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LeeV

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Everything posted by LeeV

  1. LeeV
    Thanks everyone, I did check for side affects and diarrhea is not one of them so I will contact manufacturer to find out if it indeed contains gluten. Thanks again. Lee
  2. LeeV
    MY DAUGHTER STARTED TAKING PEXEVA ABOUT TWO WEEKS AGO AND EVER SINCE SHE'S HAD DIARRHEA AGAIN. IS THIS A COINCIDENCE? DOES ANYONE KNOW. I LOOKED THEM UP ON THE INTERNET BUT THERE WAS NO LIST OF INGREDIENTS. THANKS. LEE
  3. LeeV
    HI, HELP! MY DAUGHTER HAS BEEN gluten-free NOW 10 MONTHS OR SO AND SUDDENLY LAST WEEK SHE'S BEEN SICK AGAIN. I'VE BEEN PRETTY CAREFUL W/ALL THE PROCESSED PRODUCTS BUT MAYBE I SLIPPED UP. IS THIS A NORMAL THING AND IT'S BEEN ABOUT 1 1/2 WEEKS. HOW LONG WILL IT TAKE TO FEEL BETTER AGAIN. I'VE BEEN GIVING HER PEPTO BISMOL, IS THIS OK? I REALLY NEED...
  4. LeeV
    HI, MY DAUGHTER HAS CELIAC AND ENJOYS HAVING BACON FOR BREAKFAST BUT PROBLEM IS IT'S VERY FATTENING! I'D LIKE TO HAVE HER TRY TURKEY BACON BUT CAN'T FIND ANY W/O GLUTEN. DOES ANYONE KNOW OF ONE. THANKS.
  5. LeeV
    Hi celiac3270, Would be please e-mail me the list too! Thanks in advance! aigil@aol.com! Lee
  6. LeeV
    Thank you celiac3270 for the info. My IGG was 7, which is in the normal range. I don't have any symptoms but my daughter is having a follow up visit w/her gastro dr. next month and I'll ask for his opinion. Thanks again.
  7. LeeV
    GOING TO MERIDA, MEXICO IN JUNE. ANY SUGGESTIONS WHAT NOT TO EAT, DRINK, WHERE TO EAT, ETC.? NEVER BEEN TO MEXICO. WILL BE STAYING AT A CONDO. SHOULD I TAKE gluten-free FOODS LIKE BREAD, OR MIXES TO MAKE IT THERE? I DON'T WANT TO CARRY TOO MUCH LUGGAGE. THANKS FOR ANY ADVICE.
  8. LeeV
    I'M THE PARENT OF A 22 YR. OLD WHO WAS DIAGNOSED 9 MONTHS AGO W/CELIAC AND IT WAS RECOMMENDED I HAVE A BLOOD TEST DONE. I DON'T KNOW IF HAVING A 19 H FOR GLIADIN ANTIBODY (IGA) IS WITHIN THE NORMAL RANGE. CAN SOMEONE LET ME KNOW BEFORE I HAVE TO CALL DR.'S OFFICE. THANKS.
  9. LeeV
    Hi, I'm interested too in a recipe exchange. Count me in! Will also check the Delphi website, Thanks. Lee
  10. LeeV
    Yes, I'm thinking they probably did contain traces and now they're stating it in their label! Lee
  11. LeeV
    Hi, Am I glad I've followed the advice to always check labels even if you've been buying the same product for a while. Today I went to my local health food store where I've been buying my daughter's gluten free hamburger/hot dog buns and I noticed the label was different. It now says it contains traces of gluten, wheat, oats and barley!! I had to pay...
  12. LeeV
    My daughter was always sleepy before she was diagnosed and I found it strange because she never napped before. She's been gluten-free now two months and is napping only occasionally. Good luck. Lee
  13. LeeV
    Hi, Thanks for your information everyone, it's good to hear that celiac disease doesn't make you any more prone to getting flu bugs, etc. She's much better now. Lee
  14. LeeV
    HI, MY DAUGHTER HAS BEEN gluten-free NOW 2 MONTHS AND ON MONDAY AFTERNOON W/O ANY ADVANCE WARNING SHE THREW UP (SORRY)! TWO HOURS LATER SHE DID IT AGAIN. SHE'S ALSO DIABETIC ON A PUMP AND HER SUGAR LEVELS PLUMMETED! SHE WAS PRESCRIBED ZOFRAN WHICH STOPPED HER FROM THROWING UP AGAIN AND WAS PUT ON LIQUIDS. SHE'S FINALLY OK NOW, BUT I WAS WONDERING IF HAVING...
  15. LeeV
    Hello, My daughter was diagnosed 2 months ago and hasn't been able to receive communion since. Where does your church get their gluten free wafers? I don't know if you read an article recently about a little girl w/celiac who made her first communion w/a gluten free wafer. The priest from her parish was reprimanded for allowing it and they turned around...
  16. LeeV
    My daughter is going through the same thing. She's been on gluten-free diet 2 months now. She's disabled so I prepare all her meals. She's back at school and taking lunch w/her. She has an aide and so I would know if she has sneaked anything she shouldn't have. I've been really careful what I give her, cook all our meals gluten-free for the whole...
  17. LeeV
    Hi, I couldn't open this file either...... I have a question though, my daughter was doing fine for a few days and then I gave her food w/cheese and it upset her stomach. I haven't given her any more after that but she's still not 100%. I've stopped giving her regular milk, but some products contain milk, could it be that? I'm confused and stressed...
  18. LeeV
    That's a lovely poem, thanks for sharing it. I know how you feel and then some. My daughter was diagnosed with celiac disease two months ago but she also suffers from 18q deletion syndrome, diabetes and hypothyroidism. It's a challenge every day but we make the most of it that we can. She's our very special child and life is quite a journey with her...
  19. LeeV
    Thanks Jill! I did find form letters that are for teachers, principals, school nurse, cafeteria personnel, etc. on the Celiac Sprue Association website. But I should get a letter from my daughter's doctors anyhow. Thanks again. Lee
  20. LeeV
    Hi, My daughter was diagnosed two months ago and is going back to school. Is there a form letter I can download w/information on Celiac Disease for school personnel? Thanks for any info. Lee
  21. LeeV
    Wow, am I glad I read these posts! I changed from Soy Dream to Rice Dream because my daughter didn't like the taste of the the Soy Dream. It says rice and so we assumed it was safe. I just read the label and it states it has gluten!! Thanks everybody! Lee
  22. LeeV
    HI, MY DAUGHTER'S BEEN GLUTEN FREE NOW ABOUT 2 MONTHS AND WAS DOING PRETTY GOOD, ALMOST "NORMAL". AFTER SEEING THE GASTRO HE SAID I COULD INTRODUCE MILK PRODUCTS AGAIN SLOWLY AND HAVE HER TAKE LACTAID TABLETS WHEN SHE DID. I DID THAT AND SHE GOT SICK AGAIN! WE ALSO WENT OUT TO LUNCH AND AFTER TALKING W/HEAD CHEF I WAS COMFORTABLE W/HER HAVING GRILLED...
  23. LeeV
    HI, THANK YOU EVERYONE WITH ALL THE INFORMATION ON SUPPORT GROUPS IN FT. LAUDERDALE FLORIDA. I CALLED THE CELIAC SPRUE ASSOCIATION AND THEY GAVE ME A PHONE NUMBER TO CALL IN MY AREA. THEY ARE MEETING THIS SUNDAY AT 2:30 AT THE NORTH BROWARD MEDICAL CENTER, 201 E. SAMPLE ROAD, ROOM 8, GROUND FLOOR. THE CONTACT IS NORMA KAGHAN 305 945-0091. I WILL CALL...
  24. LeeV
    Wow, it's great reading all your posts, I'm going to do a search in my area which is Ft. Lauderdale, Florida and see how many gluten-free restaurants I can find. If I get a decent amount I'll post it. Thanks for all your suggestions. Lee
  25. LeeV
    Hi, my daughter was diagnosed three weeks ago w/celiac disease and I'm interested in finding a support group near us. Any information would be very helpful. Thanks. Lee
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