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Everything posted by leecindy417

  1. I have had my son on a gluten free diet for two weeks. He does not have Celiac but instead a possible gluten intolerance. For the past two days he has been telling me his stomach feels weird. Has anyone experienced this when starting their gluten free diet?
  2. Wow! Thank you so much for all the information. What a help. It's the little things you can't really research on the computer that bug me. Like the toaster, peanut butter, jelly, etc all being separate. I really thought maybe someone could be a little bit celiac so it is good to know that is not the case. If you think of anything else you want to add please feel free to email me anytime. The more information I have the better. After our meeting with the pediatric GI doctor this Monday I am hoping to have more answers from him as well and begin the diet once and for all. Thank you again.
  3. Thank you so much for the reply. I will definitely try the web sites you suggested as well as the nutritionist. I did find it odd that our pediatric GI doctor never recommended a nutritionist. To tell you the truth I would change doctors if I could but he is the only one in the area. We live about ten minutes outside Albany, NY and Albany Medical Center is a hopsital known for its great reputation. He preactices out of Albany Medical Center. This guy called me with the biopsy results said to do a gluten free diet and he would mail me a packet of information. I waited for the packet before starting the diet figuring it would have useful information. It was a print out of a web site I had already been to! There was never even follow up scheduled. My husband and I now have a meeting scheduled with him for Monday to get more answers. The next closest pediatric GI doctor is Boston, MA. which is a five hour drive for us not to mention the wait to even get in to see one of the doctors there.
  4. I am so new to all this and completely lost. If the doctor believes it to be celiac disease why would he put him a on gluten free diet? You are telling me celiac is not an allergy to gluten. Why the diet then? The biopsy showed acute and chronic inflammatory cells that he did not pick up on during the procedure and supposedly are not supportive of a celiac diagnosis. Could it be something else they are missing?
  5. I was under the impression the villi had to show signs of damage in order for there to be a gluten allergy. Is that not the case?
  6. I am new to all of this so please forgive me if I come across the wrong way. If you know your child has a gluten allergy and you know what the consequences are going to be then why do you allow them to have it? My son was recently diagnosed so you will most likely see me on here asking pretty silly questions. Thanks for understanding.
  7. Hello. My eight year old son has had some issues with not being able to hold bowel movements. If we are out and about and he has to go I have a two minute window to find a bathroom for him. If we are not able to get there quickly he has accidents. We went to a pediatric GI doctor who did some blood work. He said the one test came back normal while the other test also came back normal but higher then he would have liked to see. He then did a small intestine biopsy. To this he said: The biopsy looked normal but there are chronic and acute inflammatory cells that he should have been able to see during the biopsy but could not. He also said this usually is not present in celiac disease. After telling me this he then said we are going to treat it as celiac and go on a gluten free diet. Can anyone tell me if they have had similar findings in their biopsy? I would take him for a second opinion but the only other pediatric GI doctor is in his office and not available for six months. Please let me know what you think about this. One more thing. About two months ago my son was doubled over in pain or currled up in the fetal position and puking a yellowish bile. This lasted about four hours - at home, in the car, on the way to the doctor, in the doctors office, on the way to the hospital and while in the waiting room in the hospital. The pediatrician sent us to the hospital and was under the impression he had blockage in his bowel because he could not hear movement. When they put him on the table to do the ultrasound something happen and he was absoltutely fine. They found nothing wrong.
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