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bigapplekathleen

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About bigapplekathleen

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About Me

Non-Celiac Gluten Intolerance, Allergies to Wheat, Rye and 50+ other foods, Lymphocitic colitis, Chronic Apthuous Stomatitis, Epstein-Barr Virus, Ovarian Cysts, Fibrocystic Breast Lumps, Thyroid Nodules, inability to produce Cortisol, low vitamin levels

Despite this, I function at a very high level most of the time, but when I get sick, I get really sick. Not fun. Wish they had more answers for auto immune diseases.

  1. frustrated with my auto immune disease...

  2. I just wanted to let you all know that they have FINALLY figured it out. (I posted something on another message with complete explanation if you want to look it up.) My new gastro did biopsies 3 weeks ago that showed Lymphocitic Colitis, which certainly explains A LOT. I am better already on...
  3. I don't even have gluten foods in my house. IN fact, they have never been in my house, since I just bought it 2 years ago and it was new. I live alone. My friends don't bring gluten here. I do not eat out at all anymore. I eat no processed foods - just meat, fish and veggies (and a little fruit...
  4. Ok...complete frustration here... After taking prednisone for FOUR WEEKS, the sores all came back within 48 hours of stopping the meds. I am so angry! My mouth hurts so much. The blood tests were negative for coxscakie and my new infectious disease doc ran all kinds of blood work to check...
  5. Actually, you're wrong on the origin of the sores. These are NOT herpes and are not spread sexually. They are purely VIRAL. I have gone over and over this with the specialists. They have been cultured, etc. It is definitely NOT that. K
  6. So...another question for those of you that have had severe outbreaks like this before... I am now at Day 32 after the sores started, and they are virtually gone. There are still a few in there, and a few pop up each day, but go away fast, since I am still on prednisone. So, now that the mouth...
  7. Welll...here's the update... The sores went away with the high-dose prednisone that I took for 7 days, but within 48 hours of the last dose, they came back like crazy and I am in so much pain again with sores everywhere. I went back to the docs again and now they think it's NOT coxsackie virus,...
  8. I am completely recovered now (a week later!). The prednisone was a life-saver for me this week. I was back to normal in just 24-48 hours, and the sores were gone in about 4-5 days. I will follow up with an infectious disease person in 2 weeks, since we don't have the blood work back yet, anyway...
  9. Wow. That explains it. I am a private instructor (kids age 4- adult) and a university professor. BUT this appeared before I started teaching this semester, so I picked it up somewhere else! Who knows!?
  10. Wow...you had coxscakie as an adult? I didn't have a cold at all; no mucous either. I am planning to have my tonsils out really soon, since they are so bad. I can't believe I am even considering that at age 39, but they have little holes all over them and tend to breed infection, no matter how...
  11. He is voted one of the best doctors in the Ny Metro area every year... Board certified in allergy and immunology...tough to go after that in any way...
  12. YOu guys won't believe this...but that allergist actually just called me. I cannot believe it. I told him what the other docs found and how surprised they were about what HE had prescribed and the fact that he gave no steroids or prednisone. He wasn't even aware that someone could get coxsackie...
  13. I just want to add that I called my allergist/immunologist today to tell him how off base he was in his diagnosis on Tuesday and how sick I got because he missed it. I asked him if it could be something contagious, and he kept saying no. He didn't do a culture, didn't do blood work, and wouldn't...
  14. I am not sure if percocet can be cut in half. I will ask the pharmacist. I feel almost no pain now, but I still cannot eat even mashed foods. It is way too painful, considering that my tongue is nearly doubled in size and the sores are still everywhere. I hope that the meds start to work some...