My son is 9mo. and we are perplexed by his myriad of symptoms in his short life. I am hoping you can help us out. I will try to be as concise as possible.
He has had sensitivities to medications, foods, vaccines, etc.
When we first introduced Tylenol, he would become jittery and almost hyperactive after about 4 hours. On occasion, this still happens.
At 4 mos, the HIB vaccine (we only do 1 at a time) caused him to violently scream within 3 hours of receiving the shot and his injection site swelled. At 6 mos, the DTaP did not cause any reaction. Ironic because HIB usually is least reaction and DTaP one of the highest.
Dry patches of skin on the back of his thighs and upper arms off an on.
He had a perpetual stuffy nose from Oct-Jan which we (& ped) chalked up to dry air in our home. In Jan, the stuffy nose turned to sinusitis/infection and he was given Amoxicillin.
On the last day of Amoxicillin treatment, he broke out in very large 4inch half-moon shaped hives. The ER gave him Benadryl/Prednisone. After 4 days, we were switched to Zyrtec because the Benadryl was causing him to be jittery/hyperactive/fussy.
After the hives subsided, he got a red dotted rash that was similar looking to roseola. No fever.
We took him to an allergist who did subcutaneous testing - he was negative. He was diagnosed with an idiosyncratic reaction/serum sickness like reaction to Amoxicillin. (It is expected to happen again if we use the medication but is expected to grow out of it. We have opted to use other antibiotics if necessary)
Allergist said in some children like our son, there is a metabolic or genetic anomaly that causes these reactions to things.
By the beginning of Feb, he began with chronic explosive diarrhea. We started to notice that it got worse when he ate Cheerios. I removed Cheerios which lessened the wateriness of the diarrhea but when reintroduced, went right back to liquid. I permanently removed them.
From 6-9months, he has only gained 8oz and grown 3/4 of an inch. He was always in 90 or above percentiles and this alarmed our pediatrician.
After consults with our pediatrician, negative stool cultures and high lymphocytes in bloodwork, we were sent to Children's Hospital for further diagnosis.
Currently he is to have weekly weight checks for 1 month and I was to remove as much wheat/gluten from his diet as possible.
As of yesterday, 5 days after taking the suspected food offenders out, he has still not gained any weight. In fact, it appears that he has lost some.
Since removing the Cheerios and limiting his Gerber Puffs (to under 25 a day), his diarrhea is 100% gone!
I am giving him high calorie foods and nursing as often as possible.
Next week if the diarrhea stays gone, I am supposed to reintroduce gluten again and see what happens.
We were offered the Celiac blood tests at Childrens (Anti-gliadin, IgA & tTG) right away but opted to wait to see his weight changes and reaction to the reintroduction of Cheerios & more gluten containing foods.
How long does he need to be back on gluten to have an "accurate" result from the blood testing?
Can you offer any insight to other things?
I have IBS. It started after I got CDiff in 1997 and went into remission while I was pregnant when I got CDiff again. I have been symptom free since. I know that Celiac is often misdiagnosed for Celiac. Is it possible for Celiac to go into remission, though? Mine seemed to be related to my hormone fluctuations and since I'm still nursing, my hormones are still altered.
I also have a mild lactose intolerance.
No one in either side of our families is diagnosed with Celiac, though my side has a history of bowel problems associated with milk-rich foods and stress (IBS).
Thank you for any assistance you can provide us.