Molly R

Ditto. I also tolerate bananas much better now, if they are cooked. Just an unscientific theory, but maybe I'm much more careful now and that's why they agree with me lately. I say that because, since going gluten free I have become ultra careful to be sure that food is not only free of my personal offenders & cross contamination, but also free...

You are so right. Same with me, positive for the gene but negative on blood and biopsy. In the same breath where she declared that I am not classified as having Celiac disease, my doctor (who is gluten sensitive herself) warned me to stay away from gluten in any form if I want to stay well.

Just a thought to keep in mind that what you tell doctors goes into their notes, and that information follows you around through the Medical Information Bureau. The data in MIB is shared by all life, health and disability insurance carriers-It helps underwriters determine how much people pay for coverage. When u apply for insurance, they get your medical...

Thanks so much for the reply! Not confusing at all! I think I'm getting the hang of it.

Info in this thread is so helpful to me. I am new to all this and have been a bit confused since I tested negative to celiac disease thru blood testing and biopsy, but a stool sample showed I am gluten intolerant from one of my parents. My symptoms are all neurological, but after reading all of this I'll be doing much more reading up on how someone can...

I'm pretty new here but have been reading a lot of these posts. I have been tested (blood and biopsy) for celiac and both were negative. But a stool sample shows that I am gluten intolerant. Appears one of my parents passed this trait on to me. I have been VERY strictly gluten free for the past two weeks, and feeling the effects of withdrawal, so I know...

Glad to hear that this withdrawal phase won't last too long. I'm just a couple weeks into it and fairly miserable. Just keep reading the posts here and know I'm not alone keeps me going.