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About GlutenFreeAl

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    Central NY

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  1. Hello GFAl, Ive been reading an old post about the abdominal pain you were experiencing at night time.

    My daughter has recently been diagnosed as Celiac and is suffering with the same pain at night. Did you ever find out how to control this? She is already on the diet and was ok for a few months but recently had a stomach bug and is up every night again.

    Any advice you can give please?

  2. Happy birthday and may God bless you today!

  3. I don't want to discount anything necessarily, however I would think that the honey would be fine. Regular ol' honey could potentially come from a hive located close to a wheat field as well, and heating or processing it wouldn't do anything to destroy the gluten. So if raw honey is a potential source of CC, so would regular honey. And peanut butter when the peanuts come from a field next to a wheat field. And jam made from berries grown next to a wheat field. And sugarcane grown next to wheat. Etc. If you really thought about all the potential sources for food to be grown next to a wheat
  4. It may be worthwhile to ask your doctor about doing them yourself at home. I was only paying $40 each time I got one done, but I was also driving an hour and a half away to see the doctor (when gas was $4/gallon) - so it was adding up quickly. And it was difficult to get all of the time off of work to go weekly. It was actually my doctor's idea to do them at home - I was very hesitant at first, because I knew I would just scream at my husband every time. But I swear to you, it does start to hurt less and now I do them myself and they barely hurt at all and I actually look forward to them b
  5. I give myself bladder intillations regularly, and they are the ONLY thing that has helped my Interstitial Cystitis to any real degree. Avoiding things like tomatoes and chocolate certainly doesn't hurt, but the instillations actually make my bladder feel good!! I use a cocktail of 20mL Lidocaine and 10,000 units Heparin. At first the catheterization hurt like HELL but as your bladder starts to feel better it stops hurting so much. I started off by getting them in the doctor's office, then they trained my husband to do them for me, then out of necessity when he was out of town I taught mysel
  6. Thanks Laurie, I actually already bought some. It was like $7 at Feel-Rite. Do you guys take this every night? Only when you can't fall asleep? What dosage? I took some last night, it was a 3 mg dose. I fell asleep quickly and actually felt rested when I woke up this morning, BUT when I woke up in the middle of the night to pee (as per usual) I thought I was going to die! I was so dizzy and weak and disoriented. Is that abnormal? Thanks for your help!
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