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ciamarie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ciamarie

  1. ciamarie
    When I saw asthma, I thought you may also have an issue with sulfites (which is a type of preservative / food additive). Also, if your digestion is having issues due to ncgi or celiac, etc. then sometimes raw fruits and veggies can cause problems. They're a bit harder to digest. Same goes for chickpeas, they're higher in fiber than other beans. Also,...
  2. ciamarie
    I can't add anything to mushroom's excellent answer, except my own opinion would be to possibly challenge long enough to get a dermatologist biopsy for DH, but forget trying to get a biopsy by GI. I suspect if you try to go the GI route, you'll be one very miserable person long before enough intestinal damage is done. Especially since you said when you challenged...
  3. ciamarie
    I've actually been doing pretty good, thankfully! Even itching behind the knees is a rare thing for the last couple of weeks. I think I may be absorbing iodine better. For salt, I've been using the Morton canning & pickling salt. It has NO additives, not even for anti-caking. I quit sea salt for a while, went back to it for a bit and think I had some...
  4. ciamarie
    +1 And I'll add, Happy New Year. Y'all have made this past year much easier. And I'll take any prayers for improvements in finances in the new year, if you're the praying sort (I am).
  5. ciamarie
    Part of the answer depends on whether you'll be using an all-in-one gluten-free flour mix, or buying individual flours. I usually stick with rice flour, tapioca starch / flour (in the case of tapioca they're interchangeable terms) and buckwheat. I'm going to be trying millet flour soon too. At any rate, starting with a mix like Pamela's might be the best...
  6. ciamarie
    That's very interesting... I haven't priced it for the last year. The supply I have should last a while, since I now use psyllium husks powder more often. Hopefully they don't decide to start using that instead.
  7. ciamarie
    My favorites are the ginger snap mini's! The ones you got have soy lecithin, don't they? It's been a while since I got that flavor, they are pretty yummy. Good find...
  8. ciamarie
    I haven't yet attempted a gluten-free pie crust, though I have made a sort of shortbread crust that managed to hold together. I've been using psyllium husk powder in my baking and pancakes rather than the guar gum I had been using, since I'm not using any starches. Guar gum makes some things like my double-recipe flatbread gloppy but psyllium husk powder...
  9. ciamarie
    Hi, welcome to the forum. Yes, if you have DH then you have celiac disease. I think it's wonderful that you found a dermatologist that suspected DH and did a biopsy -- apparently that's a rarity. I hope he did the biopsy from skin right next to the blister and not directly on it? As to your question about being dx later in life, it's not uncommon; especially...
  10. ciamarie
    For some of us, yes. I also had to cut out MSG and all the msg 'alias' ingredients I didn't know about, as well as sulfites. Some folks on here had to go with low salicylates, so we're all a bit different. If or when you go low iodine, don't cut it out for more than maybe a couple of months? I'm not an expert... but it is a necessary mineral. As we heal,...
  11. ciamarie
    Hang in there! It does get terribly frustrating sometimes, but you'll get through it. My non-expert suggestion would be to eat what you can, and if that means only eating meat and possibly rice for a few days, then do that. When you say you may have problems with rice, is that brown rice, white rice or both? Brown might be a bit harder to digest, however...
  12. ciamarie
    I've seen several people on here mention that they were positive on biopsy, but negative on blood tests. Also, if you have or can get the actual blood test results with reference ranges, etc. and post them here some of those who are more familiar may have some input. In particular, it would be good to know which tests were part of the 'panel'. And welcome...
  13. ciamarie
    My suggestion would be to eat only unprocessed foods, because it may be some additives that are causing you some of the problems. And keeping a food diary is probably a good idea too. If you have veggies, make sure they're well-cooked. Also, it may be something like soy or dairy is the culprit, so go a day or 2 or a week without either of those ingredients...
  14. ciamarie
    Actually, I had a rash on the back of my upper arms ever since I can remember, and I don't recall if it used to itch, but basically it didn't. However, about 2-3 months after starting a gluten-free diet, the back of my arms are clear! No rash! I didn't expect that at all. They were basically small red bumps, and didn't seem to grow larger or smaller...
  15. ciamarie
    I've been using Yerba Prima psyllium husks powder, here are details on their site, but I got it in the natural foods section of a grocery store: http://www.yerba.com/storefront/item.asp?id=57 It doesn't specifically say it's gluten-free but I've been fine with it, afaik.
  16. ciamarie
    It may be part of the healing process, I sometimes get random itchy spots for no apparent reason. However, they itch for a few minutes or maybe the afternoon / evening and then they're gone. On the other hand, I quit drinking almond milk and similar items long ago, due to the carageenan and natural flavors since I noticed MSG type additives as well as sulfites...
  17. ciamarie
    I found 2 pages that gave me nutrition information (calories, etc.) but neither had the ingredients for this yogurt. I avoid all except plain yogurt due to 'natural flavors'. They may or may not be gluten-free, but they likely contain free glutamates (i.e. very close to MSG) which bother me. I recently found a plain yogurt that I used to like, turns out it...
  18. ciamarie
    I have also heard (read) on here, that those with DH are less likely to test positive on an endoscopy biopsy. That's part of the reason some with DH or suspected DH try to get that diagnosed instead, though even that can be difficult. I agree with Lisa.
  19. ciamarie
    Here's a long article about the movie: Open Original Shared Link I haven't read the whole thing, but apparently the science in the movie is sometimes sketchy. And here's an article that has tons of links to other articles that discuss the bad conclusions drawn by the vegetarian crowd in relation to The China Study, which is apparently at least part of...
  20. ciamarie
    In addition to all of the above, as if that weren't enough... be sure to clean off the handles and the area around the handles on your kitchen cupboards and drawers. Especially the ones you may have previously opened when you were cooking with gluten.
  21. ciamarie
    I've discovered I also have to avoid sulfites (and msg), and one of the things some of the items on the sulfite 'avoid' list do to me is make me very tired, along with brain fog. I'm basically not taking any supplements except liquid iodine drops that only have purified water as another ingredient. I sometimes take a magnesium supplement, and I have a couple...
  22. ciamarie
    Since I'm one of those Linux / opensource 'geeks', I've been using something called Zim wiki and there's a windows download link available here: Open Original Shared Link Before that I was using Red Notebook which is available here: Open Original Shared Link I've been keeping 2 weeks' worth of entries on 1 calendar page, with the date and then how I...
  23. ciamarie
    I don't know what your diet is at the moment, but I wouldn't rule out it still being a diet issue as others have noted. 2 things I thought of when reading your post were either A.) Nightshades (i.e. potatoes, all peppers, tomatoes) or B.) GMO foods. In the genetic roulette movie, it showed that some doctors prescribe a GMO free diet and get good results....
  24. ciamarie
    I would also suggest that you get printed copies of all test results, and reference ranges for the blood tests and post them here. Those who are knowledeable about such things will help decipher them. It's possible he's on the border line, or it shows 'equivocal' or something like that, but it could easily be a positive when taken with the biopsy results...
  25. ciamarie
    It's allegedly a Republic, not a democracy! Sheesh. At any rate, we have mail-in voting in Washington state, and we can also drop off ballots at most local libraries to go into a special ballot drop box. I dropped mine off yesterday, and lots of other people were doing the same. Given the potential fraud with the electronic voting machines, I think mail...
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