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flutterby

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About flutterby

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  1. I have heard several people mention that their Celiac manifested itself 'after getting the flu'. This was my case ... I had been having problems for months, but it wasn't until after I had a 3-Day fever/flu that I got so sick I was eventually...
  2. Agreed. See this video for more info: A lot of the times I have different reactions, depending on what else I've eaten. Even 1.5 years after going 'gluten' free, I felt great but had an episode of getting suddenly sick and having...
  3. I have had these problems too. They got substantially better after going gluten free, but only after a long time, due to the learning curve. Memory/concentration problems are one of my first symptoms of a gluten reaction. However, my doctor...
  4. Quakers has been known to have cross contamination issues. Also, Quinoa that is not listed as gluten-free may also have cross-contamination. Also, if you have had serious damage from celiac, I think (someone correct me if I'm wrong)...
  5. That's exactly what I went through! My doctor was at a loss, and either didn't know to test or thought that it wasn't necesary since I improved on the diet. Two years later I am seeing a specialist, who wants to test and make sure and rule...
  6. I've had the same experience. My favorite was a vegan acquaintance who said "Oh yeah, dude. Cheer up!!! I TOTALLY know how you feel. I'm vegan, after all." I explained to him as politely as possible that the difference was that he has...
  7. Thanks for sharing Shauna, and everyone else! This is one of the things that I was hoping to find out. It's an obvious problem that doctors don't know to look, or won't listen. With 1/133 people having Celiac, you would think it would be...
  8. You know, I was thinking about putting a genetic test AND blood or biopsy option, but they only let us have so many. This is one thing I have noticed ... we are all so different! I feel very fortunate that I have had doctors that listened...
  9. With so much talk about the big Diagnosis, I am curious what category people fall under here on the forums! Or, what category do your family members fall under?
  10. Hey Folks, This remind me of something I have had doctors tell me before. Keep in mind that, although it's important to know what's causing your symptoms, a diagnosis of Celiac is not necessarily a good thing, as it may cause insurance...
  11. Thanks, Sophie. Basically, at this point, eating a lot of gluten for weeks or months isn't really an option. I'm not willing to be miserable just to get a positive diagnosis. I've already noticed some symptoms like problem with short term...
  12. Hey folks, I started introducing gluten again after the doctor said I could 'cheat' a little before my blood tests. Like everyone else, what this made me realize is that even with negative tests I will remain gluten-free! Anyway,...
  13. flutterby

    Brain Fog

    I used to have problems with this all the time, and still do even after going gluten-free. I had thought it was reactive hypoglycemia because it would always happen an hour or two after eating, for example, a breakfast with carbohydrates...
  14. flutterby

    Dry Bleeding Hands

    I used to have this problem when I was younger ... my hands would get so dry and red and itchy that they would crack open and bleed. It turned out I was allergic to the lanolin in the lotion I was using, so yes, double check ingredients...
  15. I had a similar reaction to a Swiss Miss hot chocolate brand. Caused severe joint pain and some other things. Must be the dairy, but I do have the experience that dairy in other forms doesn't cause the same reaction! You might check to see...
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