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wendstress

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About wendstress

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  1. Apart from Gluten, I also have some issues with dairy and caffeine giving me diarrhea. I have have small amounts of each (2-3 cans of caffeinated soda a week, or a 'dollop' of sour cream with a meal), but too much has me headed to the bathroom. Me at Starbucks: "I'd like a venti, decaf, soy, caramel macchiato, please." Takes and eternity to order, but it doesn't upset my gut!
  2. I've been gluten-free since the beginning of 2009 and feel like I've been slowly and steadily healing. I never had DH rashes before diagnosis. (Nor do I now). Over the last 2-3 months my legs have been so itchy I am going crazy. No rash. Just itching. One time I itched so hard I caused my inner thigh to bruise. No changes to detergents, soaps, etc. This may not be Celiac related, but since it generally seems like everything is related to celiac disease, I thought I'd ask. Any thoughts? Ideas? I've also gone light on dairy, and am trying to give up caffeine. At times more successfully than others!
  3. DITTO! She said we don't see too many Celiacs.... Best advice she gave me was to join the local Celiac Support Group. THEY have been extraordinarily helpful!!!!!!
  4. wendstress

    What Are Your "glutened" Symptoms?

    Just got glutened last week..... I thought the pizza dough tasted way too good to be true! (It had been put in the wrong spot at the bakery and I didn't bother to check). It took 12-24 hours to hit me, but when it did: *Headaches - Persistent for 2-3 days *Fatigue *Brain Fog *Peripheral Neuropathy * Gas Funny, but I actually didn't get the "D" this time. I didn't realize I had gotten glutened right away. The first indication was when I woke up the next morning and both of my hands had 'gone to sleep.' I haven't experienced that for months. The worst was days 3-4. Felt like I got hit by a truck. All I wanted to do was lay in bed and sleep. Couldn't think straight.
  5. wendstress

    How Long

    Everyone's journey is different - the disease affects us in different ways..... Here is a brief timeline of my recovery: Weeks 1 and 2 - I FELT AMAZING - Felt 75% better. Wow. Didn't last long. I think my body went from constantly being on the defensive (fighting gluten) to actually starting to heal, and that took a lot of energy. Weeks 3-12 - Lots of ups and downs even though I was trying to the very best of my ability to be gluten-free - felt 25-50% better depending on the day. Still tons of bathroom trips. Month 3-4 - Started to be consistently better, but still had a LONG WAYS to go - feeling 60%-70% better Month 5 - Lost some ground....not sure why? Back to 50% better, very frustrated. Month 6 - A little better than month 5. Back to 60-70% better. Cut way down on dairy and caffeine to help my gut heal. Month 7 - First month my symptoms have been fairly minimal. Feeling 80% better.....still plenty of healing to do, but I'm at the point for the first time in a LONG TIME that I no longer worry about how/if the bathroom is going to shape each and every day. *Just a disclaimer - I have also been diagnosed with lymphocytic colitis, which gives a lot of the same symptoms of celiac disease. The treatment is a little less clear than with Celiac Disease, there are any number of foods that can agrevate LC. During the past 7 months I have been on 2 courses of steroids ("Entocort") to help my large intestine to heal. Hope this helps you to know that whatever timetable your body is on, it will take time to heal. You will likely have ups and downs. Don't be discouraged - stick with it!
  6. Hi - welcome to the lovely Gluten Free World I found out I had celiac disease at the beginning of 2009. The learning curve is pretty steep. I think it probably took me 6 weeks before I was doing a decent job at eliminating the gluten.... Through forums like these I continue to learn. Most of all, I just wanted to say to you to have realistic expectations. I have been doing this for 7 months now and I still have celiac-related symptoms. My symptoms are gradually getting better, but bodies take time to heal. I had so many ups and downs during the first 3-4 months that going gluten free didn't feel worthwhile. I'm telling you this not to discourage you, but to remind you that it will take time and to allow yourself to be patient. Also, wanted to share a few items that have recently (last 6-8 weeks) helped me accelerate my healing: 1) Nearly cut out the caffeine. When I had to give up gluten, I turned to caffeine for comfort. Bad, I know. It didn't help me to heal at all..... Now I have a can or two of caffeinated soda a week, but considering I was drinking 4-5 caffeinated drinks a day, this is a huge improvement. 2) Minimize dairy. I've heard a lot of conflicting theories on this....but basically those with Celiac Disease can have a secondary intolerance to lactose. I have been advised by my Gastro to minimize dairy while my gut heals, and then slowly re-introduce it down the road (6 months? 12 months?) and see what my response is. It seems that there are plenty of people with celiac disease that eliminate dairy altogether, as well as those that have been able to reintroduce it after their guts healed. I can't say I was a believer until I felt vile the evening after having a dish of ice cream cone. So, I'll have a little butter, or a dollop of sour cream on a potato without having any problems.....but no more glasses of milk or bowls of ice cream! Goood luck in your journey! Having a place like this to turn to will make it much easier for yoU!
  7. wendstress

    Tonsil Stones

    That is SO interesting. I've had these for years and years.... Even saw my Dr. about them once about 10 years ago and he told me it wasn't a big deal. I have also had a yellow or white coating on my tongue that gives me terrible breath. I have been so self concious. Ironically, just last week I picked up a new mouthwash and toothpaste that has helped enormously. The product line is called "TheraBreath" from Dr. Harold Katz. The information in the box described so perfectly what I have been dealing with that I am a believer! Website: http://www.therabreath.com/ Since I starting using this stuff, my breath has improved like 75%. I'm hoping it will continue to get better as my gluten free journey continues.
  8. wendstress

    Easy, Yummy Bread In Minutes

    Tried it for lunch today with 1/3 cup of Pamela's Baking Mix in place of the rice/flax/almond ingredients (because it was what I had!). Turned out just fine.... Has potential for futher experimentation, too! Made a few baggies of just the dry ingredients for future needs. How easy can it be???? Thanks for making life just a little easier!
  9. I grew up in the Upper Peninsula of Michigan, in an area with a very strong Finnish influence. Pannukakku is a traditional Finnish breakfast that is sort of like a custardy baked pancake. This is one of the things I went through mourning for when I found out about my Celiac diagnosis. Anyway, tried it this weekend substituting Pamela's Baking Mix for the flour and it tasted PERFECT!!!! My folks were in town and they make this often the regular way, and they couldn't even tell the difference! Pannukakku (Finnish Pancake) 1/2 stick melted butter (original recipe called for a full stick, I thought it was a little much!) 4 eggs 1 tsp salt 1/2 cup sugar 2 cups milk 1 1/4 cup PAMELA'S BAKING MIX 1. Spray 9 x 13 pan with baking spray. Pour melted butter into pan, set aside. 2. In a large bowl, mix the eggs and salt until frothy. 3. Add sugar until mixed in completely. 4. Add milk and Pamela's Baking Mix and mix well. 5. Pour entire mixture into pan and bake for approx. 25-30 minutes at 425 degrees F (or if you have a convection option, bake for 20 minutes at 400 degrees). Pancake should be a little crusty on the outside, and custardy on the inside. Can be topped with any of the following: Cinnamon sugar (my family's favorite), powdered sugar, or your favorite Jam. ENJOY!!!
  10. Can you share some of your symptoms?
  11. This is from my local CSA Group (Fox Valley, WI). It helped me tremendously in the first few weeks... I mentioned it several times in other posts..... It loses it's formatting when I cut and paste, but it is still very useful information. If you would like the nice, 1-page document, please PM me with your email and I'll get it off to you. (As always - read labels anyway!!!)
  12. wendstress

    What Happens Why You Get Glutened?

    Thanks for the suggestions. I don't drink wine very often (6-8 times a year?)....but was curious, so I had a glass of a different type of wine last night. No effect. Who knows. In the past (prior to my gluten free days), wine never bothered me. I had a headache for nearly 3 days.... Ouch! I am not aware of any other food intolerances... But I'm not naive and certainly realize I could have them and just haven't figured it out yet. I'm new to celiac disease, and also have Lymphycytic colitis to boot. I've been steadily feeling better, with few setbacks, so I'm just going to keep doing what I am doing.
  13. As a new celiac, here are a few pieces of advice: 1) Give it a try - you have nothing to lose and everything to gain. BUT, if you do it, you need to do it 100% because even a little gluten will mitigate the positive effects you may otherwise have. 2) I felt substantially better in 2-3 weeks. Give yourself this long. Then, I'll admit, I went back downhill as I believe my body went into healing mode and I became utterly and totally exhausted. I still have ups and downs, but am so much better than my gluten-filled life! 3) If you go this route - find some easy gluten free foods and stock up. Learning to cook gluten-free takes time, but there are some short term things you can do to get through a few weeks. For my first few weeks, I lived on rice cakes (with peanut butter or cream cheese), rice, Rice Chex, plain chicken, salads (watch salad dressings!), fruits..... There are also a lot of ready-to-eat snack foods that a decent grocery store should have in a gluten free/natural foods aisle. The EnviroKidz bars are good, EnerG Crackers and Pretzels..... I LOVE Pamela's Pancake Mix! Made it for my folks last weekend (they were visiting) and they never would have known it was gluten-free. 4) I have a list of about 80 things a "Celiac can eat right away". It is a compilation of lots of brand name items that are readily available. It was really usefully to me right away. If you are interested, PM me and I can email it to you. Yes, it is a pain in the butt to do..... But all you have to do is to take it 1 day at a time and see if it helps you to feel better. Seems like you have an awful lot to gain if this is truly the answer for you! Good luck!
  14. Went shopping this weekend - my Mom was in town visiting - first time we've seen each other since I found out I have celiac disease.... Anyway, I picked up some Rice Chex and she said, "what about those" and pointed to the clearly labeled Gluten Free Honey Nut Corn Chex. Needless to say, I bought a box! They are sooo good.... Thank you, General Mills! (I'm in Northeast Wisconsin, by the way!)
  15. Just curious.... I'm new to this and trying to identify when I've come in contact with gluten, or if I'm just experiencing a "down" associated with the healing process.... Last night I am sure I got glutened - it was either fruit dip or wine. Had a near-migraine that came out of no where and my belly blew up to 4x normal. Didn't get any D, but I still have the headache 24+ hours later. Fruit dip - had some earlier in the day setting up for my son's BDay party - no reaction. Ingredients listed "natural flavors", everything else was OK. Then I had some literally 5 minutes before my head exploded. Wine (Beringer White Zinfandel) - timing makes me suspect this one - headache started 20-30 minutes after having about 1/3 of a glass.... Then I tried to finish the glass later and had another headache surge 15 minutes later.... I thought wine was gluten-free?? I'm still trying to learn my body and what was a true glutening....vs. the ups and downs I've experienced with the healing process. What happens to you when you get glutened??? How quickly to symptoms start? How long do symptoms last?
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