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JLK

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JLK

  1. JLK
    Mucus is usually associated with a Candida overgrowth of the intestines. Candida takes advantage of our gluten-damaged insides and shifts growth forms from yeast-like to fungi-like, with mycelial extensions that work their way into and between our cells like roots, causing further damage. At this point, with a damaged small intestine, Candida becomes systemic...
  2. JLK
    No one has chimed in from the other side so I'll speak first for celiac with chronic constipation. All my life, hard poops and hard to poop. Pellets of varying size without odor. And I would fart maybe twice a year. When I used to drink coffee (all my adult years up to 3yrs ago), it was a stimulus for trying anyway! Much better once I went gluten-free...
  3. JLK
    Well, nogluten!, I have fennel growing in the backyard so that's easy enough! What enzymes did you take and how long before you were better? What were your symptoms? I am operating under the assumption that I must have an intestinal dysbiosis and a candida opportunistic overgrowth... Thanks, Judi
  4. JLK
    I found these pictures particularly helpful. Open Original Shared Link I have been lucky with this manifestation of celiac. Only 2-3 small blisters on my legs (maybe just my right leg -- wasn't paying close attention earlier on) that have come and gone over the summer. I thought they were insect bites until recently, even though I had never been bitten...
  5. JLK
    Well folks,I think this is just a matter of semantics; same phenomenon but at what degree does it get called celiac instead of gluten intolerance, or subsequent leaky gut? I think the disease is a spectrum from people with no symptoms and no damage (haven't had a triggering event yet), to people with no symptoms but positive biopsies (the gold standard...
  6. JLK
    Making an assumption Rachel. I don't have insurance for any testing right now. I know I am gluten- and casein-intolerant with additional food sensitivities which I developed over the past few years. I think he was making his Dx based on my history. My doc believes everyone is gluten-sensitive to a degree, whether they notice it or not because gluten is...
  7. JLK
    I just got home from the dr. He says that I am definitely gluten-intolerant and that everybody is and if I were celiac, we would've known before now. He says further that I have leaky gut syndrome, finally recognized 2 yrs ago by the medical establishment. He wants me to do a month long elimination diet and cleanse. Most of the diet recommendations I already...
  8. JLK
    Like Stephanie, I use the Giovanni hair products and Seventh Generation cleaning products. I was using Aubrey Organics on my hair but had to switch recently because the conditioners all have wheat germ oil. Shampoos are OK and smell wonderful -- my aromatherapy I really like the Aubrey Honeysuckle Rose Shampoo, and Passion Fower and Morning Meadow Ultimate...
  9. JLK
    Thanks nogluten!, I see my family doc tomorrow and I'll at least find out how much the testing costs. I don't have health ins right now so I am flying blind with the nutritional approach! Calcium and Vit D are of concern since I am intolerant of casein as well. Anyone know of good non-dairy sources of calcium and vit D? I drink wine diluted 1-1 with...
  10. JLK
    Gotta say I am still confused about this yeast question. So I did some internet research and I am currently reading The Gluten Free Bible by Jax Peters Lowell and I'll quote first from the gluten-free Bible: "But an accident is just that and they happen to all of us. Many years ago, before I had the hang of the diet and knew better, I decided it would be...
  11. JLK
    Mariann, yeah, I can see the problem with being a celiac and trying to follow the BTD as an A. I am an O and what is recommended for me is lots of meat and veggies. Gotta say though, with the gluten issues now, following the BTD too is very restrictive. I am so scared I'll hurt myself further if I eat a BTD "avoid". As I have said in another thread, I do...
  12. JLK
    Danceswithwolves, I too am new to this gluten-free diet but I have been following Dr. D'Adamo's Blood Type Diet for about 2 yrs now and I have learned a few things about making healthy food a bit more convenient. There is a thread entitled "Food Questions" where you will find some great suggestions--in addition to mine! LOL! Forgot to mention papadums...
  13. JLK
    Hi everyone, Thank you all for the suggestions! I had a few questions in the old thread that didn’t get answered so I was wondering if anyone out there could address them? I copied and edited one of those earlier posts below. Thanks- Misskris, I had not considered candidia before but it makes sense and I have had a canker sore for over a yr and a half n...
  14. JLK
    Corrine, I would hazard a guess that if a post goes unanswered it may be due to a high volume of traffic on the board so that the message gets "lost" under new or continuing threads... Many folk on these forums don't have a great deal of time when they sit down to the computer, and may not look at posts three or more pages down. You needn't worry...
  15. JLK
    While I don't have three kids at home, I do have a gluten-eating husband. He makes it easier on me by usually eating and cooking gluten-free meals we can share--his snack hardly ever make my mouth water anymore! I too make large batches of rice and the gluten-free pastas, cook meat ahead of time to have at the ready--never goes bad. Most of what I eat...
  16. JLK
    I have suffered with this problem all of my life but it has been much worse the past few years. I "solved" the problem with a two pronged approach I use 2 1/2 tablespoons of whole flax seeds soaked overnight (at least 6-8 hrs) in pineapple juice, which I drink first thing in the am [yes, it looks gross, but just tastes like juice! Have to keep stirring...
  17. JLK
    Thanks Holly. I thought I was gluten-free, thought I was getting better. Now I realize I've been getting gluten daily from Hornsby's cider--stopped drinking it last week or the week before? Stopped using hair conditioner with wheat germ oil last week. Hunting down other sources; cat treats, one flavor of Nutro dog food (others OK), suspecting everything...
  18. JLK
    Here's a start for anyone with similar questions. This link takes you to a compilation of gluten-free medications with contact information. Nasonex is gluten-free and namebrand, Purdue Pharma, Oxycontin is gluten-free but I still don't know about the generics. Open Original Shared Link Something has kept me up all night. I thought I had just finished...
  19. JLK
    Thank you all for the suggestions! Misskris, I had not considered candidia before but it makes sense and I have had a canker sore for over a yr and a half now. I realize cankers are thought to be caused by viruses and candidia is a yeast but why would just one "arm" of my immune response be challenged?! Is there an easy way to determine if one has systemmatic...
  20. JLK
    Hi Grantschoep- Yeah, I think I'm going to have to "inconvenience" my pharmacist. Hopefully I'll catch her in a good mood! They are so busy at this location... I could drive to another pharmacy I have used, but why should I have to drive another 20 miles just to be assured courteous treatment? Thanks for the suggestion/encouragement. I have to start...
  21. JLK
    Hi all, I am trying to figure out he sources of hidden gluten in my life and am now thinking my Rxs might contain some. I can't get in touch with the manufacturers, guess I'll just keep trying, but in the meantime, if any of you know... I take Nasonex (always namebrand, Schering, generic not available yet), and oxycontin (both generic--Malin or Endo...
  22. JLK
    Thanks Kaiti for the welcome and for some answers. And anyone who has gluten sensitivity has had it tough over the years However, I do envy all of you out there who were diagnosed early in life. The more health issues one has, the harder it is to figure out every deleterious contributor, like gluten! Another way to look at it is "how many of my health problems...
  23. JLK

    ARCHIVED Anger

    JLK replied to swittenauer's topic in Coping with Celiac Disease

    Thanks Stephanie, It certainly must help knowing one's genotype and knowing the genotype is correlated with disease. All the questions and worry along the lines of "what's wrong with me?!" can be put aside. Knowing with certainty solves so many problems. I am very interested in the genetics and will contact EnteroLabs for some information. Do you have...
  24. JLK
    Hi everyone, [i started this as a response under the topic Replying to Weird Question, the bloating and frequent urination topic, but after typing so much I thought it best to start a new thread.] Soooo, I am not alone with this frequent peeing and it certainly could be related to my body's attempt to rid itself of the gluten. I have always been a frequent...
  25. JLK

    ARCHIVED Anger

    JLK replied to swittenauer's topic in Coping with Celiac Disease

    Steph, What do you mean by "I have one of the neurological gluten genes"? Do you have peripheral neuropathies? Could you explain the genetics? I am definately gluten sensitive and have been gluten-free for about a yr...but I guess that doesn't count much since I am still figuring out the hidden sources of gluten getting into my system...and other food...
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