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clevercate

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  • kathryn md
  • Kamma

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  • Arslan

    Arslan

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  1. Hi Kathy, It's been awhile since I saw your post back in April. I meant to comment back then but I've been so overwhelmed by this whole gluten business that I had to step back for an emotional breather. Now I feel I'm ready to get back into the game! Firstly, how are you doing? Everything can change so often and so fast with having gluten ataxia...
  2. "Gluten-Free New York" I'm sorry to have to say this but I had a terrible visit at this store. Could be that the gal there was having an off day, I don't know, but my time there nearly spoiled mine. I had heard such good things about the store too. My story-I have GLUTEN ATAXIA- quite rare, my brain is damaged by gluten and I must stay away from all cereal...
  3. Hi all, I'm a newbie to the forum. Right now I am doing my " homework". I've been looking for safe -to-eat mixed nuts and found this: Open Original Shared Link "We are Certified Gluten-Free by the Gluten-Free Certification Organization (GFCO). The GFCO certification meets more stringent requirements for gluten-free products than federal guidelines...
  4. Hi everyone, I realize this is an older post, but I am newly diagnosed with gluten ataxia. I love Nutella and am "doing my homework" to make sure that, besides having gluten free ingredients, there are no issues of trace or cross-contamination gluten in their manufacturing process. This is the reply I received from them today: Thank you for your interest...
  5. Hi Kamma, So pleased to hear back from you (and a big thanks for the Edit. link , so useful and I hadn't found that site yet...). I am still fairly mobile ( use public transit, walk almost every day...) and intend to stay that way. I believe one of the reasons I may have stayed mobile is that I "use" it each day , including physio exercises for strength...
  6. Kamma & Co. I'm so interested in reading ALL of these comments. I'm new to this forum, a brief bit of history. Although I was diagnosed with sporadic ( idiopathic ) spinocerebellar ataxia in 2004, I've always felt there was more to my conbdition than just the " sorry, there's nothing we can do for you. Go home and don't worry about it " ( an actual...
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