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mmcdaniels

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About mmcdaniels

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  1. My niece is having some serious digestive issues and will be scoped to check for Celiac next week. She is a very tall child and is also obese. My son was quite the other extreme when he was diagnosed. He was 8 and wore a size 5. Have others had a larger childer diagnosed with Celiac?
  2. I would ask my husband if he wanted to hold the baby or clean up the puke. I frequently point out that there are two things that need done immediately by giving him his choice of jobs. My husband is usually helpful when I ask but frequently too clueless to offer without being asked.
  3. My son is 10 and diagnosed when he was 8. In the first 6 months on a gluten free diet he went from a size 5/5T to a size 10. Previously, he wore a 4T at age 2 and was still in a 5 at age 8. He is now a little small for his age but not significantly.
  4. I have a couple Gluten Free pantry chocolate chocolate chip cookies & cake mix. The mix itself is gluten-free and dairy free but call for 5 T butter, 2 eggs, 2 t vanilla. Any suggestions on subs for the butter? My son can't handle dairy and I'd love to bake him a batch of cookies today. Thanks for any suggestions!
  5. A couple thoughts I had was how does your son feel about mom coming in every day with his lunch? My son is 9 and I send his lunch to school in his backpack. If it needs warmed up, someone does that for him. At your son's age I would ask if he would be allowed to microwave his lunch himself since cool food options are somewhat limited. At first I tried to match his lunch to what was being served in the cafeteria but I've decided that doesn't really seem to matter to him. I often send in leftovers from the night before. The other most common lunch is a pack Carl Buddig ham, an apple or banana, and either Lays Stax or a gluten-free brownie. We aren't all gluten-free at home so I have a couple separate non-stick pans and a separate set of utensils for gluten-free cooking. I also have a few plastic containers that only gluten-free things can go in. That has really helped me avoid cross contamination. All gluten-free items are red and only get washed in a clean sink with a clean dish rag before any items contaminated with gluten.
  6. I got the following message from my son's teacher for next year who does a lot of teamwork with his current teacher: "We are going to start working on our class cookbook very soon. With this, we will be doing some cooking projects. I was wondering if you might be able to go ahead and send in some recipes for us so that I can plan ahead - maybe cookie recipes, cake recipes, snack recipes - those kinds of things. I am really trying to familiarize myself with what Josh can and can not have in his diet. I am somewhat aware, but I want to figure all this out now rather than trying to figure it all out next year. Thanks so much for your help!" I'm excited that she's committed to figuring it out, but I drawing a blank on cookie/snack type recipes. When we still had dairy, I tended to bake myself from a mix but once we cut dairy and soy I just by the Enjoy Life brand. It needs to be fairly simple--this is a class of elementary students with special needs.
  7. We are traveling there for a week at the end of March. It will be a low-budget trip and we'll be able to bring some foods from home and do most of our cooking in the house we'll be staying in. Any information on restaurants that do well with special diets or health food stores would be appreciated. My son is Gluten-free Casein-free and mostly soy free and very limited on dyes. Thanks!, Marsha
  8. Our experience at church has been mostly very positive. It has helped tremendously that the special needs ministry director volunteer who works closely with my son and all his volunteers also has Celiac and has become a good friend. He has his own snacks, given by someone with understanding of the issues. Now and then there is a special food reward in our elementary worship service and we haven't been warned in advance. The first time I spent the Sunday School hour hunting for a safe alternative. Last time I didn't find our until later but my friend ended up missing worship service to take care of the situation. I would suggest to anyone who is concerned about the children's ministry and how they do things is to volunteer, get involved and get to know people. You'll soon find out whether or not you can work with people. Many families are at our church from 9:45 until after Noon, some from 8:30 until after noon. Not having a snack isn't a viable option, especially with some kids not having breakfast at home. I am a bit concerned about my son's middle and high school years when donuts are provided for all the kids, but he's in 2nd grade so we'll cross that bridge when we get there.
  9. For my son green poop is usually a sign that his system is off so I would bring it up. When Josh's system is off, we see runny neon green poop. I think there is often a cross contanimation issue going on but sometimes I've felt like everything has been done right and we've still had green poop. Was she checked for impaction? When my son was first diagnosed, we had to clear up an impaction before he could make any progress with diahrea/constipation issues? He had 10-12 slight diahrea bm's daily when he was impacted. He was also on miralax but we haven't needed it for 10 months. My son was dx last December and went from a short, skinny 7 year old wearning size 5 slim to a medium to tall, somewhat pudgy 8 year old wearning size 10.
  10. Thank you for posting that question. For some reason, I never associated gluten with hay rides. Thanks for giving me another thing to consider.
  11. Thank you for the ideas and support. Great idea to use separate ice creams--I was planning to bring 2 anyway. I think I'll also take you up on the big portion, especially since I'm sure I'll be confiscating most of his Halloween treats. He's allergic to peanuts too so unless I'm sure it's gluten and peanut free he doesn't get them.
  12. I'm sure lots of you have dealt with this but I would love some ideas. I am one of the 2 room parents for my son's class which is great because it does allow me to protect him from unsafe foods. The other room parent is not willing to really even consider making things safe for Josh and I'm getting very frustrated. She suggested a Sundae bar with waffle bowls. I countered by offering to bring hot gluten-free brownies instead of the waffle bowls but she insists on keeping the waffle bowls and doing the brownies, too. I'm figuring the ice cream (which I am also bringing) will be quickly cross-contaminated. Not to mention she wants to have toppings like crushed oreos (picture all the gluten in the air!). I will be there and will dish Josh's ice cream first in a clean dish with a clean scoop so his original portion should be safe. Still it is really irratating me that I am going through the time and expense of Breyer's ice cream and a double batch of Pamela's brownies and everything will be so ruined by cross contamination my son couldn't even have seconds. I may individually wrap each brownie so any leftover brownies would remain safe from cross contanimation but I can't think it would be possible to avoid cross contanimating the ice cream when sccoping it into waffle bowls. And who would prefer a waffle bowl to a brownie anyway? Any suggestions? I know it could be worse. I will be there to protect my son's interest but why have so much gluten in a Sundae bar?!
  13. Lizard, What few foods does your son eat well? Maybe we can help you with some gluten-free alternatives. My son is 8 and was just dx in December (which makes me feel foolish, but at least we're on track now.) He also is very picky and implementing the diet has been easier than I thought. Some favorites are: Chicken tenders made by cutting up chicken breasts and dipping in egg and crushed Lay's chips. Lays Staxx Pamela's pancake mix makes pancakes so great that visiting kids have went home and talked about them for days (I added chocolate chips to that batch.) Annie's gluten-free rice pasta & cheddar Tinkyade pasta with velveeta hamburger patties & Heinz ketchup Chebe pizza crust My son eats better now than we did the first 8 years of his life. He is up to 4 different fruits that he often eats. A year ago that was zero. Marsha
  14. A lot of recipes call for a corn-based breading which my son does not like. He likes them dipped in egg, then crushed Lay's Potato Chips, then baked in the oven. They come out pretty tasty but don't win any awards for being low fat.
  15. My son wasn't dx until he was 7 but the problem was evident much earlier. He was a very large baby -- 9lb 9 1/2 oz. At 3 years old, he wore a size 4. At 7 years old he wore a size 5. So basically, there was little growth in 4 years. He had very unusual bowel habits. There was a small bm in every diaper changed for years but almost never a complete bm. I used to think the problem was more diahrea, then I realized it was more constipation/impaction with a little bm leaking around a large mass. Several doctors told me the symptoms I was describing was no big deal. Last year his teacher and I charted all bms in hope of toilet training. This reinforced that yes, there was something wrong. At that time I made specialist appointments myself and finally this specialist (gastroenterologist) was willing to investigate. He was dx in December with Celiac. Now his bms are fairly normal. And he started to grow. He is now in a size 8 (was size 5 in December). He is severely autistic as well with low verbal skills and we haven't mastered the potty thing yet but we're working hard and hope to see progress soon. His teacher & I now believe he can, but he is not yet willing to try. The testing that was done was a blood test, followed by an endoscopy and a biopsy. I understand these tests are less reliable at your daughter's age but keep pursuing finding out what is going on. I could have saved my son much pain if I didn't wait.
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