
DanaDee
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by DanaDee
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ARCHIVED Contamination!
DanaDee replied to troushka's topic in Parents, Friends and Loved Ones of Celiacs
I recently overlooked hair spray. It had wheat starch. Look at his personal care products carefully. He is 16? Does he get "duded" up with cologne and after shave for the ladies? Check his products. -
ARCHIVED Still Seeking Advice...
DanaDee replied to The Mama's topic in Parents, Friends and Loved Ones of Celiacs
Also, just a thought........My DD was 2 when diaged, she won't know any different and know what she is missing, unlike your daughter who ate gluten all her life. If she is in school all day, and doesn't "react bad" to gluten initially ( only internally), are you sure she is not snacking in school or getting sweets/treats from friends? She is just a kid... -
ARCHIVED Still Struggling
DanaDee replied to honeypond's topic in Parents, Friends and Loved Ones of Celiacs
Honeypond, We are also going through something, not sure what. DD was diaged in MAY. we are 100% gluten free ( father in law has had the disease long term, so we understood it right away). Her poos were solid, nicely formed from June-DEcember. She has had runny poos for the past month. Going to peid GI today. I suspect 1 of 2 things. I don't think... -
You said he doesn't drink milk? Doesn't drink it, or can't tolerate it? If he just doesn't drink it, I would do what I needed to do to get him on milk. It's calories, fat, vitamins, etc.....and seems like a healthier way to go on his teeth than the Koolaid, and when we were struggling to get my daughter's bowels under control, we were told to aviod the...
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ARCHIVED Questions About Symptoms
DanaDee replied to tazzsldy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Check everything everywhere. We just realized our Suave hairspray has wheat and wheat starch. That stuff goes airborn, not good. I threw it out. I wasn't even THINKING about hairspray. And spray starch, and bubble bath. It's in everything. Those wheat farmers really marketed their product well........ -
ARCHIVED Movie Popcorn
DanaDee replied to HeyItsA's topic in Gluten-Free Foods, Products, Shopping & Medications
Me too, but just because I don't want to have a heart attack. that stuff is nasty. We just order it plain and don't have them add the squirts of that stuff they call buttery topping. -
ARCHIVED I Need To Vent
DanaDee replied to Caseysmommy's topic in Parents, Friends and Loved Ones of Celiacs
That's what I am doing. My 3yo DD tested positive to the the Ig tests, we had a month between that and Ped GI> Out of desperation, I hit my limit one day, after huge temper tantrums, and runny stolls for a year and just took her off gluten. It was an amazing recovery. My father in law has celiac disease, and I am almost 100% certain it is what she... -
ARCHIVED Frustrated - Help Please
DanaDee replied to Jules's topic in Parents, Friends and Loved Ones of Celiacs
I'm sure every kid is different, we had Diag in May 2008 on my then 2 year old, that WEEK she slept through the night without waking up sceaming for the first time in a year, and has slept through each night since. That WEEK her temper/disposition switched like someone flipped a switch. It took about a month to get the runny bowels under control. My... -
ARCHIVED Please Rave About Your Faves
DanaDee replied to DanaDee's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the info......GLUTEN FREE MARKET.......that crash is me falling off my chair. Man oh man are you lucky! -
this is a HORRIBLE epidemic in America....I have friends who teach and are facing impossible situations, every child on ineffective ADD drugs, with non-vigilant and uninformed parents who don't care much, and all the while, living on nearly complete fast food and junk food diets......and the sad thing is, not only will parents/authorities not listen to us...
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Your school psychologist, when reporting their findings usually suggests to parents if they see behaviors that may warrent a trip to the Docs office, I would talk to them to see if you can get them onboard about educating parents. Educating, not recommending. I am a Guidance Counselor, I tell my own personal story and show bite marks. I don't tell parents...
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ARCHIVED Dumb Questions!
DanaDee replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
I'm a farmers daughter and my father NEVER grew wheat, so please ask. We gres Alfalfa, and all hay was made with that. A dairy farm may not have any wheat at all growing there, but a crop farm is totally different story. -
ARCHIVED Please Rave About Your Faves
DanaDee replied to DanaDee's topic in Gluten-Free Foods, Products, Shopping & Medications
OMG....there's gluten-free ravioli and stuffed shells? where does everyone get them? I haven't see the chocolate dipped donuts either? -
ARCHIVED Please Rave About Your Faves
DanaDee posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I am relatively new to celiac disease, my 3year old daughter was diaged last May. I have been trying new products left and right, some good, some bad, some ugly. So, let's save everyone time and money, please rave about some of your fave gluten free products ( not recipies, I can tweak and play), actual products that you buy that are yummy and save time... -
ARCHIVED I Just Want To See What Happens ?
DanaDee replied to HeyItsA's topic in Coping with Celiac Disease
I don't understand how a medical professional made a Diag of " a mild case" You either have it or you don't? It's all or nothing with celiac disease, unless you are gluten intolerant, that is different? I think they meant you have it, it just wan't yet at a level where it was doing as much damage as it could, right? -
Did anyone see the Rice Chex box? On the side panel, in beautiful large print it says "Gluten Free" It goes on to say what Celiac Disease is, and ends by saying they support funding to the celiac disease foundation. I love them. It was awesome to see this on a box of "mainstream" cereal from a large company
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ARCHIVED School Problems
DanaDee replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
But and IEP and 504 are two different things. You can only get an IEP if testing is done to indicate a learning disability, the child needs to be around 2 grade levels in ability behind peers. ( essentialy how they determine if services are needed). The issue was probally you not having the "official" celiac disease diag. My GI said, sadly, we need... -
ARCHIVED Day Cares - 2 Year Old - Newly Diagnosed
DanaDee replied to TawnyaK's topic in Parents, Friends and Loved Ones of Celiacs
I'm going to rave about my daycare. I selected an intergrated daycare, it's through UCP, United Cerebral Palsy, and it is designed for special needs kids, but take other kids from the community as well. The have children with Autism, so my gluten free diet kid was nothing new for them, the Autistic community around here has embraced the gluten free diet... -
ARCHIVED 3 Year Old Has Identity Crisis
DanaDee replied to shan's topic in Parents, Friends and Loved Ones of Celiacs
I have just found it easier for my whole house to go gluten free. I have purchased several cook books and have made some awesome "fakes" Nobody knows. I don't bring it to everyone's attention that it's gluten free, it's just dinner. Who has to know what they are eating? Also, after doing my own research, gluten free is easier to digest and healthier... -
ARCHIVED Odd (oppositional Defiance Disorder)
DanaDee replied to Fiddle-Faddle's topic in Parents, Friends and Loved Ones of Celiacs
I don't know that it's related to Celiac, that the two dieseses are co-morbid of each other, but I can see where an undiaged kid may get the diag of ODD if the child were on gluten and reacting to it. My daughter, now 3, she she gets gluten in her system, it's like a switch get flipped on and she flips out. She goes from the sweetest kid who hums when... -
ARCHIVED Benefits Of A 504 Plan With The School
DanaDee replied to Breila's topic in Parents, Friends and Loved Ones of Celiacs
I don't think so, I think you need the actual medical diag. We are diaged based on response to gluten free diet, I wouldn't do the scope on my daughter yet, she was two, and I was in desperation, I reached that point where I couln't wait for one more test result to come back I had to get her bowles under control and get her healthy. My FIL and DH have...