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CanadianK

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CanadianK

  1. CanadianK
    Thanks for all your replies. It's been a topsy turvy week as I dealt with this disappointment, but I've come out the other side and I'm feeling ok with it all. Ultimately I know what I need to do. I realized I was also feeling challenged by certain family members doubting me and I just wanted proof/dr's approval to show this one person… I think I need to w...
  2. CanadianK
    Thx nvsmom. I had done that but really couldn't find what I was looking for. I'll keep sleuthing
  3. CanadianK
    In June I went to a Naturopath for all my gut/mental health issues and she ran a celiac test. The DGP IgA came back as almost positive. In the "normal" range, but where .9 was the positive, mine was .8. I had been gluten light for 2 years. So I decided I wanted definite answers. Went to my GP, got into a GI Specialist, and started the ball rolling. Colonoscopy...
  4. CanadianK
    I've been on the Specific Carbohydrate Diet for a few weeks now and I'm seeing great progress. Perhaps he has other deficiencies or adrenal fatigue… I've been enjoying reading and learning from this site lately Open Original Shared Link
  5. CanadianK
    Thanks for your reply @nvsmom. All of this is so fascinating for me and I feel like I can't get clear information. My Dr is hesitate to call anything, anything! In fact, she felt perfectly fine to put my 4 year old on reflux meds indefinitely rather than "disrupt the family with diet changes" Um, WHAT?! I politely declined and so now I'm taking it all...
  6. CanadianK
    I've been thinking about all these tests and what they represent, etc. as I've been waiting for my results. I was just under the cut off for the DGP IgA test .8 where .9 is a weak positive (however I had been gluten lite for years). I've now done my gluten challenge, biopsies and needle pokes (with papers in hand from this group about all the blood tests...
  7. CanadianK
    THANK YOU!! I called the lab and they keep kids blood for a month! I'm in the process of calling my Dr. to get her to add it in. I can't thank you enough!!
  8. CanadianK
    Hi all I was here awhile ago asking about blood tests and my daughters anxiety, etc. Anyways, I finally got her blood test done and the Dr called with the results but then said, there are no celiac results, but her IGA is fine. What?!? Turns out my dr. didn't specify on the form that she wanted the celiac panel, instead she just wrote IgA. I'm annoyed...
  9. CanadianK
    I just wanted to follow up here and add some info I was given. Just to preface this, my total IgA count is within normal ranges. And when my tests were done I had been gluten light for the past 2 years. I contacted the lab that did these tests and enquired about the kinds of tests these were since someone had commented about the reliability of the...
  10. CanadianK
    Thank you -- sleep was exactly what I needed. I woke up this morning realizing I was already on my way to being dairy free because since Jan I have been swapping out cow milk for almond or coconut milk. I do love my specialty cheeses but I'd rather feel good. Yogurt will be tough. Although I've been making my own and apparently after I've healed for a bit...
  11. CanadianK
    I just completed a 9 week gluten challenge today and did my endoscopy as well as the celiac serology panel (had 8 biopsies taken as well as all the blood work recommended by the many fabulous ppl on here!) I had a colonoscopy done a few months ago, and copious amounts of blood taken. I'm feeling overwhelmed and weepy after all of this. I think it...
  12. CanadianK
    Yes it is the same. Mine was called Lymphocytic Microscopic Colitis. There are two kinds: Collagenous and Lymphocytic (or others I'm not aware of?) LC is more closely related to celiac disease
  13. CanadianK
    I am just about to undergo the endoscopy to test for celiac since I was diagnosed with Lymphocytic Colitis and my GI said the LC is usually a symptom of a larger issue -- and closely related to celiac. She does not want to treat the LC until we know the celiac results because she said treating the celiac (gluten-free diet) will help the LC. I'm not entirely...
  14. CanadianK
    I'm genuinely curious here if there are long term negatives to NOT doing the testing on my daughter. I am in the process of celiac testing for myself after my initial blood work showed Non-Celiac Gluten Intolerance and just under the cut-off for celiac. I had been eating gluten light for 2+ years. So I'm currently on the gluten challenge and then doing...
  15. CanadianK
    I actually can't find the info as to whether or not this was the "deamidated* gliadin test. The test calls it an "Allergy IgG - Gluten (Gliadin)". It may be the old one, which is why I'm doing further testing… Again, I was gluten light for almost 2 years when these tests were done. I also had the Anti-Gliadin IgA which was just under negative. ...
  16. CanadianK
    Hi There I'm in the middle of testing for myself, but notice a lot of my symptoms in one of my children. For many reasons, I am not comfortable doing the blood test on my daughter. She's 6 and extremely afraid of the idea of a blood test. She's extremely sensitive and it took until she was 4 to even allow the dr to touch her tummy (at her yearly...
  17. CanadianK
    New here and still learning but thought I would add a little info from my experience. I had the IGG test and mine came back as Elevated. The notes from the lab say "With a negative result for Anti-Tissue Transglutaminase IgA, results are consistent with non-Celiac gluten sensitivity". I had been gluten light for 2 years prior to this test so I'm just finishing...
  18. CanadianK
    I just checked the two labs that I could go to and what they test for and it seems the tests are different at each one :/ Lab #1 tests for: NOTE: Celiac disease panel includes: 1) Deamidated Gliadin IgA antibodies and 2) Tissue Transglutaminase IgA antibody. Lab #2 tests for: Testing Includes Deamidated Gliadin Peptide IgG And Tissue Transglutaminase...
  19. CanadianK
    I have 13 more days of the gluten challenge and I can. not. wait. I am so looking forward to feeling well again, and not having the searing gut pain and joint pain. My migraines have come back worse than I have ever had them (locked in pain unable to move!) and I just want to sleep, or cry! I had one blood test done by my Natropath but I had been eating...
  20. CanadianK
    I'm on day 3 of the gluten challenge, after feeling A.Mazing on the SCD. I did the SCD for 5 weeks and while my loose BMs didn't clear up they went down to one a day and I had energy that went on forever and patience for my children (and husband) and just generally felt light and good! Now my back pain is back, my kidney's ache (referral from intestines...
  21. CanadianK
    Hi all Can someone take a look at my numbers for me and let me know what you think. My doctor said all was fine and I may be sensitive to gluten at times. I've been restricting gluten off and on for up to 2 years now which I know can affect the numbers. Would you do a gluten challenge and get some clearer results or is it safe to say I don't have celiac...
  22. CanadianK
    Thanks Colleen. And yes, for the past 2 years I've been limiting gluten, but have never been symptom free because I kept slipping up, or ignoring it, or feeling defeated and eating chips or something. I am worried that my spotty gluten-free eating will affect the test but my ND knows all of this so we can have a more in depth conversation once we have...
  23. CanadianK
    Hi All I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. After having my blood work done at the Naturopath, I followed up asking what was tested and she said these: Tissue Transglutaminase IgE Wheat IgG Gliadin IgA Gliadin I've looked around online to see if these are accurate...
  24. CanadianK
    Hi all I'm in the testing phase of all of this. I suspect Celiac or Gluten Intolerant since like all of you I feel like absolute crap when I eat gluten. As well, my BMs have been 6+ times a day for over 2 years, B12 and iron are extremely low as well as depression/tiredness, emotional, etc. I thought I was gluten free for awhile and still struggling with...
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