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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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GFAnnie last won the day on February 5 2015

GFAnnie had the most liked content!

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  1. Thank you so very much! Sometimes I feel like I'm only now getting my feet back on the ground after 5 years of craziness and this celiac thing just kind of got tossed onto the pile of craziness. My sister and niece had been my celiac ambassadors when we first got our diagnosis, sending recipes, advice, and gluten free care packages - but in the past year or so they've done a complete 180, and the rest of my extended family are all too happy to jump on her bandwagon. So here I am questioning everything because we never did do the biopsy. I will contact my doctor and have her send my results again but I think I recall them being very close to my sons, though maybe slightly lower.
  2. I've got my son's results! I discovered that I posted about them once before, a long time ago, and didn't really get much response. (I still need to find my own.) Tissue Transglutaminase AB, IGA 25H (less than 4 means no antibody detected) Gliadin (Deamidated) AB (IGA) 6 (less than 20 antibody not detected) Gliadin (Deamidated) AB (IGG) 18 (less than 20 antibody not detected) Thoughts?
  3. Thank you so much for your replies. No, the doctors for all three of us were different doctors. My niece had a regular family practitioner, but my son and I see naturopathic physicians - though the tests were the traditional blood serum tests that are recommended, no crystals! From what I can remember about the endoscopy discussion, I think it was basically "So is that it? Should I get any other tests?" and my naturopath said something to the extend of "You could get a biopsy, but it's basically a sure thing, I don't think it's really necessary." At the time I had a newborn with health issues and my life was pretty much spiraling out of control so I decided the blood test was good enough. I do have copies of the results somewhere and I need to go locate them. Like I said, life was out of control at that time, so I maybe foolishly took their word for it and the results just got stashed somewhere! I will see if I can find them tomorrow and post, because I really would love to have some input. But I'm happy to know the gluten challenge only needs to be two weeks. That sounds a lot more manageable. Also, that's a good point about whether I'm celiac or gluten sensitive, I would still need to be off gluten entirely, so does it really even matter? I know for my sister and niece, this is very much a conscious choice to find any excuse they can to avoid having to keep my niece 100% gluten free anymore. And sure, I'd love to think we wouldn't have to be, but either way, it seems like we need to be anyway because clearly something is going on in our blood to show there is some kind of problem?
  4. I need some advice, please! I had a blood test done for Celiac about 4 years ago and my doctor told me I tested positive for Celiac. I also had my three year old tested and he too had positive results. (I also have a niece who was diagnosed the same way prior to my getting tested). Long story short, I accepted these results and my son and I have been living a gluten-free life ever since. Fast forward to now, and my sister and niece have come to the conclusion with the help of a doctor my niece now sees, that she probably doesn't really have celiac, she's just gluten sensitive. This is not based on any particular medical tests. I guess the doctor did look at her old results and this is just "what she thinks." So now I'm being kind of attacked by my sister because she's convinced my son and I don't really have it either and we should just "lighten up." (we're not terribly symptomatic) I realize now it was a huge mistake to not have the biopsy done, but my doctor at the time did not see the need, and my sister (who is now telling me I don't have it) also never bothered with the biopsy for my niece. So I guess my question is, now what? Have I been foolish to assume my son and I have celiac for the past four years and lived a gluten free life based on positive blood test results? Should I insist on a biopsy now? I have hit the point where gluten does cause me intestinal problems so I dread the idea of eating gluten for six weeks.
  5. This will probably sound like a silly question but bear with me! My children and I all have celiac, therefore, my outnumbered husband stays pretty much 100% gluten free at home, making our entire home gluten free. Holiday entertaining is about to begin here, and I have a large group coming next weekend. I would like to keep it simple and order out pizza. There's no way I can afford gluten free pizza for all, which leads me to the idea of ordering regular old gluten pizzas for the guests, but it kind of freaks me out to fill my kitchen with all that gluten. I will add that we are NOT sensitive, at all, so this shouldn't result in weeks of serious gluten symptoms. However, exposure is exposure, right? So what do you think? Would you do this? Any special precautions you would take? I have a pretty small kitchen so it would be hard to contain anything to one area.
  6. Thank you! He does want her to do a gluten challenge, but since she's about to start the school year, she is going to wait until next summer. I guess what the GI doctor had told was that she only scored positive in the test he considered the weakest indicator of celiac. So I guess I was just curious If my sons results were similar to hers. I need to contact her now that I found his results, but I know there are much more knowledgeable people here!
  7. Quick background - This test was done in 2014. I had just been diagnosed with Celiac myself (via bloodtest) and so my doctor suggested we test my then 3 year old as well. He did the bloodtest and my doctor said he had it as well. I had just had a baby and my life was totally nuts at that moment so I said thank you, and our home has been gluten free ever since. Also, my niece had been diagnosed with celiac (via bloodtest) a few years prior so I figured it's in my family. What brings me back to re-reading our results is that my sister recently brought my niece to a GI specialist who looked at her test results and said he's not convinced she has celiac. He said it's more likely a wheat allergy, and suggested she do the endoscopy. So my "it's in the family so it makes sense I have it too" is beginning to erode. And if I understand these results at all, my son only test positively in 1 of the 3 things tested. I personally never had much in the way of symptoms but I do suspect I have DH. So long story short, here are my son's results. I apologize because I'm just going to copy what I think it supposed to be the important part, as much as I can understand it! Tissue Transglutaminase AB, IGA 25H (less than 4 means no antibody detected) Gliadin (Deamidated) AB (IGA) 6 (less than 20 antibody not detected) Gliadin (Deamidated) AB (IGG) 18 (less than 20 antibody not detected) So my understanding is that the first test there were a lot of antibodies detected, but in the last two, there were none. So, celiac? I wish I could find my own results, but at the moment I cannot. I believe my results we that same kind of deal though, high in the first test (but not as high as his) and clear on the last two.
  8. I have a one year follow-up appointment next week with my doctor who doesn't believe any follow-up is necessary! And to be honest, I don't even know which tests exactly I'm supposed to request, and what kind of results are expected/acceptable after the first year. I know my doctor is not going to know, because like I said, she believes if I'm following a gluten free diet no follow-up testing is necessary. I know well enough to know this isn't true, but that's about all I know. In general, I'm quite clueless about the blood tests and results - my diagnosis was really kind of an unexpected surprise. Can anyone guide me, please!
  9. Oh, and I'll also add that the mistake I made the first couple of times was taking "low heat" very literally and only turning my stove on "low." This resulted in a sticky mess. Once I started cranking up the heat a little I started getting perfect playdough every time. Another benefit of playdough with white rice flour is that the playdough comes out pure white, and colors very nice and brightly with food coloring. As to your question Missdiamondbc, I don't know for sure if you can just swap rice flour for the wheat flour in your usual recipe. But the recipe I posted is probably not too far off from your own? It seems like the ingredients are not too far off from the standard wheat playdough.
  10. I know what you mean, we pay a lot too. But I guess I feel like I'm asking the teachers to go a little out of their way to protect my son, so I'll go a little out of my way too. Not to mention, my son loves playdough so this keeps a fresh supply going in our house as well. I just buy the ingredients in bulk on vitacost. And even though we pay a lot for his school, they still hold a lot of fundraisers that parents are supposed to be involved in, so in a way this gets me out of a lot of that! Here is the recipe! (from celiacfamily.com) Easiest Gluten-Free Play Dough Recipe Ingredients: 1 Cup White Rice Flour 1/2 Cup Cornstarch 1/2 Cup Salt 1 Tbsp Cream of Tartar 1-1/2 tsp vegetable oil 1 Cup Water, hot but not boiling Food Coloring, as desired Directions: Mix all dry ingredients together in a medium pot. Add the vegetable oil, then the water, and continue to mix until thoroughly combined. Heat the pot on the stove over low heat for about 3 minutes. I like to stir frequently with a silicone spatula. When the dough starts to pull away from the sides easily, turn out the dough onto parchment paper. Let it cool briefly until you can work it with your hands. Knead food coloring into the dough until you get the color you desire. Additional Notes: Don’t overcook the dough. It shouldn’t need more than five minutes. To add food coloring, I use the method I’ve used since I was a kid: Using your thumbs, make a well in the middle of the ball of dough and drop the food coloring into the well. Close up the well with the outside dough, keeping the food coloring in the middle of the ball. Then, carefully begin kneading it until the color is evenly distributed throughout the dough. You don’t have to use the parchment paper. The dough shouldn’t be sticky. I use the parchment paper to simply keep residue and food coloring off my counter top. Wax paper or a plate would work just as well. If needed, adjust the texture with small amounts of water (for dry, crumbly dough) or cornstarch (for sticky dough). Makes about 2 cups of play dough, or about 2 baseball-size balls of dough. Store in tightly sealed plastic bags or containers.
  11. I agree with everything already said, but one thing I'm wondering, do you have any skin issues? Some of us have DH, or other celiac skin conditions, and in those people (like me), very few or no digestive symptoms can be present. This was something that took me a while to figure out post-diagnosis, and my doctor was clueless about. Also, perhaps your symptoms are more neurological, like anxiety, depression, or just plain crazy irritability, weapiness, paranoia, or feeling like you can't handle life. I also thought I was "mild" but then as I learned more about the variety of symptoms and became better at detecting my non-digestive reactions - skin rashes and temporary insanity!
  12. I am "playdough mom" at my son's preschool! I provide a fresh batch of gluten free playdough to his preschool every two weeks. The teachers love the donation of time and supplies, and I don't have to think twice about my son getting glutened via playdough. I couldn't tolerate gluten playdough in his classroom. All those gluteny little hands touching all the furniture, books, art supplies, my son etc. I don't see how my son would be able to avoid getting glutened in those conditions. Making a batch of homemade gluten free playdough is just as easy as regular playdough, and once you do it a couple of times you'll have it nailed.
  13. I have a bottle of elderberry syrup for my celiac kids (supposed to help boost immune system because they're catching EVERYTHING this winter!) and I noticed that it contains "Pure grain alcohol." I'm so confused about alcohols and what is and is not okay. Because it is "pure" grain alcohol, does that make it gluten free and safe? I'd love to start giving this to them, but the point is to make them better not worse! Thank you!
  14. Dish Soap

    Just an FYI - Seventh Generation dish soap actually says Gluten Free right on the bottle.
  15. Kitchen size is a huge problem for me too, which is why I've never seriously considered one. But with all the Black Friday/Cyber Monday deals coming up, I'm wondering if I should make the leap and get creative with kichen space!