I found out i had celiac about two and a half years ago but i have never met anyone one with the same symptoms as me aside from my sister and other relatives.an im curious to see if anyone can relate.
when i first started reacting to gluten i was about 20 and my lips, eyes, feet, or hands would begin to swell inexplicably and occationally I would have severe stomach pain that i can compare only to labor contracctions. at first i took zertec thinking i had an allergy to something in the environment but i eventually relized it wasnt helping. i ended up seeing a number of doctors and specialists untill I spoke with a dietition at a hospital in Boston who suggested i be tested for celiac. it was difficult to persuade a doctor to intertain my concerns about celiac because apperntly not many doctors are familiar with the disease in Georgia. I began a gluten free diet immediately and eventually i was finally tested and diagnosed.
almost immediately after i had begun a gluten free diet the stomach pains, swelling and hives stopped alltogether. and dispite being diagnosed as infertile by numerous doctors my husband and i became pregnant right away. during my pregnancy i occationally talked to a dietition who advised me that the pregnancy may change my chemical make up and i could possibly be able to consume gluten without complications. for the first 7 months I stuck to my rigid gluten free diet but during my last few months i became a little lax and by the end of the nine months i was eating whatever i wanted with no side effects, I thought for sure i was cured but after i delivered I went back to a mostly gluten free diet. and i had no more reactions untill just recently when i stopped nursing my son.
for the last month i have been back to my rigid no gluten diet but just two days after i stopped nursing i woke up with my whole body covered in large red hives, i had never had hives this bad. the hives even wrapped around my neck and on my face and scalp. they lasted bout three days and then i began to swell as well. its been about two weeks and everyday I wake up with new hives and a severely swolen body part. today my feet are so large I am un able to walk and yesterday my fingers were so swolen i couldnt even manuver them to pick up my baby or complete ordinary tasks. along with the edema and hives my stomach is in a constant state of pain.
I really wish i hadnt tested the waters now Im afraid that i will suffer from these extreme affects forever. my sister has a theory that all the gluten that i had consumed while i was pregnant is just working its way out and after my system is clean again i will be able to control my reactions with diet alone.
Im so depressed , has anyone expeirenced anything like this? or am I alone?