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Mandy F.

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Everything posted by Mandy F.

  1. Mandy F.
    Hi! I haven't been to these forums in a long, long time since Celaic has been low on my list of priorities but I popped in for some help and saw your question... I am by no means an expert. I haven't kept up on which tests are best and whatnot. What I can tell you, though, is that 9 years ago I had the "Celiac Panel" run 2 weeks before my scope w/biopsies...
  2. Mandy F.
    Well, after not answering her phone the two times I tried to call her about this, the woman leaves me a voice mail saying "I don't think you're the right person for this position since you won't return my calls." So, since I had no answers regarding any of the questions/concerns I had raised, I promptly called DMH and spoke to a woman in Quality Control...
  3. Mandy F.
    Neroli: I have considered that he may well have psoriasis, also. I wasn't competely ruling it out in my mind but was angry at the lack of effort on their part to see what this means and to properly document why this may be beneficial to him in the first place. I have no idea where the idea came from to start the diet, but feel like they should be doing...
  4. Mandy F.
    I recently accepted a third job which I already considered suspect based on the (lack of) interview because I'm that desperate for cash. It's a home health position and last night was my first night. While going through the books, I saw a note that said "low gluitin diet" (spelled that way!) and I asked the other staff about it. She didn't even know what...
  5. Mandy F.
    Thanks for all the suggestions! I was kind of drawing a blank the other night when I tried to come up with a grocery list... Violetblue: Do you have a recipe for the enchiladas? I've never made my own, but it sounds like a great idea. Now I just need to get up the energy (and time!) to cook all of this stuff and freeze it all up!
  6. Mandy F.
    I was just wondering if anyone had some good recipes that I could make up ahead and freeze. Right now, all I've really got is Chili and Fried Rice (adapted from my preGF recipes ). I'm primarily looking for meals so that I can just take them out of the freezer and pop them in the microwave when I'm just too tired to cook! I have a major issue with buying...
  7. Mandy F.
    I guess I just need to rant a little bit but I'm so frustrated! I've been feeling ill since a few weeks before I was diagnosed with Celiac in March. I initially resisted the diet, but I began following it hoping that I would start feeling better, and for a little while I did. Then I got the same sort of symptoms again, extreme fatigue, swollen glands,...
  8. Mandy F.
    I was lying in bed the other night and had one of those lovely nostalgic sort of feelings. Like when you're reminded of a memory because of a smell or sound. I'm not entirely sure what brought it on but for some reason my thoughts drifted toward memories of miso soup (I'm thinking I was half asleep at this point... ) I was thinking about the first time...
  9. Mandy F.
    I've been getting this lately too. I don't know about you guys, but I smell something fruity... like one of those blueberry scented markers. I have migraines and have had seizures in the past but haven't been getting them along with the scent...
  10. Mandy F.
    I don't have much advice for your thanksgiving dinner, but as far as school, i would put it exactly how you phrased it in your initial post. I find that most teachers are pretty understanding as long as you've been making an honest effort to do the work. I would also ask if there is something you can do to improve your grade. Sometimes they won't give...
  11. Mandy F.
    I'm spending the weekend here and don't have any idea of restraunts/stores where I can get gluten-free food. My BF (who's from around here) has said that he doesn't think many restraunt employees here will speak english or know about gluten/wheat flour even if they do (unless we went someplace upscale maybe...) So, if anyone's been here and has any recommendations...
  12. Mandy F.

    ARCHIVED Dehydration

    Mandy F. replied to Lister's topic in Coping with Celiac Disease

    Has your doc considered Sjogren's Syndrome? I don't know a ton about it bue I just found out that I may have it (from an ANA test). I looked it up and dry eyes and dry mouth are two of the primary symptoms, but there are a TON of other symptoms including joint pain, dizziness, and being cold. I don't have any other advice, but good luck!
  13. Mandy F.
    I've basically been sick since last March with disabeling fatigue and some swollen glands. Doc tested me for everything she could think of back then and everything was negative so she said it was probably a virus. It came back at the beginning of Oct. I saw a doc but not mine (he didn't even look at my chart ) because my doc was booked. He said it...
  14. Mandy F.
    I suppose I'm horrible because I'm not a big fan of summer either... I have tree and grass allergies (that I'm growing into instead of out of) and they just keep getting worse every year. I'm supposed to start allergy shots, but probably won't start them until my next school break (my doc only does the set testing during my class time and I've already...
  15. Mandy F.
    Yeah I'm absolutely going to have my thyroid retested with an endocrinologist. I've got an appt scheduled for Dec. 14th, but I'm going to shop around and see if I can find someone that can get me in sooner. I've got serious fatigue and swollen lymph nodes for the second time this year (last time was in spring, but the glands never did go back to normal...
  16. Mandy F.
    I've had my thyroid checked and it came back "borderline low" one time but has been fine since then. Thanks for the advice on the layers, though. I never really thought about what kind of layers to wear. I think one of these days, I'm gonna move to a warmer climate!
  17. Mandy F.
    I've never been a big fan of winter because I never liked the cold (unless there was snow). Over the past few years, I've gotten to the point where I almost can't stand the cold. Once the temp gets below 60 my hands start drying out, cracking, and bleeding no matter how much lotion I put on. More recently, I've found that I cannot stay warm at all if I...
  18. Mandy F.
    I was totally asymptomatic, too. I don't even know that I had occasional bouts of D or anything except unexplainable stomachaches from time to time and anemia. I had a lot of trouble sticking to the diet at first, because I couldn't see any difference. I decided to make a real effort to strictly follow the diet and I learned that I could have celiac disease...
  19. Mandy F.
    I don't know anything about seizures caused by B deficiencies, but my older sister and I had pseudoseizures. We were both diagnosed with PTSD and were under incredible amounts of stress at the time (we didn't have them at the same time, though). Nothing ever showed up on any of the tests that they ran. Good Luck, hope you figure it out.
  20. Mandy F.
    I get major fatigue and feel "slow" as it was so well put... It happens really quick and can last for a couple of days. The only thing I have found that helps is Naked Juice-Mango Motion. I don't know what it is about that drink that really helps, but it definetly gives me a boost for a little while... Long enough to make it through some tasks anyway...
  21. Mandy F.
    I don't know what to tell you about the bong... But I am a bit discouraged from going to school events because they all revolve around food... Pizza parties, the (and I'm not kidding) grilled cheese party, and barbecues. I always get kind of a weird look when I have to explain my food issues to people and going to events that revolve around food ...
  22. Mandy F.

    ARCHIVED Celiac Dr In Evansville, In

    Mandy F. replied to cmom's topic in Doctors

    My mom said that the person she used to see isn't practicing anymore but that Dr. Johnson is a good GI. She aslo said to try GI associates (I think that's the office that I was talking about downtown) which is actually next door to the Downtown St. Mary's hospital. Or at least it used to be. Sorry I can't be much more help... NoGluGirl, I graduated...
  23. Mandy F.
    So, Tuesday night, I took some Excedrine on an empty stomach. Bad idea because I can be sensitive to caffiene... I had horrible stomach cramps and nausea for the rest of the day and all day Wednesday. I made a pizza for dinner Wednesday night and felt like I had been glutened a few hours later. I blamed it on the pepperoni... Thursday night, I made another...
  24. Mandy F.
    just last night someone said the "at least you're on that diet now and don't have to worry about gaining weight" comment... and she said it right in front of the super athletic guy that I have a major crush on . I responded with "Well, actually, I've gained 15 lbs since going on the diet" She was shocked and the look on athlete boy's face was about the...
  25. Mandy F.

    ARCHIVED Celiac Dr In Evansville, In

    Mandy F. replied to cmom's topic in Doctors

    Hi! I can't give you the name of a doctor off hand, but I used to live in Eville and was told by family physicians that I was just faking all of my symptoms. At any rate, my mom saw a really good doc in Eville for her ulcerative colitis (though mom probably has celiac disease and wasn't diagnosed then). He was in the Deaconess building downtown (I remember...
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