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tygwyn

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Everything posted by tygwyn

  1. OH yes I def bet your hubby is! My hubby would sell the house to pay for a magic pill i reckon to get rid of my anxiety and mood swings.. so would I!!
  2. Welcome to the Forum! When you say you are subclinical hypothyroid, are you being treated for it? How big are the lumps on your thyroid? Have you had an ultrasound or an FNA (fine need aspiration). I had a massive multi nodular goiter up until 3 years ago... I now have no thyroid and am still struggling to find my sweet spot of medication. I've also been diagnosed as being Inuslin Resistant but my doctor believes that when we get the gluten intolerance and thyroid in check that will be corrected... heres hoping
  3. Thats fantastic news!! Congratulations! I've been Gluten Free for about a month now and the first week my anxiety went absolutely through the roof... must have been some sort of withdrawal I think. Since then howeer I think things have improved (certainly better than that first week anyway!!). I've also started taking Vit B which really helps. I'm hopeful for continued improvement Really pleased for you! Dont question WHY its happened... just be happy that it has
  4. Isnt it great when you have a positive appt with a doctor... finally!! Whereabouts in the world are you??? I'm sure others would like to know where this doc is:) Thankfully I'm also lucky to have a doctor who agrees with the link between thyroid disease, insulin resistance and gluten intolerance. My tests came back negative but he has still given me a letter to confirm that I am gluten intolerant.
  5. Thanks Mango - great advise there - I'll head over to the overseas section and try and find some helpful aussies there Much appreciated
  6. Wow that was some seriously fast replies ... thanks ever so much! Great detective work too, yes I am in Australia... Sydney to be precise and yes Roo is YUM! Nice and healthy too so all the more reason to eat it! The grills for the barbie were actually brand new, bought today so no worries there. Mango... thanks for the heads up regarding the labelling. I'm still not sure how this works though? Does that mean that EVERYTHING that is gluten free is labelled as such, or is it just that the gluten ingredients need to be listed? I'm still not sure what I should be looking for. Thanks again everyone - very very much appreciated!
  7. Hi Everyone! Just wanted to introduce myself as a Sydneysider My doctor believes I'm gluten intolerant so I've recently started down this path... still learning big time! Looking forward to learning loads here. Rach xxxx
  8. I've not been diagnosed as Celiac but my doctor is convinced I'm gluten intolerant... so I'm giving it a go. I've been Gluten free for 10 days. The first week I felt pretty bad... diaorhea (sp?) worse and anxiety also worst. Things calmed down yesterday and I started to feel much better but for the last hour I've been getting little cramps, I'm very windy and very bloated. I was hoping that someone here would be able to check what I've eaten today and tell me if theres anything you can see that I've made an error with. Like I say... I'm very new to this! Breakfast: Gluten Free Cereal with Semi Skimmed Pasteurized milk Orange Juice Lunch: Gluten Free Crackerbread with Cheddar Cheese slices Corn on the Cob on a stick with butter (bought at a market place... could this be it?) Dinner: Kangaroo Steak cooked on the barbie with Canola Oil Salad (lettuce, tomato, onion) with French Dressing Feta Cheese Mashed Potato with margarine Egg Gluten Free Mayo Orange Juice My problem is that when I check the ingredients I only know to look for 'wheat' 'oats' or 'rye' - what else should I be looking for? Any help or advice is really appreciated... big learning curve this isnt it?! Rach xxxx
  9. Great to hear that rebe thanks I'm still struggling today and just desperate to get over this stage! 8 days Gluten free now...
  10. I know that this is a really old post/thread... but I just wanted to hi-light this again. This has made me feel so much better today. I have been gluten free for a week now and my anxiety has been pretty bad the last 3 days. Reading this was exactly what I needed... thanks for sharing
  11. I cant help with the weight thing sorry, but just wanted to let you know that I also had Hashimotos (dont have a thyroid anymore!) and have recently been diagnosed with Insulin Resistance and Gluten Intolerance. I've just gone Gluten Free (6 days now) and I seem to have lost weight already. This could well be due to the fact that my Diarohea (sp?) has actually INCREASED since going gluten free though?!! I'm hoping this is just a withdrawal phase I'm going through and that things will calm down soon! Hows the weight loss going? Any luck yet?
  12. I feel your pain!! I've been gluten free for just 6 days, and today my anxiety was through the roof! My muscles feel weak, I've got brain fog and extremely irritable etc etc etc. I picked my husband up from work and while we were in the shops he said to me 'i think you need to have a lie down dont you?'! I couldnt get my words out properly at all (now this is nothing massively new for me as I get this every now and again, but today just seemed a lot worse than usual). I actually stopped at a junction and just sat there and hubby looked at me like I was stupid... in my head I was waiting for the traffic lights to change... but there werent any?! Hubby took over driving on the way home! Its hard to believe that going gluten free will help when you start off feeling worse. I'm so over this anxiety (been going on for 4 years now) and would love to just be 'me' again... the old 'me'. I've treated my thyroid, my adrenals and now we're onto this ... My bloods came back as negative but my doctor is convinced I'm gluten intolerant, especially given the fact I have had 6 miscarriages and have thyroid disease. I guess I should put my faith in him and keep at it. How're you feeling now ladycyclist?
  13. How did he get on? Hope things are looking up for him
  14. From what I've read, one week back on Gluten just isnt enough. You shouldnt have been put on a gluten free diet if a biopsy was scheduled so soon after. This is a snippet from the Coeliac Society of Australia: Do not commence a gluten free diet prior to being tested for coeliac disease. If a gluten free diet has been adopted, the tests used to diagnose coeliac disease will be unreliable, and may be falsely negative. If gluten has been removed from the diet, a normal diet must be resumed for at least six weeks prior to testing. During this
  15. Ah... now you're talking!! Thats something that I could manage... and I actually quite like doing stuff like that. Great tip thanks!!
  16. I dont doubt for some that that is definitely the best way forward, but for me, who has absolutely no discipline when it comes to cooking, and very little interest too which doesnt help, it would most certainly be a recipe for me to crash and burn very early on in this journey! I have tried for many many years to get myself organised when it comes to meals, but even with a 9 year old daughter, it doesnt enter my head to think 'what shall we have for tea tonight?' and for me to prepare it. I dont know what it is, but cooking meals just doesnt enter my head... I know I know its really bad... but I'm just being honest here! For me it is going to have to be lots of fresh fruit, veg and fish (nice and easy to cook) and then whatever else I can find that is Gluten Free. I've just eaten Gluten Free tinned spaghetti on Gluten Free bread.... GROSS!! I'll definitely be one of those who loses weight (although that certainly wont be a bad thing!!)
  17. Wow you're good! Thanks ever so much. I'm guessing its the norm for someone to lose weight when they first start this, because rather than eating the wrong thing... they just dont eat! I was starving yesterday because I didnt have a clue what I could or couldnt eat! Big big learning curve!
  18. Thanks - thats some really good advice. I messed up a little yesterday because I visited a couple of friends and have a drink with them. I didnt know what to say about having milk in my drink so I just went ahead with it! Am I right in thinking that milk has gluten in it (I told you I didnt have a clue!!). I bought Rice milk yesterday but thats going to take some getting used to! I'm actually quite looking forward to getting into this now. And starting to believe that my doctor has advised me to do the right thing. I'm a very 'black and white' person, with no 'grey' areas so I generally like to be told 'yes' you have something or 'no' you dont. Seeing negative results (in my head they are) and then him interpreting them as positive, is really hard for me. I did argue the case with him and got him to explain why he believed that their positive, but I cant for the life of me remember what he said!! haha
  19. Thanks Kathi Well when you look at my results, they are actually negative, but my doctor has interpreted them as positive (for GI not Celiac). Thats whats so odd. Oh you're kidding about the meat... thats just crazy! I seriously dont have a clue what I can or cant eat at the moment - I've not long gotten back from the super market and have pretty much bought everything that had 'GLUTEN FREE' labeled on it, just so that I knew for sure!! haha Seriously... dont have a clue! Guess I'll learn pretty fast though!
  20. Thanks again Nora... jeez I've got a lot to learn! I've only just got my head around Thyroid and Adrenals, and now this!! Think my head might explode soon! Appreciate your time
  21. Thanks Nora... I'll have a look for Dr Ford... I definitely need all the help I can get with this because my first day of gluten-free today and I dont have a clue what I'm doing!! haha Arent the tests I've had done, the ones you've mentioned then?? Gliadin IgA Abs: 6 U/mL (0-20) Gliadin IgG Abs: 5 U/mL (0-20) tTG IgA/IgG: 4 U/mL (0-20)
  22. Hi Nora The only tests I've had done are the 3 that I've quoted... I'm so new to all this sorry that I dont know what any of those mean? Is the tTG IgA the total?? I didnt have my Vit D & B12 done this time but last time they were done was in the middle of summer (Jan this year.. I'm in Australia) and they were: Vit B12: 308 pmol/L (145-637) Vit D: 94 nmol/L (51-140) I showed these to the new doc and he said they were ok but would expect the Vit D to be a lot lower now (given that its the middle of winter). I also take 2 x 600mg calcium per day. These tablets contain 200iu Vitamin D3 to help with the Calcium absorption - I was taking these at the time of the Vit D test (if this makes any difference?!!) Thanks for taking the time to reply - really appreciate it! Rachelle
  23. What a great reply.. and you are absolutely spot on with everything you said. Before my results came back my doc said 'you're gluten intolerant and I'll do a test to prove that'... he then said, and becasue of your previous Hashimotos and Gluten Intolerance, you are at risk of Insulin Resistance... spot on! He also said that as the supplements kick in, (I started multi B Vit yesterdy, and I'm almost scared to say this, but I think I already feel a difference!) and I've got a hoard more due to arrive next week, hes hoping to wean me off Hydrocortisone (which I'm taking for exhausted Adrenals) and said it is VERY likely that my thyroid meds will reduce. At the moment I keep ramping up my thyroid meds and its making no difference whatsover... I feel no different now that I'm on 180mg thyroid, to how I felt on 90mg. Doc says this is because my body is not absorbing the nutrients, and so it cant do its job with the thyroid meds... so its not getting to the cells. Hes not concerned about the insulin resistance at the moment as he believes that the Gluten Free diet, and the supplements will fix that. I saw a previous thryoid specialist who also told me to go Gluten Free, and said that testing for it is pointless because the tests are so unreliable. Sadly I chose not to take her advise... this time I will! There are so many twists and turns to this arent there? Thanks for your reply - I really needed you to put that all back in my head. I had the negative stuck in my head that he was just a doctor who believed in Gluten Free, but you're right... hes linked that to all of my other conditions.
  24. Thanks rubyred Yes I'm pretty sure my doc just classes everyone as Gluten Intolerant, irrespective of the test results. But, if it fixes me then its all good I guess! I really need to get my head around this though because my eating habbits are pretty shocking! Need to start planning more I guess! Glad to hear the change went well for you!
  25. Thanks evo You are all right. I have nothing to lose by trying gluten free, so I'm going to give it a shot! Why I feel that I have to justify it by having a diagnosis I have no idea! I think its because I feel people see me as some sort of hypachondriac, but I'm not like that at all... I just want the 'OLD ME' back! I've just been speaking to a friend of mine too whos 9 year old daughter has just been diagnosed with ADHD - when looking through the symptoms here it matches her amazingly... so, shes also going to look into Gluten Free for her family! I'm off shopping with hubby this evening so we can stock the cupboards full of Gluten Free food
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