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realmaverick

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by realmaverick

  1. realmaverick
    Interesting. I guess it just shows how much misinformation there is out there. This topic in particular, is proving very difficult to know what is true / false and which is out of date. Hmm
  2. realmaverick
    I'm not sure how popular this article is, but somebody over at another forum linked me to it. Sorry if it's old news! It give me a wealth of knowledge, that I didn't previously have. Despite tens of hours of reading about Celiacs. It explains what autoimmune disorders are, their possible causes and the links with the gut and even explains why we're sick,...
  3. realmaverick
    Tonight, I am finally convinced that nightshades, particularly potatoes, are bad for me. The past two times I've eaten them, I've monitored my reaction. Within a few hours I crash, big time. I feel a sudden need to sleep, I put my head down and I'm out. Usually I struggle like hell to sleep. I'm going to avoid nightshades and see how I go.
  4. realmaverick
    Thanks guys My current doc is just a GP (general practitioner). He's not mad any referrals and is extremely unlikely to, until I get to the bottom of this myself. Or at least have some good leads. I was talking to a friend last night, who has lupus. She's convinced I do too. Largely because of the massive sensitivity to fluorescent lights I have...
  5. realmaverick
    Hey guys, hope you're all well and excited for Christmas! I'm now 3 months in to my gluten free diet. I'm still suffering with brain fog, terrible fatigue, sore eyes. These are the issues that bother me most, as they're 24/7 and have been for over 15 years and it's really driving me nuts. My Dr sucks, he was reluctant to do any tests. I'm not sure...
  6. realmaverick
    I also feel I've been hugely held back by mental issues. I've always had issues with anxiety, brain fog and mental exhaustion. I did fine at school and despite getting good grades, not as good as they should have been. I've always felt, despite being successful, that I'm under achieving due to issues with my mind. I find it near impossible to focus, my...
  7. realmaverick
    Great that your friends enjoy your cooking. Though given the choice, I'd never buy or eat a gluten free alternative. In my experience, they are packed with sugar, to take away the odd tastes of the alternate flours etc. Never tried home baking, as I'm certain it will taste just as bad or be equally as unhealthy. I would however love to try yours!
  8. realmaverick
    I would advice you not to concern yourself with CC at this stage. Going gluten free, is enough stress to start with, without adding in extra complications. Avoid gluten, read labels properly, eat healthily. If you randomly get more sick, then maybe consider CC. I don't give a hoot about it right now. I hope I never have to. I don't want to live...
  9. realmaverick
    JDA7876 I'm definitely up for trying it. Thanks for the tip. I've not heard of ginger as an energy aid. I miss ginger biscuits
  10. realmaverick
    This is in some ways, a bit of a pointless topic. As I'm not asking for help or offering help. Though maybe it could act as encouragement to those at a similar stage to me. Today, for the first time in AGES, I've had a good day. I feel well enough to work, I'm actually pretty focused and getting stuff done. It feels great. Still tired and certainly not...
  11. realmaverick
    Thanks guys, I feel much better, knowing my symptoms were quite typical.
  12. realmaverick
    No, those were not checked. He didn't check free T3 or T4 either. Nob. That was my experience exactly. I had a little gluten last week and ended up with D and terrible cramp. Since the big mac, I've not been to the toilet. Even after I had a Costa Latte, which usually makes me need the toilet within 10 minutes. Crazy.
  13. realmaverick
    I read the title, "5 guys, anyone been there" and thought perhaps I was on the wrong forum. I'm guessing it must be a US thing. haha
  14. realmaverick
    Thanks Mushroom, though I feel reluctant to ever go back to the Dr's again. I think I'm going to go private. Iynnelise, you're right. I accidentally eat gluten in a sauce, and within an hour I was in agony and had terrible diarrhoea. I figured eating a whole big mac, would be such a big dose I'd be a lot worse. All so confusing.
  15. realmaverick
    Hi Patti, I do. But apparently my B levels and Iron are OK. But I take B vits, Multi vit, Iron, Fish oil, Pro Biotics, digestive enzymes. Googling makes me feel like a hypocondriac. But I was just researching adrenal fatigue. Which I suspected because when my adrenaline kicks in, before a race, exam or whatever, my arms and legs go numb and I feel extremely...
  16. realmaverick
    Thanks guys for the replies. From what I can find online, Biocard is very accurate. As accurate as the lab tests. Elimination diet I stopped, as I just wasn't eating. I figured it was healthier to at least eat. I'm still gluten free, minus the Big Mac. I have been tired now since I was 13-14 so we're talking 16-17 years. I struggled all through...
  17. realmaverick
    I've just been reading a little on thyroid. Apparently it's possible to have a normal TSH reading but still have issues. Secondary hypothyroidism etc. But I'd need to get my other levels checked. The stupid, darned, idiot of a Dr, should be working a little harder with me, to find out why I'm exhausted to the point I cannot work. I could cry right now...
  18. realmaverick
    Hey guys, As some of you will know, my Dr sucks and after a negative test for Hypothyroidism, he didn't want to test for Celiacs. So I did 2 home tests with the Biocard. Which is the same procedure that most labs will use. Both tests were positive. The tests, test for gluten antibodies in your blood. If you have them, I cannot see why other than celiacs...
  19. realmaverick
    Thanks GFinDC, I've never tried eliminating Soy. I guess I should, as it's high up there! I will check for soy, in the stuff that's currently in my fridge.
  20. realmaverick
    Thanks Chelle, I appreciate it. Will check the gravy out. Mushroom, would you mind telling me how you feel when you eat potatoes or potato starch? I don't know what to look out for. Julie, do you know if the blood tests are accurate? I don't mind paying privately if they work. Thanks everyone
  21. realmaverick
    Another update. The bread I eat, had potato starch as one of the main ingredients. Which got me thinking, to the cakes I eat yesterday, also contain potato starch. Each time I eat potatoes I get hypoglycaemic type reactions. Maybe they are an issue with me. Gosh.
  22. realmaverick
    Just to add, since eating the cheese on toast, shortly after I feel completely and utterly wiped out. Writing this, I'm sweating and feeling like I'm gonna fall asleep. Brain fog is immense. *sigh*
  23. realmaverick
    Hi Mushroom. My Dr said my Iron levels are at the bottom end of acceptable. 20 something or another rings a bell. But he said my blood count was good. He didn't test for anything else. He felt there was "no point". Grrr I feel really pissed off with him atm. I actually did a home test for celiacs, as again, he didn't believe I could have celiacs. I...
  24. realmaverick
    Thanks Loey, I'm eating veggies. I'm also back on dairy. I don't think I have a problem with it. I just had a piece of cheese on toast, using gluten free bread called Genius. With the cheese on, it was really quite nice. I had some fries earlier, for the first time in 5 days and I felt sick half way through eating them. So perhaps potatoes are a problem...
  25. realmaverick
    Hey guys, thanks once again. Sorry I've not replied properly, my brain fog is currently horrific. I spent several days avoiding nightshades and dairy, as they were two possible reasons why I might still be feeling so tired. Yesterday I woke up feeling my normal, tired self. Nothing out of the ordinary. I eat chicken and nothing else but foods very...
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