par18

This has been my position exactly since I was diagnosed over 3 years ago. If a person does the gluten-free diet correctly only a couple of things will happen and none will be bad. One it will work, two it will not (and then it is on to your plan B without money spent on testing ) or three it will help to the extent that if something else is wrong it may allow...

I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your...

I read an article last week when I did a search on Celiac and golf. It concerned a young woman from Australia named Sarah Jane Kenyon. She is gluten intolerant and explained how she must prepare in advance things to eat while competing abroad. She mentioned how many more gluten-free choices were available back home as opposed to the US. Has anyone there heard...

I was in the same position when I started the diet. We had a pretty expensive toaster and I decided to try to clean mine. I used an air compressor and completely blew out all four slots with the bottom removed. Only gluten-free bread was used after that and in the 3 plus years since I have had no symptoms. I guess it would depend on the individual and how...

I think something like this varies with the individual. I for one have not had so much as a cold in the past three years since going gluten free. A couple of times I thought I was beginning to feel the effects of a "bug" but nothing has lasted more than about 24 hours. I feel as though my immune system is stronger than the average person since it is no longer...

Unfortunately I still believe the majority of the doctors out there don't understand the cause/effect of gluten intolerance enough to make a diagnosis based on diet response. That said I for one would like to have known that a diet change was a possibility for my years of symptoms. Even if I might not have gone or stayed on the diet at least I would have...

Not quite sure what you mean when you say "if you only have one or two of them". Basically there are two genes (DQ2 or DQ8) in which the majority of those with Celiac possess either one or perhaps both. I have only one (DQ2) and I was diagnosed via biopsy. According to the statement on my blood test "greater than 95% of all persons with Celiac have either...

You have pretty much summed up my feelings on the subject. The tests that are available now are effective if the right ones are done and the person is sick enough to show positive. I did not have blood tests prior to postive biopsy but after being on the diet for over a year my levels (blood) were perfectly normal as one might expect after having been 1...

Note quite sure what it is you are looking for in terms of support. If in fact you do have undiagnosed Celiac/gluten intolerance then the only way your symptoms will subside is that you start and "stay" gluten free from now on. That said if it is mainly a question of willpower and the only way you feel you would be compliant (and your husband supportive)...

I actually got gene testing done on the "back end". I had been on the diet for over a year based on positive biopsy. (There was no need for a blood test because I was so malnourished the doctor went straight to the scope). Anyway in order to see how I was progressing I had the Celiac panel done and while I was at it requested the gene test for myself and...

Was at the local mall yesterday around lunch time. Wife suggested eating at the cafe in Nordstrom's. I was a little skeptical as it would be my first experience there. I looked at the menu and saw something that looked safe and placed the order without asking any questions from the staff. It was called "Tuscan Chicken" with roasted veggies (potatoes, yellow...

Were your husband's parents "gene" tested or "anti-body" tested or both. Does your husband possess either of the Celiac genes (DQ2 or DQ8)? What I am saying is that either or both parents could possess a gene and never develop symptoms. Because the FIL has symptoms then I would not be surprised if he has at least one of the genes. Whether or not he would...

Interesting topic. Education in my opinion provides the best opportunity for early detection and treatment of gluten intolerance/Celiac Disease. Because of the current low diagnosing rate for Celiac a new doctor could see the huge "opportunity" to find as many of the yet un-diagnosed as possible. By doing this through effective screening and testing (for...

Here's my 2 cents on this topic. I was thinking of getting an individual policy when my wife retires from her job. We currently have insurance through her company. I used to work for the same company. For over 25 years I used very little in the way of benefits because I did not need to do so. I used the coverage off and on for the year prior to my diagnosis...

I think anyone who has had extreme symptoms as the result of Celiac and then once starting the diet and seeing positive results will agree that it is "more than worth it". For me I basically got my life back and it is just a matter of navigating from there. I don't look back at what life was like (good or bad) but rather focus on ways to adjust and hopefully...