Jump to content


Advanced Members
  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About debbiewil

  • Rank
    Star Contributor

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Location
  1. I have the book and I've read it. Actually, I don't think it told me anything I didn't know, it just confirmed things that I've thought for years. Like doctors don't believe patients tell the truth, if it doesn't seem to match with the diagnosis or idea that the doctor already has. So if you say, have liver disease, and the doctor thinks it's because you are an alcoholic, he's already made up his mind and isn't going to test for anything else. And if you tell him you're a life-long teetotaler, he's still not going to test for anything else, because he thinks you're lying. Some other things like that - doctors don't think of testing for so-called 'rare' diseases even if you have all the symptoms. They're told in medical school that they'll never see a patient with this, so they don't test for it. Well, honestly, no matter how rare it is, if it exists at all, some doctor eventually has to see it, right? So if you have the symptoms for it, the doctor should test for it, but they don't. Anyway, the book did describe typical 'doctor think' and had a couple of suggestions for dealing with it. It wasn't a bad book, but I'm more tempted to bring it to my doctor next time I go in, and point out the things my doc does, and why that's not good medical practice. If I did that though, I probably wouldn't have the doc any longer. LOL Debbie
  2. Ok, some good stories for balance. A friend of mine was working as a waitress a couple of nights a week. A gentleman came in who didn't speak really good English. He did explain that for religious reasons he couldn't have any pork. She suggested the prime rib special. He asked her to make sure it wasn't pork. She said it wasn't, but since he was so concerned, she would check with the chef. She went into the kitchen and asked. The other staff in the kitchen started laughing at her for asking. She said that it was important to the customer, so it was important to her to double check, even though she knew it wasn't. The manager backed her up, and told all the wait staff to always ask when a customer had concerns about the food! Was at a fair this summer. Had brought some food, but was there longer than planned and started getting hungry. One booth was serving meat on a roll. I could see the meat being cooked and they only seasoned with salt and pepper. When it was done, they carved it up at the cooking area, then brought it over to another table where a couple of people were making sandwiches. Well, I was hungry and figured it couldn't hurt to ASK, so I went up and said I had an allergy (easiest) and asked if I could get meat without the bun. The girl taking the orders said sure, and turned around to one of the others and said one order with no bun. Well, the guy at the table looked up and said "No bun?" and I figure I'm going to have to explain everything, but the girl said "yes, it can't even go NEAR the bun!" While I'm standing there open mouthed, the guy goes "OK" takes off his gloves (I hadn't said a word about them yet!), puts on clean gloves, got a new piece of foil from the box, not one that was sitting out on the table by the buns, walked over to the cooking area and got some meat fresh sliced off the roast! And it was absolutely delicious! So there are some people who do "get it". I hadn't said a word about cross contmination or anything, but both of them were obviously aware of the issues. Debbie
  3. Guhlia, Outback has a policy of rewarding employees when they get a positive customer letter/email about the employee. Write a letter or send an email to Outback corporate, and let them know how pleased you are with this employee and with having the beer available. It will give the employee a boost, which might make that employee and any others in that restaurant an incentive to be even more celiac friendly, and it will also let corporate know that there is a need for this at all the restaurants. Can't hurt, might help. Debbie
  4. Bad Karen Ohhh, that shouldn't be hard at all. They have ice cream all the time with candies, cookies, etc. chopped up in them. Just a good basic ice cream, crush up the altoids or run them through the food processer, and mix them in. The question is - Do we tell people what's in them before serving or not? Debbie
  5. Ohhh, that shouldn't be hard at all. They have ice cream all the time with candies, cookies, etc. chopped up in them. Just a good basic ice cream, crush up the altoids or run them through the food processer, and mix them in. Debbie
  6. Actually, you could reach the one in Westbury by public transit also. You could take the Long Island Rail Road out to Westbury and either walk (longish) or take bus to the restaurant. I don't know exactly where on Old Country Road the restaurant is (I lived in Westbury a loooong time ago) but I used to live a block from the train station, and I'd walk down or take the bus to places on Old Country Road all the time. I'm not familiar with current bus routes, so you'd have to check on that. Also, there used to be a bus you could catch at the Mineola train station that went right down Old Country Road. So it is doable, but you'd have to check on the bus routes. Debbie
  7. Actually, you may have had hypothyroid caused by gluten malabsorption. The main hormone that the thyroid makes is T4, but it needs to be converted to T3 in order to work properly in the cells. There are several nutrients needed to convert T4 to T3, like iron, some of the B vitamins, even cholesterol, etc. which are often lacking in gluten sensitive people because of malabsorption. So, your thyroid can be fine, and producing properly, but your cells can be hypothyroid because they can't convert the T4. That would give you the hypothyroid symptoms, but since your actual thyroid is fine, once you start absorbing the nutrients necessary to convert, then the hypothyroid symptoms would clear up. The thyroid does make a small amount of T3, but not enough. So thyroid tests might still show some T3 in your system, and proper thyroid function, but there just isn't enough T3 getting into the cells. Debbie
  8. There are a number of other things that can cause fatigue - hypothyroidism, hypoadrenia, anemia. Your sleeping patternd doesn't sound like apnea. Debbie
  9. HIPAA is a fedaral law (passed in 1996) which limits insurance companies abilities to deny coverage for pre-existing conditions in most circumstances. You should look into the law, and see if it applies to you. If so, then they can not deny you insurance. You can find more information about HIPAA here http://www.hhs.gov/ocr/hipaa/ The portability part is mostly overseen by the Dept. of Labor, as it usually (but not always) applies to group insurance. There's more info on that here http://www.dol.gov/dol/topic/health-plans/portability.htm Anyway, see if HIPAA applies. If it does, file a complaint and send a copy to the insurance company. In the meantime, check with some other insurance companies. http://www.connecticuthealthlife.com/healthinsurance.html Debbie
  10. It depends on the state. California has some specific legal requirements for ordering tests, and New York flatly forbids certain tests to be ordered without a physician, but it really depends on the state - not federal laws. Debbie
  11. There's lots of good info at this website http://www.stopthethyroidmadness.com Debbie
  12. Depression and fatigue can both be signs of hypothyroidism, which is often associated with celiac. If you think that might be your problem, ask for the blood tests. You need Free T3, Free T4 and antibody tests, as hypothyroid can be an autoimmune disease (Hashimoto's hypothyroidism). The doctor my want to do TSH test, which may give false negatives, Total T3 and T4 tests, or Uptake testst none of which really useful. Insist on the Frees. Debbie
  13. So glad to hear he's doing so well. I did know he had ear/hearing problems, so very glad that has been resolved. And keep those wonderful avatar pictures up to date. He's so precious! Debbie
  14. Costco. There are a number of Costco brand (Kirkland) products that are gluten-free. Their rotisserie chicken and chicken wings (not the ribs) in the deli dept are gluten-free for a fast dinner or emergency pot luck. And their fresh produce is much better than the selection at Sam's. On the other hand, Sam's has better prices on some products, like frozen fish and some meats. But you have to buy more bulk. Debbie
  15. Rachelle, it is possible to order the tests yourself. Of course, then the insurance won't pay for it. But maybe if you had the tests, you could get the referral to the endo. I got my test myself from http://www.canaryclub.org It was a package that did the adrenal hormones cortisol and DHEA, thyroid TSH, Free T3, Free T4 and estrogen, progesterone and testosterone for $141.00 Oh, and it's a saliva test, so you don't have to worry about finding a lab to get blood drawn. I think there are other places as well, where you can just get specific tests. You can order it yourself unless you live in New York State, which doesn't allow self ordered tests.
  • Create New...