wera9666
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by wera9666
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ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 replied to wera9666's topic in Dermatitis Herpetiformis
Received a positive skin biopsy result last Friday. No more guessing and that is awesome. I never wanted to get a positive medical test in my life before now but I'm quite pleased and that's i little creepy. I'm off to gluten free land for the rest of my life. -
ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 replied to wera9666's topic in Dermatitis Herpetiformis
I am very fortunate because I live about 20 min from the University of MD Center of Celiac Research and my Dr is Dr Alessio Fasano who is one of the world wide experts on Celiac and DH, so I gotta trust he's right. I think the logic behind the challenge is this; while I'm gluten free I take 100mg Dapsone/day to control my skin outbreaks until my diet takes... -
ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 replied to wera9666's topic in Dermatitis Herpetiformis
I'm now starting to break out after a couple weeks into my gluten challange. Scheduled a biopsy for next week, so we'll see what happens and go from there. I do think it's unlikely that this is something other than DH but my Dr wanted to try it. Thanks -
ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 replied to wera9666's topic in Dermatitis Herpetiformis
Thanks. I was 9 months gluten-free when taken off Dapsone and there was zero improvement in my skin, none. But, like you, I have seen improvement in some other areas like painful joints, GERD, etc. I do actually feel better other then my skin. I have not tried excluding any other foods. My Dr came up with DH in just a few months and is still convinced... -
ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 replied to wera9666's topic in Dermatitis Herpetiformis
Thanks. I've been checking out the fourum from some months now and it's been helpful. I have had both biopsies and blood tests but because I was getting frustrated with how long everything was taking, I went gluten-free on my own and all my tests happened after that and all were negative. It was probably two-four(ish) weeks gluten-free when I had my blood... -
ARCHIVED Exact Symptoms Of Dh But Not Dh, What Is It Then?
wera9666 posted a topic in Dermatitis Herpetiformis
So my Doc is now questioning if I have DH because I have been gluten free since October but when I went off Dapsone my skin went crazy. All of my tests have been negative but I went gluten-free before I started them. My symptoms for DH are 100% on the money. I am starting a gluten challange soon where I will reintroduce gluten while still on Dapsone. ... -
My DH flaired up for the first time in 6/09. After several Dr trips DH was mentioned to me for the first time 09/09. Although my blood tests and biopsies are all neg, my derma Dr and Dr Fasano at the UMD Ctr for Celiac Research are 98% on the diagnosis. I have lived strictly gluten-free since 11/09 and have taken Dapsone now for about 5-6 months. The...
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In May I was returning from a business trip in Bermuda (I know, pretty sweet) and noticed on the plane that my elbows had broken out with lots of what seemed like pimples. I work in lots of medical and research labs and figured that I just put my elbows in something nasty and was having a reaction. Well it didn't go away so I went to my general Dr and then...