn, thanks for all the recipes. I tried cornbread and white bread yesterday. Ashlee really liked the cornbread, but we didn't try the white bread, I don't know if it rose at all. The recipe said it would be like thick cake batter, but mine was more like play-dough! Oh well, pick up and move on, the cornbread was easy! Can I get your recipe for your...
  11. ashlees-mom
    Paula, I didn't realize you had tested positive on your blood test. I am wondering if my husband or I have it, but we are still trying to pay for all Ashlee's testing and since we don't show signs it will have to wait a bit. I would think that your reaction is pretty clear though huh? We haven't gone gluten-free, but we are trying to find gluten-free dinner...
  12. ashlees-mom
    Good morning, RaeAnn, thanks for the advice. I checked on her toothpaste, but I do need to check on the shampoo and lotion. I read the ingrediants and didn't see anything, but that doesn't mean much does it! The good news is that she hasn't had any diarrhea since Friday. I know they say that cheese is easier on the lactose, but my mom is severely lactose...
  13. ashlees-mom
    RaeAnn, are you sure your daughter's constipation isn't related to potty training? Sometimes it can happen. We haven't had any with Ashlee, but who knows, I think it can be tied in with celiac disease. Evelyn's symptoms sound a lot like Ashlee was like, but hers started slower. First we noticed slow growth for a while. When she turned 3 we thought it...
  14. ashlees-mom
    Hi, I am pretty new to all this, but I saw gum base listed on the forbidden ingrediants, but I have seen Wrigley's gum on safe lists, and it has gum base as an ingrediant (as I would assume all gum would). Not that gum is a huge issue, I just don't understand, this would be so much easier if there were clear lines to gluten-free or not!! Can anyone explain...
  15. ashlees-mom
    Thanks for the imput. I decided to put it off a few weeks to see what is going on with the diarrhea, it seems to stop, and then starts back again. I really didn't want him to say to wait a few weeks and come back again! I am thinking up some more questions for him too, so we will get our money's worth out of the visit! I figure after waiting so long for...
  16. ashlees-mom
    I just wanted to add that we did not see much difference in our daughter at first, but after a few weeks her appetite came back with a vengence and she put on weight quickly. Untill then we mainly got calories and nutrition in using Pediasure. You didn't mention if you are using that (or Ensure or boost) but you might want to try. It seemed easy to digest...
  17. ashlees-mom
    Tracy, thanks for the encouraging post! Those of us who are still pretty new can use all the encouragement we can get! My daughter has been gluten-free for 6 weeks, and although she is gaining weight and is so much healthier (energy, skin, etc.) she is still having some diarrhea (though not near as much). I noticed you said it took 6 months for your son...
  18. ashlees-mom
    Paula, I'm glad to hear you have an answer, and I hope all goes well in testing your other daughter. I don't know how long you have been gluten-free, but I noticed my 4 yr old daughter's appetite surge after about 2 weeks. She probably gained 5 pounds in a week! That is completely unheard of for her! She would eat like the people in Survivor when they...
  19. ashlees-mom
    Hi, my daughter has a one month follow up check-up scheduled next week, and I know this sounds bad, but I am wondering just what they are looking for. We have insurance, but still are left with a big chunk, so I am trying to determine if it is really necessary, or if we can just do a 6 month check up (where I am assuming they will do blood-work to see if...
  20. ashlees-mom
    I agree that you should go with your instincts. With my daughter, we first noticed a growth problem. As a baby, she was always around or above the 50th%, by 2 she was at the 25th and by 4 she had about dropped off. She was gaining, but VERY slowly. It really irritates me when the Drs write that off, the charts are there for a reason, to detect if kids...
  21. ashlees-mom
    Robin, I just want to reassure you that you are not over-reacting! When we noticed my daughter wasn't following her growth curve everyone told us how kids grow differently, she was just petite, it was OK. Then when the constant diarrhea started it was just viral...for 4 weeks when no one else in the house had it!!! Well guess what, it was something, I...
  22. ashlees-mom
    Tiffany- Why thanks for the big welcome! We are so excited, only 69 days until we leave! We have family in Henderson, but I have found anyone who doesn't live in the immediate area doesn't know where that is! I would love to live in Henderson, but we just don't know where we will be able to find a rental. Anyway, Longview would be great to find a Dr in...
  23. ashlees-mom
    OK, I don't mean to derail this thread, but I had to jump in! We will be moving to Texas in a couple months, and my daughter was just diagnosed last month, so we will need a new GI specialist and a new regular ped. We will be in either Tyler or Longview (or in between!) so Dallas would be too far for a regular ped, but I figure we will either need to go...
  24. ashlees-mom
    I agree, I think I would do the gluten-free diet at this point. My 4-1/2 yr old has always been pretty picky, but we have found some things she loves. She is eating like a horse now, it is just shocking! We had to take her off dairy for right now, she was having too many GI problems, but we should be able to get her back on it later. That is hardest on...
  25. ashlees-mom
    Hi, maybe I can help some, but I am also curious to read the responses you get! My daughter went gluten-free on March 17th, and though we could see some improvement, her appetite was still low for the first couple weeks. Then, just last week her appetite started taking off! She eats more now then she ever has before. She will eat a bit, then 20 minutes...
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