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Lizz7711

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About Lizz7711

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  1. Hi Rachel...it's been months since i've been on here. Just to update you on my mercury removal...I've been doing it slowly since last November, and out of 14 to replace, I now have 4 left, will do 3 on Thursday. So far, no problems or reactions other than increased yeast infections and weight gain. I'm dreaming more, and my mental clarity is a bit better, although not nearly where it needs to be. I agree chelation seems scary, but I bought Cutler's book and have been on the forum you referenced, so am planning on trying the DMSA/ALA protocol on my own, unless I can find a doc who knows about it before then. How are you doing? I'm wondering how you found out you had Lyme disease? Is this somethign I could have and not know it? Is there a test for it covered by insurance? And how did you find out that your methylation pathways were messed up? My problem is I do not currently have a holistic doctor...the one I had doens't take my new insuracne and I can't afford to pay him out of pocket. Hope you are doing well. By the way, I think we talked briefly in the past about enzymes. I am doing lots of research on that topic right now, and I think it might be a big key for gut healing for me and for my daughter, along with probiotics etc. I have celiac disease, but my daughter has gluten intolerance and doesn't have DQ2 or 8, so i'm hoping that if her gut heals, she may be able to eat more normally in the future. take care! Liz
  2. Hi, have you tried enzymes yet? I'm doing alot of research into them right now, and have recently started taking some...it's too early to tell yet, but there is aLOT of research showing the healing effects on the gut by taking digestive and therapeutic enzymes. Alot of the practical/anecdotal evidence is from the autistic community. Google, enzymes and autism, and you'll find websites/forums that are very informative for anyone with digestive issues. I'm currently reading a great book by Karen Defelice called "Enzymes for Autism and other Neurological conditions". I don't have any connection with Autism, but unfortunately there are not too many books for general conditions...but it's still extremely helpful. Hope this helps. Oh, and a good website/company to buy enzymes from is enzymedica dot.com good luck, Liz p.s. never tried NAET...I do like at least a LITTLE science backing up a treatment! Acupunture has tons of scientific evidence behind it.
  3. Severe mood swings, irritability, rage and tantrums, can definitely be celiac related, but not necessarily from pain. When the intestines are damaged, tiny holes are created that allow molecules to escape into the blood stream and cross the blood-brain barrier into the brain. This causes mental problems. My daughter (9 years old now), was having SO many behavioral issues before we discovered the celiac issue a year ago. Since being gluten (and dairy and soy) free for the past year, as well as being free of food dyes (regular candy is out) and MSG which also cause the behavior reactions, she is a different girl. When she gets gluten now, or the food dyes, within about an hour she reverts to the old stuff...it's very different from normal misbehavior and I can always tell it's a food issue. Then it takes 3-4 days to get back to normal. I think it took a few months to really settle down, for her to detox I guess...and now when she is glutened, still the reactions are not nearly so intense or long lasting. And it helps because instead of getting angry with her, I'm able to say ok, let's think about what you ate today, and then she calms down a bit because she knows it's not HER being bad, but that her brain is being poisoned. I'm sure you'll see improvements as time goes on, hang in there! Liz
  4. Chronic mercury poisoning from amalgam fillings is being found to be an underlying factor for alot of neurological issues (among other issues)...so i'd defintely look into that if you haven't already. The website iaomt dot org has alot of good scientific information on mercury issues and how to safely remove them. Mercury should not be in our heads inches away from our brains, and all day long mercury vapor is being released and we breathe it in if we have fillings. hope you get well soon, Liz
  5. Can't speak to that directly, but i've been studying alot about mercury from amalgam fillings and the myriad of damage in our bodies it can do, including neurologically. If I were you, if you have amalgam fillings, i'd look into finding a biological dentist who will work with you to have them safely removed (check out wwwdot iaomt dot org for more info) as this could be an underlying cause of your issues. My dad had shingles a year and a half ago and still has terrible nerve pain in his left arm to the point he can't wear a shirt or expose his arm to outside elements like wind...i'm convinced part of the issue for him too is mercuy...plus he has gold and mercury, and that causes galvanic reactions in the mouth. just something to consider, hope you feel better soon, Liz
  6. Hi Rachel, Thanks so much for your detailed response and thoughts...there is alot to think about. The 30 day issue I think was one of Huggins recommendations, stating that actually the body is better able to heal when done in this fashion...but I will dig deeper for more support of that concept before doing it. I'm not in bad health at this time, but do have hypothyroid and take physiological doses of hydrocortisone for adrenal exhaustion...i've been on it for about a year so I think my adrenals are ok to handle the removal, and I can stress dose the hydrocortisone also. I also have been gluten and dairy free for about a year. I am quite nervous of things getting worse though...I have struggled with depression/anxiety through the years and would hate to see that get worse. But i'm very committed to getting the mercury out. I will do more research on the chelation issue before doing it. I just got a new job and need to find a new doctor since my old holistic MD doesnt' take my new insurance. I do still have the hair test kit from Doctors data so I'll try to get that done before starting the removals. And i'll start adding some supplements I don't currently take like glutathione, methionine, and thiamine, NAC, and a few others. Also, my old doctor does IV-C infusions...so i'll probably go right there after a removal for 50K mg of Vitamin C. The crown that I have that has been leaking, for about 2-3 years I think, needs to be replaced because it is starting to really bother me...i'm sure there is mercury under it that is touching my gum line also. The dentist didn't mention anything about a compatibility test for the new fillings, so i'll ask him about that. REgarding the testing of the fillings for the order of removal, I did read online about that....but I've also read other dentists saying there is really no scientific basis for that protocol...so i'm not too concerned about that aspect. I haven't actually read Huggins or Cutler's books...just read blurbs online. I have a good book written by a few dentists about safe amalgam removal that covers alot of the IAOMT stuff. I guess what i'm most worried about is that 6-9 months later issue of the mercury moving around, and i'm sure there's alot stored in my brain, so that's why i'm interested in the Cutler idea of DMSA to detox and ALA to get it out of the brain. If anyone has done this themself and has any advice that would be appreciated! thanks again Rachel. How did your porphyrin tests come out? take care,
  7. Hi, I hope it's ok to post about this topic...I know mercury is related to gluten intolerance as one of the underlying causes perhaps, so hopefully a thread purely about amalgam filling removal is ok. I've met with a dentist who seems to have a good protocol with removal as far as using high power vacuum, ventilation to outside, cold water, taking the fillings out in big chunks, etc. I have about 12 mercury fillings, and two crowns, one of which is fractured. He will replace them with white resin composites. I've read up on IAOMT recommendations, the Huggins protocol, the Cutler's protocol for detox afterwards, and I guess I just want to know what others' experiences/knowledge is (esp. Rachel-24, we've talked some about this before). One specific question I have is about time frames of removal...some recommend slow removal over a long time, while many sites seem to say it's best to get them all out within 30 days if possible. Any views on that? I'm all for the 30 days if that's the healthiest way to go...i'm already 43 and don't want to prolong this anymore! Also, what do you all think of Cutlers' protocol of taking DMSA in regular doses to chelate residual mercury in your tissues, and then taking ALA to help get it out of the brain? thanks in advance for any info or tips!
  8. Well, I had my daughter tested by enterolab before going gluten-free, she was positive, so then we've been gluten-free for 9 months. She just had a Dr. appt (first one sicne before enterolab test so the doc didnt' know yet), and since we were going to draw blood for a standard blood panel and also check her alkphos for bones, the doctor decided to run a celiac panel too. I thought it would all be negative becuase it's been so long, and also she does not have DQ2 or 8, but her gliadin IgG antibody was 44.6, moderate to strong positive! I think since it's covered by insurance, you might as well do the blood tests, and i'd also do enterolab for confirmation or to check if the blood tests are negative...they also do gene testing as part of the panel.
  9. My daughter had to have half formula right from the get-go because I had problems with my milk...after 5 months she wasn't breast feeding at all. BUT, she had digestive issues from the moment of birth (constipation). I think her intestines probably got damaged in utero becuase I had to take an anti nausea medication for 7 months of the pregnancy just to be able to function, and it caused me constipation, so it probably did to her as well...leading to leaky gut and consequent food sensitivities...combined with mercury load and my celiac disease (as yet undiagnosed), and then vaccines on top of that...and there you go! What hope do kids have, LOL. By the way, my daughter is VERY active, runs around like crazy so exercise or lack of is not a factor in her case.
  10. I can say from my experience with my 9 year old daughter that absolutely ODD is related (or can be ) to celiac/gluten intolerance. A year ago my daughter's behavior at home was so bad, rages, opposition, destructive tendencies, perseveration etc, that I started looking up mental conditions online, found ODD< and said, wow that is my daughter. I was thinking I was going to have to find a shrink. But then I found a website called feingold dot org and they had information that many food additives can cause such behavior...so I put her on a no food dyes, no MSG diet...and her behavior improved a bit. About a month later I went to a seminar on celiac disease and got her tested by enterolab after talking to the presenter. She was positive for gluten/dairy/soy/egg sensitivity. I got tested, and I was positive too. I also had a blood test which was positive. Anyway, we went on the Gluten-free Casein-free diet, and after a couple months she was a new girl. It's now been 9 months, and I can always tell when she's had either gluten or food dyes because within an hour her behavior will revert right back to the crazy days...only difference is it won't last quite as long...and since I know what's going on, I don't usually get angry but rather just focus on getting her brain back by giving her vitamins/magnesium etc. Gluten causes the most significant behavioral issues with her. The others cause problems because with a leaky gut, all kinds of molecules get into the blood stream and cross the blood brain barrier, causing behavior issues. For myself, I also get quite irritable with gluten, and have multiple chemical sensitivity. I do think she also has candida overgrowth and potentially high mercury load from me (it passes to the fetus) which may be underlying the gluten issue. I recommend anyone with kids with ADD, ADHD, OCD, ODD, depression etc. to try the gluten-free diet, but also they have to avoid the food dyes, additives, MSG, and aspartame or they will not see as much improvement. Alot of people go gluten-free, but still eat crappy food and drink diet sodas etc. All chewing gum has aspartame these days, and MSG is hidden everywhere...one food that is high in natural glutamate that affects my daughter alot is parmesan cheese..also nutritional yeast, which alot of vegans use. With food dyes, yellow#5,6 and red#40 seem the worst, but we avoid all of them and I buy her organic gummy worms from whole foods and let her have chocolate more often instead of candy. hope this helps! Liz
  11. Hi, i'm from Ann Arbor...just diagnosed last November along with my 9 year old daughter. We got tested through enterolab.com stool testing, both gluten and dairy/soy sensitive. I have the celiac gene, she has two gluten sensitive genes. I then got my blood tested which was also positive. For me, I did not have many digestive issues or malabsorption problems, but more autoimmune...hypothyroidism and adrenal fatigue. Actually, adrenal fatigue can happen due to the gluten problem, and many of your muscle and fatigue issues sound adrenal to me. I went on cortef which is a physiologic dose of cortisol before I knew I was celiac, and the relief of symptoms related to fatigue and irritability was AMAZING. Also since going dairy and soy free, all of my joint pain went away. Most people with gluten problems also have problems with dairy and soy...the proteins are just hard to digest, and if you have a leaky gut, you will have many food sensitivities until you are healed somewhat...so you might want to try eliminating all 3 for a few months and see if your recovery isn't a bit quicker doing that. Then you could introduce the soy or dairy and see how you do. I've been off both for almost a year now...and i'm now able to have small amounts of dairy without any reaction. Soy seems to lead to extreme irritability still. Also, be careful about the root canals and fillings...there is a large group of dentists that are against root canals but i've never had any so i'm not clear on all the rationale...and of course you do not want any mercury/silver fillings put in your mouth...but if they are taking out mercury fillings, it should be done SAFELY using specific protocols that most dentists do not do. Look up IAOMT (iaomt dot org)on the internet..it is the international academy of oral medicine and toxicology and has alot of good information about these issues...then there is a website for a michigan dentist who practices these safe techniques (he's not the only one, but has good info on the website)...it is ryanschroederdds dot com Be patient and give it some time...you will soon be feeling much better as your body heals from the constant "poisons" it's been used to getting eliminated. Good luck!
  12. Hi, i'm from Ann Arbor...just diagnosed last November along with my 9 year old daughter. We got tested through enterolab.com stool testing, both gluten and dairy/soy sensitive. I have the celiac gene, she has two gluten sensitive genes. I then got my blood tested which was also positive. For me, I did not have many digestive issues or malabsorption problems, but more autoimmune...hypothyroidism and adrenal fatigue. Actually, adrenal fatigue can happen due to the gluten problem, and many of your muscle and fatigue issues sound adrenal to me. I went on cortef which is a physiologic dose of cortisol before I knew I was celiac, and the relief of symptoms related to fatigue and irritability was AMAZING. Also since going dairy and soy free, all of my joint pain went away. Most people with gluten problems also have problems with dairy and soy...the proteins are just hard to digest, and if you have a leaky gut, you will have many food sensitivities until you are healed somewhat...so you might want to try eliminating all 3 for a few months and see if your recovery isn't a bit quicker doing that. Then you could introduce the soy or dairy and see how you do. I've been off both for almost a year now...and i'm now able to have small amounts of dairy without any reaction. Soy seems to lead to extreme irritability still. Also, be careful about the root canals and fillings...there is a large group of dentists that are against root canals but i've never had any so i'm not clear on all the rationale...and of course you do not want any mercury/silver fillings put in your mouth...but if they are taking out mercury fillings, it should be done SAFELY using specific protocols that most dentists do not do. Look up IAOMT (iaomt dot org)on the internet..it is the international academy of oral medicine and toxicology and has alot of good information about these issues...then there is a website for a michigan dentist who practices these safe techniques (he's not the only one, but has good info on the website)...it is ryanschroederdds dot com Be patient and give it some time...you will soon be feeling much better as your body heals from the constant "poisons" it's been used to getting eliminated. Good luck!
  13. Thanks for everyone's thoughts. I don't think it's a gluten thing with the hot dogs...most hot dogs list "spice" or "natural flavorings" and this is where i'm guessing it's an MSG issue with my daughter. I've looked at the ingedients for Hebrew National and I can't remember what it was but I know there is something in them that I wouldn't buy... My daughter reacts alot to food colorings...usually red and yellow, and I think there's only a little blue#1 in marshmallows...but I'm guessing that's it, combined perhaps with the "spice " in the hot dogs she had that day. We also both had gluten-free brownies from whole foods last week that were delicious, but gave us both irritability...they use soy flour so that was probably the culprit there. It gets tiring always trying to figure out which little ingredient is causing the problems besides gluten!
  14. I cannot find a hot dog that does not cause problems. WEllshire gluten free all beef are the latest attempt--now i'm dealing with the usual gluten meltdown. It's either that or the Kraft jet-puffed marshmallows, with blue #1. But they have never caused this reaction before. anyone else experience problems with either one? thanks, Liz
  15. Thanks for all the feedback, i'll have to experiment to isolate if it's the chili powder or the cumin. I ate leftovers with no problems though, the only thing I didn't eat was the corn tortillas...so maybe THEY are the problem. In any case I have had problems with some spices before, another one I had trouble with is nutmeg. And I had major issues with home made indian where a lot of cayenne/chili powder was used. Guess I just need to stick to more bland tasting food
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