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About itsmaryj

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    CA, USA
  1. Happy birthday and may God bless you today!

  2. So is some of this withdrawal the same as going from eating carbs to carb-free? It sounds quite similar--carbs are really addictive. Mary
  3. Does this mean that testing from Enterolab is out of pocket? I'm new here, so please excuse the lack of knowledge Mary
  4. My mother thought the cure for my canker sores was to put Alum on them. How horrible! I've had them often since I was quite young. Mary
  5. Interesting! I've always had dark circles under my eyes--my mother always thought I needed more sleep! Then they said they were "allergic shiners," yet I test negative on allergy tests. Maybe if I begin to eat gluten-free they will go away! Unfortunately, now there are plenty of wrinkles to take their place
  6. Not only would the testing be easy for me, being a nurse, but as a diabetic I poke myself 10-20 times/day. Doesn't phase me! But I don't trust the RAST testing (blood) either, because my son also had a definite problem with milk, and he tested neg. on the RAST test. In my recent studies of these problems, though, I wonder if my son's rash could have been a result of Celiac, also. From early childhood (age 3 on) he had a severe rash (eczema?) on his arms & legs, until he discontinued consuming milk at about age 14 (within 4 days of discontinuing, the rash disappeared). Now as an adult, he avoids most milk products (but not all), and doesn't have the rash. Our bodies are crazy things, huh? Mary
  7. Thank you! The information on the Enterolab site was very encouraging. Now I'll know what to go to next, if the antibody test comes back negative. I feel very fortunate to have found this forum! Mary
  8. Thank you for the welcome! And thank you for the information. I wasn't aware that one could be sensitive to gluten, yet test negative (aside from eating gluten-free for sometime before the tests). I bookmarked the Enterolab site, which sounds very interesting. The closest I've come to eating gluten-free is when I've gone VERY LOW CARB because of diabetes (takes the guesswork out of bolusing), which of course means I've cut out bread, noodles, etc. Although probably not completely gluten-free, I do feel much better when I'm eating that way--not so much bloating, etc. What causes me a problem with eating so few carbs is that it can't last long for me because it is so easy on insulin to go hypoglycemic, which of course requires me to eat carbs. When I had the bowel obstruction, a follow-up colonoscopy was done and concluded that Crohn's disease should be ruled out. I've never had any more testing concerning Crohn's. But if my tests for celiac comes back negative, maybe I'll look into Crohn's, as well as go on a gluten-free diet myself. Unfortunately, I know myself well enough to know that eventually I will give in to pizza or something else and won't take the diet restrictions seriously. On the other hand, if I have a diagnosis, I will easily take it seriously and won't be so apt to "cheat." Again, thank you for your help! Mary
  9. Hi! I guess before I ask questions, I should introduce myself. My name is Mary, I'm 55 and I was diagnosed with T1 diabetes at age 45 (I'm a late bloomer:). At the time of my diagnosis, I had gone from 118 lbs down to 90 without even trying (impressed myself!), although I knew something was wrong. At the time, the weight loss was contributed to the diabetes, but in hindsight I'm wondering if it could have been Celiac in conjunction with the diabetes diagnosis (both auto-immune). A few years before the diabetes dx, I found I could no longer eat breakfast without feeling sick. I found that I had reactions to many foods--lactose intolerance, strong reactions (immediate histamine-type reactions such as intense itching, swelling, eczema) to milk, eggs, tomatoes. I've been skin tested and all results were negative. At first I found that breakfast was especially bad for me (but of course, many breakfast foods include milk and eggs), but as I observed more closely I found that over the years the reactions became worse and occurred at any time. Because I had experienced a lot of frustration with doctors before my diabetes dx (GPs ignored high blood sugar tests for years, and finally sent me to an endocrinologist who put me on insulin immediately), I have hesitated to consult MDs over my problems. The negative skin tests were frustrating because I obviously have problems--even my co-workers can see the reaction occurring if I eat something that has milk or tomatoes (egg reaction is slower). I'm sure many of you have had this same kind of frustration. Anyway, it's been at least 13 years of miserable itching, abdominal distress, migraines. I've self-medicated with Claritin, Sudafed, Benadryl (only at night), and tried to avoid the foods when possible, unless I am suffering from a lack of self-control (pizza). I also experience right-sided (mostly) abdominal pain, and have for at least 30 years. I also have problems with diarrhea. Three years ago I had a bowel obstruction (intussusception near the ileocecal valve), to which no definite cause has been found, but on colonoscopy there were erosions which subsequently healed. This, interestingly, is in the right side of the abdomen. I should also mention that every several years I experience a time where my system just won't tolerate eating, and I lose several pounds (usually about 10, which is quite a bit for me). I'm an RN in an operating room setting, so I'm not totally clueless concerning medicine. Even though I work in the healthcare field, I don't have much confidence in some doctors. Thankfully, I finally brought myself to talk at length to my endo, who on his own suggested ordering Celiac testing. Mostly I'm nervous because I'm so afraid of negative tests, and a shrug from the docs. I'm tired of taking anti-histamines, decongestants, inhalers--and avoiding foods, but still feeling bad. Sounds stupid to hope that a test is positive, doesn't it? I don't know what I'll do if it is negative. I just won't know where to go-- Thanks for listening, Mary
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