strawberrymoon
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Everything posted by strawberrymoon
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ARCHIVED Gastro discharged me and cancelled endoscopy - in pain and worried!
strawberrymoon replied to strawberrymoon's topic in Related Issues & Disorders
Thanks for this, it's very interesting. Thanks to the advice on here, I wrote to the consultant and had an endoscopy within 2 days - although they couldn't complete it because I panicked and pulled the tube out, I'll be having another under general anesthetic at some point. They noted undefined abnormalities in my esophagus, opening to my stomach... -
ARCHIVED Gastro discharged me and cancelled endoscopy - in pain and worried!
strawberrymoon replied to strawberrymoon's topic in Related Issues & Disorders
Thanks for the link, I'll certainly ask about it. -
ARCHIVED Gastro discharged me and cancelled endoscopy - in pain and worried!
strawberrymoon replied to strawberrymoon's topic in Related Issues & Disorders
I've had the pain for a number of years although it was mild to begin with and has got worse over the last year, the jaundice started last summer, it's on and off and I feel really ill when it happens. I've not heard of that scan, I'll look into it. -
ARCHIVED Gastro discharged me and cancelled endoscopy - in pain and worried!
strawberrymoon replied to strawberrymoon's topic in Related Issues & Disorders
Thanks for the replies you've been very helpful. trents - the gastro didn't do any blood tests but my lipase levels were checked last year, I believe, and came back normal apparently, the only test he did was the CT scan. He said at the appointment back in January that the endoscopy was the most important one, so it's even more confusing as to why he... -
ARCHIVED Gastro discharged me and cancelled endoscopy - in pain and worried!
strawberrymoon posted a topic in Related Issues & Disorders
Hello, I hope I've posted this in the right place. I'm looking for suggestions/advice on what to do next. I've been gluten free for 2 years (not diagnosed celiac}, soon followed many other problems with food, dairy, nightshades, eggs...the list is never ending. I've currently got a very limited list of foods that I can tolerate. I have pain on my right... -
ARCHIVED Horrific alcohol reaction
strawberrymoon replied to Stephanie kate's topic in Coping with Celiac Disease
Hi, sorry you're not feeling well. Just thought I'd mention, if you do have a problem with corn (as you mentioned previously is a possibility after you saw a herbalist) and you decide to try gin, I'd be careful of what mixer you have. The only mixer I can have these days is soda water due to corn being in everything. A few weeks ago I went out and the barmaid... -
ARCHIVED Horrific alcohol reaction
strawberrymoon replied to Stephanie kate's topic in Coping with Celiac Disease
Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have! As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably... -
ARCHIVED Question about other food intolerances after going gluten free
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables. As for the candida, I've been using coconut oil and am seeing a medical herbalist... -
ARCHIVED Question about other food intolerances after going gluten free
strawberrymoon posted a topic in Coping with Celiac Disease
Hi, I have a question about vegetable intolerances, I have searched online but can't find any answers so wondered if anyone here might know. Since going gluten free a year ago I have developed problems with a lot of other food including vegetables. I'm planning a Candida cleanse and part of that includes drinking vegetable/chicken broth. If I made a... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi Rowan, I did read something about oxalates a while back and meant to look into it more. It sounds like this could be part of my problem. I'll look into it again. Like you I can't drink coffee anymore, but feel better for cutting it out. I also tend to stay up late most nights which probably isn't doing me much good. I stopped exercising a few... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
I didn't realise that, thanks. I'll look into it. -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi jaemac, I've heard a mixture of things about bone broth, a lot of what I've read seems to say it tastes nice. I'll give it a go this week and see what happens lol I haven't eaten meat for 31 years but there's been a couple of times when I've seriously thought about having some. I'm starting to feel like I might not have any choice soon. I can't... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi Ennis, thanks for replying. I have a problem with yeast and anything processed at the moment. I'll try a stir fry maybe adding some seeds like you suggested, I haven't tried any protein shakes, I'll give that a try too. -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi Jaemac, Thanks for the mayonnaise recipe :-) I've been looking into making bone broth, not sure where that stands with me being a vegetarian but I feel like I've got no choice and need a hell of a lot more nutrients than I'm getting. I've found a local farmer who sells small batches of bone specifically for broth, all from organic farms and grass... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
You have no idea how helpful you've been, I live in the UK in a small town so need to look online for probiotics. I've found one that has 30 billion so will start with that when I can. I've never heard of prebiotics so will look into that too. Sounds like you were really bad, I'm not far off where it sounds like you were. I usually manage 2 small meals... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi jaemac, again, I can relate to a lot of what you've said here. I think my weight gain over the last 15 years was to do with gluten, I'm still losing weight, in stops and starts, but I'm nearly at my natural weight now so I'm not worried at the moment. I know what it's like to be scared of opening the fridge! I've tried to reintroduce some vegetables... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
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ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi, I've started trying a few different foods this week, I'm not sure about having the same thing more than one day in a row as that's when the problems start. I'll keep that idea in mind though for sometime later down the line. Are things better for you now after trying this method? -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi jaemac, your post has made me see there is a light at the end of the tunnel. I too have been reading up on a lot myself and also believe it's leaky gut, despite what the doctors say. I've not found them to be of much help so far and have been doing my own research. I've started re introducing a few vegetables this week in small amounts, so far all is... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Thanks for replying. I have been a vegetarian for 31 years, I guess my diet now means I am a vegan but not by choice. Blood tests have picked up a lack of protein and I have seen a dietician who said she couldn't help me and referred me to a specialist who deals with IBS, which I don't understand as I don't have that. I don't know my blood glucose... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Hi thanks for this. The kidney function test I a few weeks ago came back normal but there was a question mark over ketones, they said it was all okay, then last week the doctor rang me as there was ketones in a urine sample and I have to repeat the test next week. I'm a bit confused if they weren't worried about the blood test. I feel for your... -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon replied to strawberrymoon's topic in Coping with Celiac Disease
Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well. -
ARCHIVED Six months in - so many food intolerances, can hardly eat anything
strawberrymoon posted a topic in Coping with Celiac Disease
Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten... -
ARCHIVED No idea what to do next
strawberrymoon replied to kam00096's topic in Coping with Celiac Disease
I would say with two positive blood tests you do have celiac and personally I wouldn't put put myself through the hell of eating gluten for more intrusive tests. I can relate to a lot of what you've said here. I've found the NHS useless and have been finding own way around things, mainly with the help of this site. I've refused tests as things are so...