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CarolynM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CarolynM

  1. CarolynM
    If you still feel you need validation, how about Enterolab stool test or gene test? The endoscopy/biopsy told us nothing with our daughter last July- whether done poorly or too early to diagnose. After worsening symptoms which I tied to gluten by keeping a food journal, I ended up doing gluten-free last Aug and she showed improvement within days. As you...
  2. CarolynM
    Hi, my daughter was biopsied last summer at just under 3 yrs old. The procedure wasn't bad. She was very cranky when coming out of anesthesia. Like fighting sleep times a hundred. In our case, that was the upside - the downside was hers did not show damage. I hoped things had somehow resolved themselves - we went nearly gluten-free after biopsy and...
  3. CarolynM
    Another plug for Tinkyada brand pasta. We had grown accustomed to the others - not bad with sauce - but the texture was noticably different. Just tried Tinkyada - it is wonderful - the texture is great and it holds up to cooking - your son will love it. Good luck.
  4. CarolynM
    Her dad is gluten-free - celiac? gluten sensitive? I guess my daughter would be labeled gluten sensitive although we have no doctor diagnosis. She is SOOOO much better gluten-free. I think in her case, we found it too soon for intestinal damage or it was not where the samples were taken from. Maybe you are piecing this together before it is showing up...
  5. CarolynM
    Similar with us - biopsy "within normal range" No celiacs we were told. Also, told only 3 samples were taken, since then I read should have been many more and nothing else was found. We had 2 weeks between biopsy and results. I had gone nearly gluten-free and begun to see improvement, it went back to worse when I returned her to a normal diet. After...
  6. CarolynM
    Avoid gluten to start with - entirely! Sounds like maybe you haven't started a gluten-free diet. Then think of the BRAT diet Banana Rice Applesauce Toast - make it with gluten-free bread Good luck and hope you're feeling better.
  7. CarolynM
    I was really bummed about my daughter not having her favorite foods among them: pizza and chiken nuggets - found a frozen crust that was ok but expensive and tough to find in my town. We improvised. gluten-free Sliced Bread Pizza Sauce Mozzarella cheese gluten-free toppings as desired. Preheat to 400, bake about 10 minutes on ungreased cookie sheet...
  8. CarolynM
    Sounds similar to my daughter's test results, what are other symptoms aside from poor eating and small? Mine had loose stools, poor sleep habits, irritability and hair loss. If digestive issues, try keeping a food journal to find connection -- possibly gluten intolerance if not Celiac. I saw a connection when my daughter ate pasta.
  9. CarolynM
    My daughter's doctor insisted I probably just give her too much juice - ARRGH! Her hair fell out also The doc convinced me the biopsy was necessary only to find out nothing from it. He didn't think she had celiac - he took only 3 samples - one from stomach, one from esophagus, one from small intestine. Also, I had discovered the connection to wheat...
  10. CarolynM
    My daughter's results were negative but she still had problems which have been relieved by the diet. She was very combative when coming out of the sedative, not that she remembers, but it was difficult on us. No one warned us that she might be that way - like fighting sleep times 100. Also, her IV had been in the hand which she sucks her thumb and she...
  11. CarolynM
    Indiana Chapters of CSA had their first walk this July. Their website is www.glutenfreeindy.com Contact Diane or Joyce through that site, I am sure they would love to share from their planning experience. I hope to organize a 5K run next year in my area - a fund and awareness raiser. I think it is a super idea!
  12. CarolynM
    Deanna Praying for your physical and mental health - hope you get some answers. Have you returned to a Gluten-Free diet - maybe some relief?
  13. CarolynM
    My daughter itched a lot with no visible rash. Since gluten-free she has been better, only itching occasionally.
  14. CarolynM
    I have been using the flour mix that appears in the Celiac Sprue Association gluten-free Product Listing. I used it twice with this choc cake recipe - worked great! I make up a batch of flour mix, keep it in the fridge in a ziploc bag and scoop out the amount called for in a recipe. 1c cornstarch 1/2 c soy flour 3c rice flour 3c potato starch
  15. CarolynM
    I went through grieving about the foods my daughter would not be able to have - from being mad, to why my daughter?, to depressed. Like you, it seemed that all she willing, eagerly ate contained wheat (think about a 2 yr old diet - mac & cheese, pasta, goldfish, crackers, cookies, etc) She feels so much better and we have found good gluten-free foods...
  16. CarolynM
    After 3 solid weeks of no solid stools last fall, my daughter lost her hair. She was only 2 and didn't have an incredible amount to begin with. She went back to fuzz like an infant. It began to make a comeback when I got suspicious about wheat and reduced her intake. Since going gluten-free, it has grown more in a month than in the past year. There is...
  17. CarolynM
    Celiac can come on at any time in life, sometimes triggered by illness. However, I doubt you will get a celiac diagnosis - with symptoms only 2 months, you may not have any damage yet even if your body is having an immune reaction to gluten. If nothing shows up, you could always try the gluten-free diet anyway. Good luck.
  18. CarolynM
    Weighing in on the "skip the biopsy" side! With only positive antigliadin, we reluctantly went with the doc's recommendation and did the biopsy. ( I was ready to try gluten-free seeing obvious reactions to pastas, pancakes) It postponed getting by daughter healthy by nearly 3 months. After waiting for an appointment then the biopsy. We were told everything...
  19. CarolynM
    My opinion- 1. No, doubt it was accurate. 2. Answers vary - 3. This varies for individuals but for many definitely enough gluten in handful of cereal to cause a reaction. If you have seen improvement with the gluten-free diet, I would stick with it. Your son may be gluten sensitive or intolerant (not quite sure the difference myself) but not have...
  20. CarolynM
    Jenn Did her GI symptoms improve once starting the Gluten-free Casein-free diet? Most of us here consider that a test in itself. You could also do a gluten challenge.
  21. CarolynM
    We sing, "Turds, Glorious Turds!"
  22. CarolynM
    Know we are with you in spirit. I will keep your health and education in my prayers. Try not to stress, easier said than done, about school issues - I wonder if the stress is flaring things up. I hope you get some answers.
  23. CarolynM
    Thanks! We did it! Chocolate "pupcakes" she calls them and loved them. We tested them a few days before her b-day on the kids at daycare - a hit - very moist, didn't bother with frosting! For her birthday, we made a cake and half a batch of cupcakes. Again, it went over well. I didn't use Bob's mix but my all-purpose mix of rice flour, potato starch...
  24. CarolynM
    It does feel great to be able to help our children feel better! Stick to your guns about what you have observed and document what he is eating and his stools to show the doctor. I had my husband convinced and we were going to go gluten-free on just positive bloodwork and my observations. The doctor convinced me that while they had already tested for...
  25. CarolynM
    You could go the stool test or gene test route.
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